Discussions By Condition: Fertility conditions

primary amenorrhea

Posted In: Fertility conditions 13 Replies
  • Posted By: hopeful225
  • May 12, 2008
  • 02:21 AM

hi i am 29 years old and I have never had a period. As the years go by I get more and more worried that I will not be able to have children at all. The doctors just prescribe me birth control pills but no one seems to have a definite answer to my child bearing questions. basically my hormone levels are low and I have a small uterus. I have had MRI's done and they come back normal. I have gone through puberty i have secondary female characteristics and yet doctors can not answer my one question......Is there hope for me to have kids of my own. If anyone out there has gone through this, has the same problem or at least knows of something I can try please help .

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13 Replies:

  • I realize that at this point I may already be a lost cause but is there anyone out there that have had this diagnosis, or am i one of the rarel unlucky ones
    hopeful225 3 Replies Flag this Response
  • Have you had a progesterone challenge? Basically they pump you ful of specific hormones to force you to bleed/menstruate. Have you had hormone levels checked?Your next step is to go to see an endocrinologist and/or fertility specialist. I am surprised that your obgyn isn't being more aggressive about this. Primary amenorrhea can be a sign of other issues.What is your weight? If you are underweight or have other medical issues that could be a cause. Get yourself to a specialist today.good luck
    Anonymous 42789 Replies Flag this Response
  • I realize that at this point I may already be a lost cause but is there anyone out there that have had this diagnosis, or am i one of the rarel unlucky onesWow...You're not alone. Oh my goodness. I am going through the same thing. I am 27, and in EXACTLY the same situation. We must talk...I have been researching, and seeing specialists for years.
    Anonymous 42789 Replies Flag this Response
  • Do you have a history of an eating disorder? What about extreme exercise/sports? Any bleeding whatsoever, like spotting? DOM
    acuann 3080 Replies Flag this Response
  • I do not have an eating disorder, My weight has been consistant. I have gotten my hormone levels checked and basically they are low. I have secondary female characteristics (normal breast size, pubic hair etc.) I have taken birth control pills and with them I have menstruated but I was taken off of them because they weren't "true periods". I have been researching this for years and I am at my wits end its as if the doctors don't know what to do so they keep referring me to other people who in turn refer me to others. I haven't done the progesterone challenge thanks for the suggestion I will ask about that.
    hopeful225 3 Replies Flag this Response
  • Wow...You're not alone. Oh my goodness. I am going through the same thing. I am 27, and in EXACTLY the same situation. We must talk...I have been researching, and seeing specialists for years.please contact me at hopeful225@excite.com
    hopeful225 3 Replies Flag this Response
  • I am assuming that by now you have had a karyotype--a mapping of your chromosomes to assure they are as they should be. This is a must in primary amenorrhea that persists into the late teens.
    Anonymous 42789 Replies
    • August 23, 2008
    • 06:07 AM
    • 0
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  • Primary amenorrhea would usually warrant a karyotype-a mapping of your chromosomes to determine that they are as they should be when no period has appeared by the late teens, even with secondary sex characteristics.
    Anonymous 42789 Replies
    • August 23, 2008
    • 06:16 AM
    • 0
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  • To answer your question about having children, do your hormone levels (specifically is your LH double your FSH?) indicate PCOS, polycystic ovarian syndrome? If so, metformin (if you can handle 1500-2000mg a day), progesterone to force a period and Clomid to force ovulation if you don't ovulate on your own (use an ovulation detector after using progesterone monthly to force a period), can give you a chance to possibly conceive. Some doctors will add in dexamethasone daily. Certainly worth investigating.
    Anonymous 42789 Replies
    • September 28, 2008
    • 10:49 PM
    • 0
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  • how can u tell if u ovulate if you dont get a period?
    Anonymous 42789 Replies
    • November 2, 2008
    • 03:25 PM
    • 0
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  • Hi magic girl, The primary amenorrhea is caused by gluten intolerance and kidney qi deficiency. You should folow gluten free eating plan for life and take appropriate Chinese herbs to get your period. Eating according to your metabolic type would help a lot.You can contact me on skype for an assessment. My skype name is drbulatov. Love, peace and joy, Dr B
    Anonymous 42789 Replies
    • November 23, 2008
    • 01:26 PM
    • 0
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  • Hi Dr B, I read you recent post about Primary Amenorrhea and have a couple of questions.... I have never had a normal period. I had to be induced when I wa 17 by the pill. Since I've had bad acne, weight gain. I went on roaccutane and got rid of the acne. Still bit more weight on, I was fine on the pill. I then came off it for about a year - still no periods whatesoever, so decided to go back on. I put on more weight! I went travelling for a bit, came off the pill because of being down with the weight - lost it all in travelling and came back slim but still no period. Then, I became constipated all the time and my hair has been thinning since. I've had loads of blood tests and thyroid, diabetes are all fine. I produce very litle/no oestrogen, and have a high level of DHEA testosterone. I am now on yasmin as it has an anti androgen, but My hair is still thinning and I can only go to the loo whilst taking acidophillus everyday! I feel generally tired and not as happy as I used to be. I am slim and have stayed slim since, but I don't know what to do about my hair. Will taking soy - plant oestrogen - help it? Also, a gluten free diet like you said in your post? Will it lower my testosterone level? I still think I have too little oestrogen on the pill.... no concrete answers and would really appreciate some advice. :(
    Steph2008 2 Replies
    • November 24, 2008
    • 10:16 AM
    • 0
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  • May I ask if you ever found any reason for this? My daughter is 21 and has primary amennorhia. They diagnose it as PCOS but I'm far from convinced.
    Anonymous 1 Replies
    • November 12, 2014
    • 04:38 AM
    • 0
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