Discussions By Condition: Fibromyalgia

fibromyalgia

Posted In: Fibromyalgia 36 Replies
  • Posted By: Anonymous
  • June 8, 2006
  • 03:03 PM

My husband has it. And now he says he has no power to work. He works a bit maybe 15 mins to half an hour then he is tired. Is this normal?

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36 Replies:

  • I am seeing a specialist for this and I stay drained...Does all his joints hurt...Mine does and Im 36
    Anonymous 42789 Replies Flag this Response
  • I have fibrobmyalgia also and I'm tired 90% of the time and ache all over. My doctor said the best thing to do is exercise but I've had 3 back surgeries and have a lot of residual pain from those too so...I'm quite understanding of the predicament you both are in. I will be 50 in August. :)
    Anonymous 42789 Replies Flag this Response
  • Oops , didn't check my spelling!
    Anonymous 42789 Replies Flag this Response
  • I'm tired ALL THE TIME. I can't sleep for more than a few hours at night, off and on. So of course I can't do anything during the day 90% of the time. I have ups and downs and right now I'm in a really bad slump! I had to retire early from a job I loved! How did you all find doctors who even believe you. I'm going crazy, I just feel like I'm wasting my life away. I have 2 beautiful grandsons and a new grand-baby coming in Sept. and I am so desperate to - AT LEAST- have the energy to baby-sit and play with them now and then. If I can't even do that, my life might as well be over! Can anyone out there help me? :confused: Thanks so muchA Desperate Grand-Mom
    Anonymous 42789 Replies Flag this Response
  • I am seeing a specialist for this and I stay drained...Does all his joints hurt...Mine does and Im 36HOW DID YOU FIND A SPECIALIST??? I can't find a doctor who has any idea what to do with me and I live near a major city with many large hospitials! What can I do to find a good doctor. Thanks for any help you can give me.
    Anonymous 42789 Replies Flag this Response
  • Hi. I'm Anne. I host a free web site that tells the Symptoms and also tells about medical treatment I am on. Tricks and tips, etc. It's helped a lot of people and it's free. www.FibroFix.comHave been dealing successfully with extremely severe FMS for almost 6 years. Glad to answer any questions. That's free, too.Annie
    Anonymous 42789 Replies Flag this Response
  • I was also diagnosed with CFIDS and Fibromyalgia in 1993. It seemed to be the worst in the beginning and gradually improved after 2 years of ***l but then got worse again a few years ago. There are many resources out there on the web but be sure to check www.cfids.org and check the Arthritis Foundation website for info on Fibromyalgia and others like: fibromyalgiasupport.com Many Doctors believe it may be the same disease/syndrome. They also think it may have been caused by an infection such as Mono or Epstein Barr but still nothing definitive. It causes a host of symptoms and like the previous person said as far as exercise you need to pace yourself. They think persons with CFIDS do not have the same amount of oxygen in their muscles to do what we use to so when you over-do it then you suffer by painful relapses and fatigue for days. It is called post-exertional malaise or fatigue. Our muscles don't recover from over activity like normal people. Over activity means the same things you were use to doing in the past. It's important to take frequent breaks, rests between activities. The symptoms are: CFIDS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period and a host more seen at the website's. for CFIDS the good news is some people actually improve and it goes away, for others it is a life time illness. For Fibromyalgia, gentle stretching your muscles everyday is important as your muscles shorten and cramp with tightness. Look for local support group in your area to learn more and find a doctor that others see in your area that is familiar with the treatment of CFIDS and Fibromyalgia, usually a Rheumatologist or Infectious Disease Specialist. Low dose of antidepressants are used to help restore sleep patterns in this illness. Best of Luck.
