Discussions By Condition: Fibromyalgia

Fibro-my-what?

Posted In: Fibromyalgia 12 Replies
  • Posted By: Anonymous
  • November 17, 2006
  • 08:26 PM

I am a 29 year-old female with several different problems. 2 years ago I was laid off from my job and as a result I began to have tingling fingers on my left hand, swollen lymph nodes around my throat, and bowel problems. A couple of months later I was called back to work, but the symptoms did not disappear. Then exactly 1 year later I was laid off again. This time I developed an itchy, burning rash around my mouth, nose and on my eyelids, sore neck, sore left elbow, depression, stress, headaches, colds nonstop, forgetfullnes, moody, very tired all the time, sore neck, tingling and burning sensations on my upper back, and now before my period I get sore lumpy breast , menstral cramps, and swollen joints (knees & elbows).

I sought the help of an herbalist who told me I had parasites and my body was toxic, my hormones were out of balance, and I was stressed out. He put me on a diet, made me do a whole body cleanse, and gave me several other herbs to help my organs. The rash disappeared, I got back my energy, and I felt much better. I went off of the herbs because they were so expensive. Now my fogginess thinking and moodiness are slowly beginning to come back and joint pain has worsened. Also, on my left fore arm, my skin will hurt when I barely touch it. It is like I have a sunburn. It only last for one day and then disappears and might come back in a month or two. Just yesterday the inside of my elbow hurt when I bent my arm. When I touched it, it felt like a hard knot. Last night it had moved up to my shoulder and I could barely lift my arm over my head. This morning it was gone. I don't have sleeping problems and I'm not tired all the time, I just don't have an interest to do anything fun. I have done a thyroid blood test twice and it was normal. I went to a Gastroenterologist who said that I have IBS and no parasites. Recently my reg doctor said it was from stress. I am now beginning to take Lexapro (for stress and dep). I have an appointment to see an endrocrynologist and a neurologist. This keeps getting more and more expensive, so I don't want to go overboard with the testing if I don't have to. My reg doc is 100% sure that it is not Fibromyalgia. I'm not for sure that it is just stress. I'm sssttresssing out over this. I don't understand why it could not be Fibromyalgia except that I sleep like a baby. If you have ever been diagnosed with Fibromyalgia please respond and tell me if you think I have the beginning stages of it. I am desperate.

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12 Replies:

