Discussions By Condition: Eye conditions

worm flashes not caused by RP

Posted In: Eye conditions 2 Replies
  • Posted By: Anonymous
  • December 28, 2006
  • 07:46 AM

I've been diagnosed with Retinitis Pigmentosa, which is genetic, the cells of my retinas are slowly dying off. But I've been having what I call worm flashes, which look like curved large white worms that seem to grow from different locations in the visual field Two or three worms may apear and move across my visual field, then disapear. This occurs in both eyes, so I've been told that it is not in my eyes but in the brain. When I wake up in the morning it will start and usually continues throughout the day, lasting only a couple of seconds.The evening time is the worse, or when I have a headache then they appear often. If I sneeze I see many appear l Two retinal doctors and 2 opthamologist say to see a neurologist and I did, but he does not know what is causing this type of flash. I have done an MRI and have been told it is normal. In the past I have seen zigzag flashes that end in a headache, but these worm flashes have been going on for a year now and they're different.

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2 Replies:

  • I have the same thing, and I know what your talking about,have you heard any news about any treatment or research for RPit is so hard to find anything on the net, with all the technoilogy we havewe still can't fix our issues.
    Anonymous 42789 Replies Flag this Response
  • the zig zags were probably migraines.the new symptoms may be Charles Bonnet syndrome.
    Anonymous 42789 Replies Flag this Response
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