    Anonymous 42789 Replies
    • August 13, 2006
    • 04:37 AM
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  • Help! I am so confused. Since March I have been feeling horrible. Incredibly foggy-headed, unable to concentrate, some motor coordination issues in my right arm, swollen glands, sinus pain at eyebrows, low grade fevers, night sweats, sore neck and shoulders and extreme fatigue. I have an enlarged thyroid but according to my doctor who took blood tests, I do not need to take medication because my levels are normal. I saw a neurologist who took cat scans and an mri of my head and neck and and "nothing out of the norm." I also saw an ENT who said my sinuses do not look infected or full mucas, despite severe sinus pain at my eyebrows. I have an infected wisdom tooth that showed up on some dental x-rays and though I am not having pain, I am having it pulled tomorrow. Could this be what is causing all of this? I am not sure what else to do or what this is? I feel exhauseted and not sure what is going on. Does anyone have any thoughts?
    Anonymous 42789 Replies
    • August 14, 2006
    • 04:14 PM
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  • How are you doing with your FMS?Anne
    Anonymous 42789 Replies
    • September 17, 2006
    • 04:11 PM
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  • Cheryl - how are you doing with your FMS?Do you know if you are an Overly Acidic Fibro, Overly Alkali Fibro or a Thyroid/Temperature Fibro?Glad to help if you want to try.AnneI have fibrobmyalgia also and I'm tired 90% of the time and ache all over. My doctor said the best thing to do is exercise but I've had 3 back surgeries and have a lot of residual pain from those too so...I'm quite understanding of the predicament you both are in. I will be 50 in August. :)
    Anonymous 42789 Replies
    • September 17, 2006
    • 04:13 PM
    • 0
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  • Do some research on Upper Cervical Chiropractic. Also Brain Stem Subluxation. Help me be normal.
    Anonymous 42789 Replies
    • November 18, 2006
    • 09:45 PM
    • 0
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  • HiHave you heard of a product call Zeolite?It is a Natural Cellular DefenseThe Most Important Supplement You'll Ever Useor Share!Waiora's Natural Cellular Defense has been clinically formulated to help remove heavy metals, toxins and other substances, support a healthy immune system, and balance your body's pH levels.*Please read the testimonial today. Zeolites could possible help you?look at www.zeolitencd.com.au for more information.Below is a testimonial for Fibromyalgia.FIBROMYALGIAPeggy AnnApril 2006I want to thank you for getting me started on the liquid zeolite drops . As you know, I have been such a believer in medication due to being anurse, and I have been leery of taking … "wonder" medications.… Let me tell youthat this was the best decision that I have made….I was diagnosed with fibromyalgia and thought this was going to change my entirelife, and it did. I let this disease run my life instead of me running the disease. I washaving so many problems with my daily living that there were days that I couldhardly make it out of bed, let alone to work. I missed so much work that I was onthe verge of losing my job, so I was literally dragging my body to work … and waslate a lot.I was in constant pain no matter what drugs I took…. I would go to the doctor andsay I was having this or that problem, and their answer was, “Here, take this othermedication.” I was taking 15 different medications a day just to get through aneight-hour day at work.I then would come home, put on my P.J.’s, and not get off the couch. My husbandhad to do all the work around the house, because I hurt too much to doanything…. My hands hurt lifting a glass of water.Your joints are what this disease hits first, and then it moves on to the other bodyparts. Think of the most pain you have ever had, and double that on a daily basis.On a scale of 1-10, with 10 being the worse, getting out of bed was a 10. Aboutnoon, you are down to about a 7, but come bedtime, you are back to a 10. Therewere times that I would just sit there crying because nothing was working. I was sodrugged up that I was worthless to everyone, and here I was making life decisionsfor other people, but I could not take care of myself….Then I started the liquid zeolite drops, and it was a new beginning to life. It onlytook a couple of day before I started to notice changes. I was not in constant pain, the pain level was down to about a 5….Then I started to notice other changes in my life. I could get out of bed and make itto work on time, if not before time. Then my hair started to look lively