Discussions By Condition: Eye conditions

recurrent episodes of red eyes

Posted In: Eye conditions 6 Replies
  • Posted By: Barbarajesus
  • January 13, 2011
  • 10:10 PM

I've been having a red eye since March 2010. I went to several ophthalmologists that gave me corticoid in eye drops and it really works...The problem is when I stop using the eye drops and I get the red eye again. I've been to internal medecine doctors and done several blood tests, colonoscopy, lungs XRays but I feel they are in the dark, they don't know what the problem is...Is there any other exams I can do that might help diagnosing my red eye problem?
Any suggestions will be appreciated :-)

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6 Replies:

  • I've been having a red eye since March 2010. I went to several ophthalmologists that gave me corticoid in eye drops and it really works...The problem is when I stop using the eye drops and I get the red eye again. I've been to internal medecine doctors and done several blood tests, colonoscopy, lungs XRays but I feel they are in the dark, they don't know what the problem is...Is there any other exams I can do that might help diagnosing my red eye problem?Any suggestions will be appreciated :-)So have you not been diagnosed at all?Is it scleritis? Steroid eye drops need to be sloooowly reduced otherwise it can flare up again almost straight away.
    Anonymous 42789 Replies
    • January 15, 2011
    • 10:23 PM
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  • I've been having a red eye since March 2010. I went to several ophthalmologists that gave me corticoid in eye drops and it really works...The problem is when I stop using the eye drops and I get the red eye again. I've been to internal medecine doctors and done several blood tests, colonoscopy, lungs XRays but I feel they are in the dark, they don't know what the problem is...Is there any other exams I can do that might help diagnosing my red eye problem?Any suggestions will be appreciated :-) Are your eyes sore, difficult to focus, do you have headaches with it, do anti-inflammatories also help?Do you have joint pain or any other inflammatory markers?Do you stop the steroids suddenly or do you taper them off
    scottbombedout 1 Replies
    • January 15, 2011
    • 10:35 PM
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  • Dear BarbaraFor over 3 years I suffered from immense pain in my eyes and visited 5 opthamologists before correct diagnosis was made.I had been diagnosed with severe red eye, given steroids, eye drops and numerous other things to put in my eyes but nothing helped. The pain was terrible and resulted in light sensitivity that restricted my movement. I had to lock myself in dark rooms.Barbara, have you noticed that your ailment occurs in one eye at a time?This is one of the symptoms of the disease that I was finally diagnosed with.It is called Thygesons and is quite rare. Not many people are diagnosed with it and it is self limiting. It created 100's of ulcerated divets over my corneas. The pain ...... I cannot describe, like many paper cuts over my eyes. To wash my hair in the shower was soooo painful as the water ran over my eyes.I now wear eye bandages (contact lenses night and day) and use Polygel to keep my eyes moist. Acular assists me when I have a flareup and the disease only hits one eye at a time
    Anonymous 42789 Replies
    • January 16, 2011
    • 02:10 AM
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  • Are your eyes sore, difficult to focus, do you have headaches with it, do anti-inflammatories also help?Do you have joint pain or any other inflammatory markers?Do you stop the steroids suddenly or do you taper them off Hi, Thanks for answering my message. Well, I don't have sore eyes nor difficulty to focus but sometimes I have headaches / migraines. I wasn't prescribed anti-inflammatories yet... I have joint pain, especially in my hands (fingers and joints). Some doctors told me to take steroids for 2/3 weeks (eye drops) and taper them off, others told me to stop suddenly after 5 days/ 4 times a day. I have already been to 8 different doctors and they tell me to go to internal medecine or rheumatology. I'm having a rheumatology appointment tomorrow and taking all the exams with me. I've got the red eye again one week after stopping my eye drops... I feel dry eye, I feel unconfortable, people ask me all the time what happened to me, and they don't want to look me in the eyes...Doctors say I can't keep using corticosteroids because of eye tension, which was higher last time I went to the ophthalmologist, and when I stop, the red eye comes again...I don't know if this answers your questions,Thanks again for your attention
    Barbarajesus 2 Replies
    • January 24, 2011
    • 07:55 PM
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  • Dear BarbaraFor over 3 years I suffered from immense pain in my eyes and visited 5 opthamologists before correct diagnosis was made.I had been diagnosed with severe red eye, given steroids, eye drops and numerous other things to put in my eyes but nothing helped. The pain was terrible and resulted in light sensitivity that restricted my movement. I had to lock myself in dark rooms.Barbara, have you noticed that your ailment occurs in one eye at a time? This is one of the symptoms of the disease that I was finally diagnosed with. It is called Thygesons and is quite rare. Not many people are diagnosed with it and it is self limiting. It created 100's of ulcerated divets over my corneas. The pain ...... I cannot describe, like many paper cuts over my eyes. To wash my hair in the shower was soooo painful as the water ran over my eyes. I now wear eye bandages (contact lenses night and day) and use Polygel to keep my eyes moist. Acular assists me when I have a flareup and the disease only hits one eye at a time Dear friend, I'm sorry to know you've been having such a bad time. I don't know what I have, but I've been in this situation for a long time, and not knowing what it is and what can be done about it, really makes me feel stressed. I started looking for information in the net, and didn't know what to think...I've got only one red eye and it is always the right eye. I've been looking for information about ocular immunology doctors because they say the problem I have is something immune that reflects in my eye, but most doctors are in Brazil and the USA (Mersi in Massachusetts, for example)...I haven't heard about the disease you mentioned, but I hope they can control it and that you may go in remission.Wish you all the best and hope you get better soon.Ps- I'm having a rheumatology appointment tomorrow and I'll give you some news... Ps2 - I've seen this article about your disease now - http://www.medhelp.org/posts/Eye-Care/Thygesons-disease-and-being-able-to-wear-contact-lenses-on-a-permanent-bases-and-having-LASIK-laser-surgery/show/593972I don't know if you have read it already
    Barbarajesus 2 Replies
    • January 24, 2011
    • 08:09 PM
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  • Dear BarbaraYou say you only have this dry red eye in the right eye. This is a directly unique sympton of Thygesons. It only affects one eye (but in my case it is not always the same one). They do not know what causes Thygesons but they do believe it to be immune related. Your opthamologist can photograph the front of your cornea to establish whether it is Thygesons that you have. It creates little white divets from the ulcerations over the cornea.Good luck I would be interested in what your rheumatologist has to say
    Anonymous 42789 Replies
    • January 24, 2011
    • 09:37 PM
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