Hi All, I have had RSD for 17 years, I got RSD before the medical community knew what it was, it left me on "Fire" all the time and pretty swollen, all the doctors have tried local blocks and various drugs but nothing works, they tell me it's too late and the best I can hope for is to keep the pain down.
My eyesight started going bad when the RSD started many years ago, now I am almost blind due to massive blind spots, after being checked by a top notch eye doctor he tells me I have Optic Atrophy and that my nerves are 55% that of normal size, theres nothing that can be done. He told me it shouldn't get worse however I heard this years ago about the eyes when I had the semi-bad optic atrophy condition misdiagnosed by a different eye surgeon.
Now I'm pretty scared that I am going to go comepletely blind, I also want to get my vision back, training has been offered to try and use the good spots in each eye and get some vision using them, while it's definitely on the plate of things to do, I wanna know if theres something else (cost no object).
I have a clean MRI of the Plitutitary gland and the Brain if it matters, they did a type of scan of the optic nerves and thats when all the trouble was found.
As far as RSD, 8 doctors have told me Im hopelessly ruined, they tell me my brain has grown a special center to make the pain go at a faster rate as my sympathetic nerves are eaten and then regenerated, so it's RSD level 3 (visible to the eye with a pain level of 48 on Mcgill scale).
At least prior to the optic problems it was only horrible pain, now its horrible pain with minimal sight, Im still in shock, anyone have any ideas??
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