  • Hi, I am 39 years old and have been diagnosed with Fibromyalgia. I took me over three years to get a diagnosis. One of my doctors first thought I had a herniated disk, he sent me to a neurologist, she told me I had Myofacial pain disorder, which would heal with physical therapy and released me. I changed doctors after being on antidepressants and Lortabs for a while, nothing changed except I was getting addicted to lortabs, I changed doctors and finally got a diagnosis of Fibromyalgia. She put me on more antidepressants and sleeping pills and after around 6 months referred me to a Rheumatologist. I seen him for about a year and still had pain. I feel like I have the flu all of the time, migrains, very shaky muscles, pain in my neck and low back all day and when I lie down it gets even worse. I also have severe depressive disorder and anxiety. I can not concentrate. When someone asks me a question it is like my brain freezes. I have a hard time doing basic math or even trying to remeber how to drive to places in a town I have lived in my entire life.It sounds like you may have the beginning symptoms. My symptoms got worse over time. They did not diagnose me untill I had all of the tender spots on my body.I am now seeing a upper cervical chiropractor. It is the only thing that has eased any of my pain over the past few years. He diagnosed my with a brain stem subluxation. The 1st bone that holds my head got twisted out of alignment when I was young during a fall. He said that it has been crushing my brain stem at restricting my nerves causing all of these symptoms. My recovery is not going to be quick but I have hope for the first time in years. I can feel myself getting better little by little. My neck has been like this for 15 years. Do some research on the internet. Look up brain stem subluxation or upper Cervical chiropractic. My doctor checked my neck the first time for $20 and I pay monthly payments as I can.Hope some of this helps you. Do not give up. You may have to change doctors, try chiropractic, etc.LisaS.C.
    Anonymous 42789 Replies
    • November 18, 2006
    • 09:29 PM
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  • You may have Fibromyalgia, but also check into some sort of lymphatic condition (the painfull breasts and swollen painful lymph glands are a red flag) Also, this knot you speak of, is it very painfull when pressed apon?Do some research about Chronic Myofascial Pain (also known as Myofascial Pain Syndrome, even though it's not a syndrome, it's a neuromuscular condition...lol. N E Ways...).Here's a wonderful site on both Fibromyalgia and CMPhttp://www.sover.net/~devstar/ Hope this helps!Sheena
    ShawneeGirl 37 Replies
    • November 24, 2006
    • 07:01 AM
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  • PS.Learn as much as you can about what you're going through, cause you can't always trust doctors, especially when it comes to Fibromyalgia.Some doctors refuse to acknowledge it's existance, while others slap that label on ANY chronic pain.*sigh*
    ShawneeGirl 37 Replies
    • November 24, 2006
    • 07:04 AM
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  • :) Whoa! you my friend are recieving way too much information @ least in my opinion. Please, do yourself a favor & get in touch with these people. The place is called; dynamic greens.com This will cure what ails you. :)
    hogndog 426 Replies
    • January 15, 2007
    • 04:01 AM
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  • hogndog-several people on here have told you to keep your comments to what you know. Did you ever have fibromyalgia? What conditions do you actually have. Peolpe on here are giving good advice not sending them to your wheatgrass and your dynamic green site. You have really made some intrusive and ignorant comment to people and they have told you so. Are you here to promote your products your religion or what? I think we want to know exactly what conditions you do have casue you seem to be on somany with your same old unwanted advice. I think you are becoming a real disruptive person on these boards and i have seen alot of people really getting irritated with you including myself.
    nccarol28732 44 Replies
    • January 15, 2007
    • 11:48 AM
    • 0
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  • :( This has been addressed, in a letter of apology i hav just finished. You will see it on this site.:o
    hogndog 426 Replies
    • January 15, 2007
    • 00:04 PM
    • 0
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  • First thing to let you know, some doctors do not deal with Fibro, they think it is all in your head or something to blame for everything. I suggest that you tell your doctor that it is time that you do go for the tests for fibro and that you want to see a good rheumatologist. I know this all sounds as if you are being mean and too forward with your doctor but as I say " I have known my body for 31 years, you haven't." I also tell my doctor that I am the one feeling what I feel. I have been formally diagnosed with fibro but in Canada it's not easy to get help with it. There are lots of groups and whatnot but it is not really recognized by the government or work force so if you can't work, like me so far, everyone looks at you like you are a **m. Sorry, a bit of venting for me I guess. Remember the biggest thing, your doctor works for you not the other way around. He/she needs to think about your best interests and that is finding the best diagnosis possible. MS also mimics fibro, along with other CNS (central nervous system) disorders. I would tell him that. If he sends you to a rheumatologist and it's not fibro then your doc can be happy and move onto the next test. At least he/she should think about exclusions. Good luck, and remember to do something nice for yourself every day.
    Anonymous 42789 Replies
    • January 29, 2007
    • 04:02 AM
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  • :) as the previous poster said, i should keep my thoughts to myself. that i will do so please reffer to the advice of some professionals. http://micronutra.com/index.html and then enjoy the rest of your day, thank you.;)
    hogndog 426 Replies
    • January 29, 2007
    • 05:59 AM
    • 0
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  • hogndog-several people on here have told you to keep your comments to what you know. Did you ever have fibromyalgia? What conditions do you actually have. Peolpe on here are giving good advice not sending them to your wheatgrass and your dynamic green site. You have really made some intrusive and ignorant comment to people and they have told you so. Are you here to promote your products your religion or what? I think we want to know exactly what conditions you do have casue you seem to be on somany with your same old unwanted advice. I think you are becoming a real disruptive person on these boards and i have seen alot of people really getting irritated with you including myself.I think you are a Troll
    Anonymous 42789 Replies
    • January 29, 2007
    • 06:16 AM
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  • I would be concerned about ruling out things that it could be besides Fibromyalgia. You mention swollen lymph nodes and rashes, these could be signs of other serious disorders including Lupus. Please be checked out for these other serious diseases that can be deadly. Fibromyalgia wont kill you fortunately, but ask anyone who has it and they will tell you they often may wish they were dead. I have Fibromyalgia, misdiagnosed for 7 years and diagnosed for 10 years now. I still have concerns that it might be something else. Doctors either deny that Fibro exists at all or they often over diagnose Fibro, lumping anything involving fatigue and muscle pain that they cant figure out into this diagnosis. I would want to be sure I had a good diagnosis based on tests to rule out other things. Good luck!
    stardust11 4 Replies
    • January 31, 2007
    • 05:17 AM
    • 0
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  • well i have pain in the back of my head right next to my stem and down my neck and i talked to an herblist and he said that it was the begining symptoms of arthritis and to eat gelleten cause it contains the same stuff that cartalige is made form he said that if it diddnt work in 6 weeks it wasnt what he said then to diagnose it but i am in college majoring in psychology so i know that if you are under alot of stress that your body can come up with some weird stuff all you have to do is get a grip on reality and tell your brain to stop the pain thats is what i do i had some bad stressful stuff happen to me and your body gets into a habit that its hard to break try reasoning with yourself and telling your body that you are alright life is to short to worry so much
    Anonymous 42789 Replies Flag this Response
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  • I'm 30 yrs old and have had fibromyalgia and chronic fatigue syndrome for 12 years. I feel the reason your doctor ruled out fibromyalgia is because you said you sleep like a baby. One factor that has been identified as a possible source of chronic pain is that people with fibro do not get enough deep sleep (a cycle when most of the bodies healing and restoration takes place). Sleep disorders are widely associated with fibromyalgia whether or not that theory is true. I've had sleep problems since before I noticed my other symptoms. Stress can certainly make symptoms worse or trigger a relapse. You mentioned that you were scheduled to see a neurologist. I'm hoping that he/she has some answers for you. It could still be fibro, and you may not be aware of sleep problems that could exist. If the neurologist doesn't have answers for you, I also suggest you seek a knowledgeable rhuematologist.
    Anonymous 42789 Replies
    • October 15, 2007
    • 07:23 PM
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