I am a male ( 53 yrs) and started having problems at age 38 yrs. It started with my both legs. They felt just tired , but as time went by, they bothered me more, 15 yrs later, i can still walk but 5 mins seems like an hr. I have to rest alot, more then i stand. If i am on my legs too much, then i have days and nights of terrible pain and, a weakness feeling running through the calf muscles.
Thats just one of my symptoms. The upper body pain is no fun at all.The worse is when i lay down or even lean back in a chair.. its just plan hurts
The only thing that helps me is a heating pad.. I take Pain meds but they only take the edge off. Nothing helps my legs, other then a hot bath but as soon as i am out the feelings come back.
I have been tested so much.. 6 MRI's , nerve conduction, many many blood tests.. so many tests, i just gave up and excepted the" NEW" ME.
I am tired of fighting, I just want to make it through the day and try and injoy myself. I have too much fatigue..I have some in my arms also.
I am not working , had to quit 2001.. after 5 years with this , i was at the rock bottom.. spent 2 years bedridden and slowly i did rebound, but this is as far as i got.
Seen about 22 Doctors in 13 yrs period and some of them if i had the strength i would have choked.. so rude...]
I did find out, that with these difficult illnesses you are truly on your own, most drs i have met wont take the time too help. they will suggest things.. but really, there are no answers. Just cope with the symptoms.
I worry most about my future, I cannot stop what is happening to me, and that is hard to take.
I try my best to be happy, but its really hard sometimes.
I believe i have Fibro, but there are times when i really wonder if i really do have this.Nobody in the family has this but i do have a distant cousin with MS.. and i do believe Fibro and MS is related.
So life goes on and we have to try and make the best of things..But this really interfers with a man's duties, not trying to make it sound like its any easier for a female. just so much heavy work to do around the house this year.
I have been to support groups and know that women have it so tough, felt so bad for some at the meetings with small kids to raise because there spouse left them.
Life is not very fair at all, never thought i would be in this position, and wonder where i will be in another 15 years.