Discussions By Condition: Fibromyalgia

is this fibro ,please read need advice

Posted In: Fibromyalgia 7 Replies
  • Posted By: Anonymous
  • March 1, 2007
  • 09:13 PM

hi
for the past 2 years i have been having symptoms, the first was upper abdominal pain stretching around my back , this was servere enough for docs to unecessarily take out my gallbladder,this was 2 years ago and i still get the pain now , i also get really bad joint pains especially tops of legs , other symptoms include vertigo, pins and needles in hands, severe restless legs,pin ****k sensations, weak arms, clicking jaw, fatigue, anemia, floaters in eyes, and also everywhere seems tender to touch. just poking my arm or leg feels as though ive just been punched full force...ive had bloods done which are always neg, i forgot to mention i also had my appendix out (again for no reason) at the time i had really sore skin as though it had been burnt ..i would like to go to my docs and say this is what i think i have , but afraid of having the idea rejected, (theres alot on the web about docs not believing in fibro) does anyone agree with me that this could be fibro, im getting quite depressed just latley , just so sick of feeling this way..i feel like im falling apart bit by bit , just one symptom after another...thanx for reading...

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7 Replies:

  • Fibromyaglia is a name given to a certain set of symptoms with no known cause and no known cure. Typical treatment involves a lifetime of pain medication. For this reason I actually respect doctors who "don't believe in it." I'm not saying that I don't believe you are in real pain, I don't believe that calling that pain a certain name helps you any unless that name comes with a cause and a cure. If they settle on diagnosing you with a condition that has no known cure, you will either be a patient they cannot help or a candidate for dangerous and invasive experimental treatments. Once I was diagnosed with Chronic Fatigue, no doctor wanted to be anywhere near me unless he had a surgery to sell. If your experience with the doctors is anything like mine, they will do nothing to make you feel better, but every year or so, they will identify a new organ they would like to remove. Stay away from these doctors! A patient without a gallbladder, pituitary gland, or thyroid is a drug customer "hooked" for life - and worse than any other addiction because quitting will kill you. Removing these organs will not prevent the type of reaction that caused them to be damaged in the first place, it will just force the reaction to move on to a new set of organs. I read an interesting article about fibro. at one of the support websites. Basically, they suggested that the type of doctor you go to and the type of symptoms you stress as most important will have the most effect on the diagnosis. You could come back with Fibro, Chronic Fatigue, TMJ (for the jaw), or Multiple Chemical Sensitivity (MCS). Again, it all depends on which doctor you go to and what you complain about. Most cases of Fibro seem to be related in three nexus points: digestive symptoms, sleep disorder, and body-wide pain. What you have is a malnutrition condition with apparent auto-immune symptoms (joint pain). Anemia, tingling, fatigue, dizziness are all signs your body isn't absorbing the nutrition it needs. B12 and iron treatments are a good way to cover the worst effects of this type of slow starvation until the cause can be found. If they saw fit to remove your gallbladder and appendix, I'm assuming there was probably some amount of damage being done to them by your body's elevated toxicity levels and/or immune response. But was it a cure? Unfortunately not, the underlying issue of malnutrition and auto-immune disfunction remains. Unfortunately again, the only known environmental trigger for an auto-immune disfunction is wheat. Other foods and toxic metals are suspected to be causes of auto-immune disfunction and malabsorption, there simply hasn't been enough study of the issue to prove a conclusive link and put the nail in the coffin of these "no known cause, no known cure" disorders that make doctors rich, and patients miserable..
    Azaral 152 Replies Flag this Response
  • I guess i am confused about , azaral comments about fibro I know that the question revolved around if you had fibro or not but in the 1st comment of Azaral response was that and I quote "I don't believe that calling that pain a certain name helps you any unless that name comes with a cause and a cure".I guess why i am so concerned and confused is because I have MS was Dx in 2005 and I have pain from it all the time but there is no actual facts on why the pain is there and there is no cure at the present time so please i ask that when you refer to something in a way of a response please think twice about how you are responded ty god bless
    Anonymous 42789 Replies Flag this Response
  • In response to the original post, it is impossible for anybody here to tell you that you may have Fibromyalgia. It is very difficult to get a diagnosis and it's usually diagnosed after everything else has been ruled out. It honestly doesn't sound like Fibromyalgia. You mentioned several things that are just not indicative of an FMS diagnosis. I recommend that you keep searching and don't give up. If you suspect FMS, then a rheumatologist would be able to rule it in as an option or rule it out quickly.
