Hello to whom it may concern,
I am a desperate mom trying to get answers, in December of 2009 I got a call from home while I was at work saying my daughter was ill. I thought nothing of it until I came home to see her lying in bed. She had a severe headache coupled with vomited, trying not to sneeze but when she finally did, there was a big Sneeze with sudden visual loss. She felt it was due to the pressure of a stuffy nose and sneezing so she didn't mention it, but she felt pressure on her eyes when she did it.
January 1, 2010 she told me she couldn't see well so I took her to the emergency room right away, I was told that her keytone levels were low and make sure she eats and drink plenty of water. We went home and she began to have problems with her eyes it continued to worsen. I took her to ER again, they told me again she is ok, and everything was basically normal. After several more times of the same answers, her eyes worsened so I took her to a different Hospital ER, they did an MRI immediately finding a brain tumor in her pituitary gland.
After many months of waiting approval for different specialists, they put her on Bromocriptine 2x per day and the tumor is now gone, Thank God for the Specialists! and Doctors and Nurses! However she is left with both outer eye vision completely blackened, just as if there was never any vision there before, Opthomologists testing comes back with 20/20 vision in both eyes, but I wondered how ? Her visual field testing she passes but in real life when she gets home, she has to turn her head half way around to make sure the shower door is closed, because of her eyes she has thought it was closed before showering, she leaves messy counters because she can't see certain parts thinking she's wiped it clean, I'm concerned because she is having physical problems stemming from the vision loss and can't get rehabilitation help because she needs a Diagnosis, Prognosis and a Limitation.
Knowing she has lost her outer eye sight as a parent I am afraid to allow her to drive, I am afraid to have her walking alone across the streets thinking she could miss a car while she is turning to the left or right. The tests say she has no visual loss but she has vision loss, she tells me things she can see and things she can't see, how can she get the help she needs with no diagnosis? or What other steps should I take at this point as a mother? Please Help Me!