Discussions By Condition: Eye conditions

Need help.. info on optic nerve repair

Posted In: Eye conditions 3 Replies
  • Posted By: Anonymous
  • May 12, 2009
  • 02:16 PM

Hi. I have a son who is now 22 years old and blind. He became blind due to a cyst on his brain from a tumor that was on his brain when he was 11 years old. He is completely blind in one eye and legally blind in another. The doctors said at the time if any vision was to come back it would have been within six months, it is now over 10 years later and nothing has changed. I have been doing some searching on the internet for a doctor that he could go see. I am looking for a doctor that could possibly help with the repair of his optic nerve. In 2005 I found some information on regeneration of the optic nerve through Schepens Eye Research Institute. I emailed them then and received no response. I have emailed them again. I know there is something out there that can help him see again, I just don't know where to find the resources for him. He is a young and healthy man and is soon graduating from college. He would like his eye sight back and his life back. Any help would be very much appreciated.
Thanks.

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  • Hi. I have a son who is now 22 years old and blind. He became blind due to a cyst on his brain from a tumor that was on his brain when he was 11 years old. He is completely blind in one eye and legally blind in another. The doctors said at the time if any vision was to come back it would have been within six months, it is now over 10 years later and nothing has changed. I have been doing some searching on the internet for a doctor that he could go see. I am looking for a doctor that could possibly help with the repair of his optic nerve. In 2005 I found some information on regeneration of the optic nerve through Schepens Eye Research Institute. I emailed them then and received no response. I have emailed them again. I know there is something out there that can help him see again, I just don't know where to find the resources for him. He is a young and healthy man and is soon graduating from college. He would like his eye sight back and his life back. Any help would be very much appreciated. Thanks.Hi there . I am a mother in Canada . . my son is a 14 year old boy who has had a very large brain tumor called craineofreangeoma . . he has had 2 surgeries and is now almost finished his 6 weeks of radiation treatment . . he is an otherwise healthy happy child . .who has now become blind due to the pressure the tumor has put on his optic nerves . is there anything you can do or suggest I can do to help him have even some kind of vision again ? I am due for my baby in 22 days a as well .. will banking her cord blood be of use to my son ? PLEASE I don't care the funds I will do anything to help even a bit of sight come back to my son . .thank you very much
    Anonymous 42789 Replies
    • October 12, 2009
    • 06:51 PM
    • 0
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  • Hi there . I am a mother in Canada . . my son is a 14 year old boy who has had a very large brain tumor called craineofreangeoma . . he has had 2 surgeries and is now almost finished his 6 weeks of radiation treatment . . he is an otherwise healthy happy child . .who has now become blind due to the pressure the tumor has put on his optic nerves . is there anything you can do or suggest I can do to help him have even some kind of vision again ? I am due for my baby in 22 days a as well .. will banking her cord blood be of use to my son ? PLEASE I don't care the funds I will do anything to help even a bit of sight come back to my son . .thank you very muchHas anyone had any luck finding a doctor with a cure or solution for optic nerve damage?Thank You
    Anonymous 42789 Replies
    • February 2, 2010
    • 08:56 PM
    • 0
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  • I have had Glaucoma in one eye for the last 20 years (birth defect of the eye). As of right now there is no way to repair the optic nerves. The optic nerves are part of the central nervous system. Once those nerves are damaged it's perminent, unlike nerves of the periferal nervous system. There has been reserach in recent years (as was mentionted here) about repairing the nerves, but it is still years off. Here's why: When there is an injury to the body the body signals that it's time for repair. But nerves in the central nervous system have a protein in them that prevents repair. It's thought that is to prevent accidental re-wiring to the wrong place. Durring the research the scientists found that a particular set of molucules injected were able to disable these proteins, and when they caused damage to the eye as part of the experiments, it did cause the nerves to grow back, but not near fully enough to work. So it's a step in the right direction, but at this time there is way too much that they don't know. The other problem is that you cannot work on the optic nerves directly in surgrey. There is no physically possible way to reach them behind the eyes with the eyes in place, but you can't attach them with the eye out of place - they won't reach. So a whole catch 22 there. The colucule therapy that is being researched is the best answer at this point, but we aren't quite there yet.
    tpaairman 5 Replies
    • September 7, 2010
    • 04:53 PM
    • 0
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