    Consultant 5 Replies Flag this Response
  • I was diagnosed in 2000 with Fibro by a Rheumatologist and that was confirmed by a Endocrinologist and a Dermatologist.However, in 2003 I got diagnosed with Hypothyroidism. So my doctor, at the time, believed I had both Fibro and Hypo T. But now my doctor who is an Internist and my new Endocrinologist believe I never had Fibro. They believe, since I have had symptoms for years, that I had Hypo T all along.The problem with getting a proper diagnosis were my TSH tests being under the radar with a slightly higher, but not out of the test range for TSH. I never asked to see my TSH results. Never got copies of them. And for me, that was apparently high. However, the results were considered normal. Everyone's bodies are different. Incidently, new guidelines say anything over middle range is considered suspect. You can check this out at thyroidtoday.com . And more tests besides TSH should be done which I don't believe were ever performed.But now I ask to see them and I question everything which my doctors tell me. The reason is only 3 weeks ago I almost died from being under treated for Hypothyroidism while under the care of a different doctor. :mad: :eek: I would recommend getting two or three opinions before you accept a diagnosis. And ask for a copy of all your tests and medical records.For years, I was simply labeled a hypochondriac and even a malingerer, when I actually had a treatable disease! :mad:
    Anonymous 42789 Replies Flag this Response
  • To those that say it doesn't sound like Fibro, I am sorry but you are wrong. I have it and have for 20 years and almost all of your symptom I too have and the others I talk to that have them. It took talking to others with it and getting a second opinion for me to feel comfident with the diagnosis. Have lots of test ran to rule out other diseases with the same symptoms. A good place to talk to others with it is dailystrength.com. Best of luck. Keep searching.
    Sickofpain 2 Replies
    • September 1, 2007
    • 06:48 PM
    • 0
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  • hifor the past 2 years i have been having symptoms, the first was upper abdominal pain stretching around my back , this was servere enough for docs to unecessarily take out my gallbladder,this was 2 years ago and i still get the pain now , i also get really bad joint pains especially tops of legs , other symptoms include vertigo, pins and needles in hands, severe restless legs,pin ****k sensations, weak arms, clicking jaw, fatigue, anemia, floaters in eyes, and also everywhere seems tender to touch. just poking my arm or leg feels as though ive just been punched full force...ive had bloods done which are always neg, i forgot to mention i also had my appendix out (again for no reason) at the time i had really sore skin as though it had been burnt ..i would like to go to my docs and say this is what i think i have , but afraid of having the idea rejected, (theres alot on the web about docs not believing in fibro) does anyone agree with me that this could be fibro, im getting quite depressed just latley , just so sick of feeling this way..i feel like im falling apart bit by bit , just one symptom after another...thanx for reading... Many of your symptoms are similar to mine, which would lead me to believe you probably have fibromyalgia. (tops of legs, weak arms or tendonitis, clicking jaw, fatigue, everywhere seems tender to touch, really sore skin) I have never been officially diagnosed. Now that i am confident it is what I have, there is no point telling a doc since I don't want drugs for the symptoms. However, your pain seems quite severe at this point, so pain medicine may be a good idea. I am biased to natural rememdies. I find that plenty of omega fatty acids in my diet help a TON, and learning how not to be stressed or how to cope with stress too. Kava Kava root extract is a natural muscle relaxer if you need that, and White Willow Bark for anti-inflammatory (tendonitis). A lot of your symptoms can be blown out of proportion as your stress levels are up. I was so stressed I had no idea I was stressed. I could hardly walk without pain/weakness, and climbing stairs...forget it. And chiropractic may be helpful to you. I go regularly because it has helped over a period of 8 months. I am so much more 'normal' now and I attribute it to an excellent chiropractor who understands the needs of a fibromyalgia patient. Good Luck.
    flowerchild286 6 Replies
    • November 10, 2007
    • 03:52 PM
    • 0
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  • Hi - I think your symptoms sound like Lyme disease, a spiral bacterial infection that inflames nerves and soft tissues and causes symptoms everywhere. I have about half the symptoms you mention. We can get it from a tick bite, other insect bite, and human transmission. One more thing - re the eye floaters, and other eye symptoms that can come with this disease, I've been able to successfully treat my eye symptoms by drinking Ultra mangosteen juice, an anti-inflammaotry juice. If you try it, go slow, and drink a lot of water with it. There are lots of mangosteen juicebrands. I like this one because it has 70 minerals added to it from the Utah seabeds.
    Robin1237 7 Replies
    • February 9, 2008
    • 09:33 PM
    • 0
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