again. Ithought, WOW, things are changing. I wonder if I could stop some of mymedications.The first to go was the pain medication. I still need Tylenol every once in a while,but I truly think that will change. I have also cut back on my psychotropicmedications. I found that I was not as depressed now that I could function again.I have also begun to cut back on my blood pressure medication…. My blood pressureis better now than it has been in years. I am thinking maybe I can start getting offmore and more meds. I know that I have to do it a little at a time, but I am lookingforward to the time that I will be drug free.I have the energy to be with my husband and take care of the house again. I canconcentrate at work and not worry that I am making bad decisions, because I am nolonger working in a drug-induced fog. Co-workers are noticing the change in me, andyou bet I tell them about cellular zeolite.Liquid zeolite has made a big difference in my life. When I started noticing the bigchanges in me, I started making sure that my husband takes liquid zeolite daily.There has been a change in him as well. I have noticed that he does more aroundthe house, and he is getting more accomplished at work as well.My pain level now is about a 3 in the mornings, and then about noon I do not evennotice pain. I feel so much better that I am really looking forward to our fishing tripin a couple of weeks….I do not know how to thank you for getting me started on cellular zeolite. I amenjoying life again. I think everyone who has fibromyalgia should be on thisproduct….Thank you for my life back.
    Anonymous 42789 Replies
    • November 19, 2006
    • 00:30 AM
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  • Elliebelly,Wisdom teeth can cause all sorts of pain, but I'd really check on a lymphatic condition first.Get to an endocrineologist (deals with all the hormones and glands and stuff). Also, as far as specialists in Fibromyalgia,I don't have a "Fibromyalgia specialist" (if you've found one, send the name my way!!), but I do have a rhumetologist and a pain management doctor (that one was tricky to find, since I'm a minor. Oklahoma Drs. don't like giving pain meds to kids, not even terminally ill ones...BS if you ask me.) If I can help in any other way, just ask, and I'll give my email!Sheena
    ShawneeGirl 37 Replies
    • November 24, 2006
    • 07:17 AM
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  • It is normal to be fatigued and unable to work with FMS - But 15 minutes? I would imagine that perhaps he has Chronic Fatigue Syndrome as well, in which case he may need to see a doctor who specializes and can treat him for that.
    2silverwings 9 Replies
    • November 29, 2006
    • 08:45 PM
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  • HOW DID YOU FIND A SPECIALIST??? I can't find a doctor who has any idea what to do with me and I live near a major city with many large hospitials! What can I do to find a good doctor. Thanks for any help you can give me.yOU NEED TO SEE A RHEUMATOLOGIST THEY ARE THE ONE TO DIAGNOSE THIS CONDITON IN AMERICA AND CANADA
    Anonymous 42789 Replies
    • December 7, 2006
    • 01:53 AM
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  • My fibro came (it seemed) after I had a partial hysterectomy due to a large fibroid tumor (350 gram). Before that I had some pain (more pain after drinking more than one pop a day) in my fingers that felt like the bones were splitting down the middle. My hormones felt out of wack but because I once had "Erythema Nodosum" my doctor was reluctant to give me hormones. I do seem to feel much better when I take them but sometimes I have to watch it because I will have migraines - then I wait a little before I take them again. It does seem to help boost me a little and I feel more like my old self. Sometimes I will take prednisone but don't like the weight gain. Ephedra really helped my fatigue but they took it off the market. Vioxx also helped -took it off also. My doctor recently gave me Lyrica (for neuropathy pain- I'm a borderline diabetic but have had leg injuries (right severed achilles and left tib/fib fraxture with a rod placement). I just purchased a really good mattress (have tried the temperpedic pads-which were ok) and this has helped some of my sleep problems but I still do not sleep solidly. What saved my life last year I went back to college but was looking in the job section and saw a job I had considered once before but didn't pursue. To my amazement I got the job as director of a county animal shelter which I feel lifted me out a depression due to so many previous pain and injury and loss of my dad. My twin brother seems to have some fibro symptoms but not like me. I had gained considerable weight