My husband was diagnosed with stage 3 melanoma, meaning it had spread to the lymph nodes (sentinel nodes tested positive). He had surgery to move additional lymph nodes and was advised treatment would be advisable given the high risk of the melanoma spreading. Since the cancer center at our hospital doesn't specialize in treating this type of cancer, we sought out experts at two melanoma centers who reviewed the pathology reports and all of my husbands slides to see what treatment he would qualify for and give us their opinion. They said he was misdiagnosed and not stage 3, but stage 1. He needed no further treatment and did not need the second surgery he underwent, the MRI's, CT scans and oodles of blood work. While we're relieved his melanoma isn't as severe as first thought, we're quite upset at the months of anxiety we went through having been told a good percentage of people don't live over 5 years with stage 3 melanoma, the unnecessary conversations we went through with our children explaining he would have to start treatment for cancer (they'd lost their grandfather to cancer a few years earlier) and the fact that he underwent a second, needless surgery that leaves him with the risk of lymphedema, nerve damage and limited range of motion.
We want to know how this could happen, there has been no explanation from anyone at the hospital. Does anyone else have experience with this kind of misdiagnosis?