with the injuries but have lost 40 pounds since taking the job because I am so active trying to make it a better place for the many abandoned and unwanted animals that come to our shelter. But I have to take pain med every day. I wish I could just be pain free for a few days a weeks. I can remember how it used to be and how it is now. It is like a switch was turned off one day and I went from a hyper person to a slug laying around. One of my legs still greatly bothers me -every day I am in severe pain. Like most of you doctors (except my family doctor) thought I was depressed (or maybe wanting attention.) They may not say it but you blow you off. My Dr put me on Cymbalta which my twin (who is a RN Nurse Pract.) says is really great with neuropathy and fatigue. After I took it it made me crash then wide awake. He says one of his patients takes it early in the am, goes back to bed, then gets up again in a few hours. I'm going to try this weekend and see if I can tolerate it. I did have one side affect- my vision was extremely blurred. I found out the hard way one night when I had to pick up my kids from a football game. But it may have been made worse by the lyrica. Vit B with C seems to help, I even bought a hot tub (it helps). Most every night I rub my legs to ease the pain and use pain medication daily. I have tried a lot of herbal stuff without much result. I will be 48 in March and love to work in the yard or around the shelter but if I do too much then I pay for it later. I think only drinking water helps a lot- I even put lemon juice in mine to help my digestive system. Not drinking pop seems to help since I have more achiness when drinking carbonated drinks. It also helps reduce the need for prevacid since then I don't have much reflux. Sometimes I feel overwhelmed by work so you might suggest to your husband that he have a fasting glucose (I also feel better if I get fatigued when I take my glucaphage and perk up) to check for diabetes and check his Thyroid. But I try to rotate what I do so that I can have rest periods while I am catching up on paperwork. A chiropractor that I see helps a lot because he actually adjusts me (you can hear and feel it) unlike some who barely touch you and then run the bill up by putting hot packs and tens units on you. It helps but for me ultrasound helps - especially the injured areas.My back is better since the new mattress but my leg (the tib/fib fx) aches/sells every day so I wanted to ask anyone if they have had injuries and the injuried part continues to hurt is it being caused by the fibro or ? Anyone on a certain medicine that helps with fatigue (like the Cymbalta) or even over the counter (OTC) product like Vit. B etc?Terry P
    pernell134 1 Replies
    • December 7, 2006
    • 03:44 AM
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  • I have a very easy job, and everyday there are difficulties for me. If your husband did any kind of physical work, then, God bless him. It's very hard to keep a job with this disease. I am lucky that my bosses understand and give me special treatment, as in no lifting, no sweepin, or mopping. They know if I overdue it, I'll be off work for a week. Hope your hubbys doin good.:)
    Anonymous 42789 Replies
    • December 14, 2006
    • 09:09 PM
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  • I'm having to be on Social Security Disability untill I can get through college and get a job as a band director.I can't exactly do the normal, 5-8 hours on your feet, teenager job. Sheena
    ShawneeGirl 37 Replies
    • December 15, 2006
    • 00:35 AM
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  • Here's the deal about Fibromyalgia...it does make you so tired that you cannot do more than a little bit and then you feel like you ran a marathon. The other side of that coin is embarassment. It is so hard to be young (or old) and have people around you expecting you to get things done when your body just won't cooperate. It eats your soul. I think there is no better salve for this than an understanding partner.
    colkel 2 Replies
    • December 20, 2006
    • 02:00 PM
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  • Here's the deal about Fibromyalgia...it does make you so tired that you cannot do more than a little bit and then you feel like you ran a marathon. The other side of that coin is embarassment. It is so hard to be young (or old) and have people around you expecting you to get things done when your body just won't cooperate. It eats your soul. I think there is no better salve for this than an understanding partner.Amen! My thoughts exactly.:D
    ShawneeGirl 37 Replies
    • December 20, 2006
    • 08:40 PM
    • 0
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