Discussions By Condition: Eye conditions

ICE Syndrome

Posted In: Eye conditions 137 Replies
  • Posted By: Anonymous
  • October 12, 2006
  • 10:10 PM

I have just been diagnosed with ICE syndrome, for 3 years I have been constantly going to a special Eye Hospital as diagnosed with glaucoma (left eye only), after 8 mths I told them I was getting patches of blurred vision like a curtain being pulled infront of my eye. They changed my drops frequently,and had know idea what was causing problem. And felt glaucoma had probably been caused by a accident over 25 yrs ago. Vision progressivley got worse headaches started, pain in eye. Now over 3 years later finally have a diagnosis because ended up in Emergency Dept of local hospital with dizzyiness along with other symptons. Finally a young doctor examined me told me right away he didnt feel this could have anything to do with accident that many yrs prior. So he started to look for other cause and came up with ICE. Several head doctors since in last 10 days and we have an offical diagnosis. My question is if this had been found 3 yrs ago could they potentially have treated and saved my eye sight at the level it was at then?

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  • Thanks also for sharing this info. My husband is the one with ICE in left eye now for about 5 years. We go to a cornea specialist. Hoping a transplant is in the very near future as the pain, swelling, headaches are getting unbearable. But am very concerned if transplant doesn't take...then what? Thanks again. Well we are now four weeks from the transplant. Surgery went very well had a cataract removed and then the transplant. The pain disappeared immediately. Pressure has been holding pretty well. Day of surgery 25 then day one down to 20...Two weeks after still holding at 20. No significant improvement in vision in that eye. We are still hopeful but the eye was in pretty bad shape. Glaucoma, cataract and ICE....still praying but no pain is wonderful. Have to be so careful now. Can't lift much of anything doctor just wants the eye protected as much as possible. Swelling is going down as well. Glaucoma drops have started to cause a little shortness of breath so now am on two different ones. Steriod (Pred Forte) four times a day. Ointment (bacitracin) at night. Followup in another two weeks....Happy with outcome so far.
    mlphillippe 3 Replies Flag this Response
  • Well we are now four weeks from the transplant. Surgery went very well had a cataract removed and then the transplant. The pain disappeared immediately. Pressure has been holding pretty well. Day of surgery 25 then day one down to 20...Two weeks after still holding at 20. No significant improvement in vision in that eye. We are still hopeful but the eye was in pretty bad shape. Glaucoma, cataract and ICE....still praying but no pain is wonderful. Have to be so careful now. Can't lift much of anything doctor just wants the eye protected as much as possible. Swelling is going down as well. Glaucoma drops have started to cause a little shortness of breath so now am on two different ones. Steriod (Pred Forte) four times a day. Ointment (bacitracin) at night. Followup in another two weeks....Happy with outcome so far.Just got new drops last week,CARTEABAK. Dont ask me what, but these work thank the lord! Went from IOP 36 to 15! For how long I dont know but they saved me a trip to the O.R. again..............I had Pred Forte after the shunt implant, had a hard time with the side effects, of all of the drops Trusopt/Azopt/Xalacom all crap!:mad: If you push the tearduct shut after you put the drops in and wait a minute, it helps with the side effects!;)
    madkay 4 Replies Flag this Response
  • Well we are now four weeks from the transplant. Surgery went very well had a cataract removed and then the transplant. The pain disappeared immediately. Pressure has been holding pretty well. Day of surgery 25 then day one down to 20...Two weeks after still holding at 20. No significant improvement in vision in that eye. We are still hopeful but the eye was in pretty bad shape. Glaucoma, cataract and ICE....still praying but no pain is wonderful. Have to be so careful now. Can't lift much of anything doctor just wants the eye protected as much as possible. Swelling is going down as well. Glaucoma drops have started to cause a little shortness of breath so now am on two different ones. Steriod (Pred Forte) four times a day. Ointment (bacitracin) at night. Followup in another two weeks....Happy with outcome so far. Well we are now three months from a cornea transplant. things were going fine but dr feels that the pressure which has been around 20 is not being controlled by the drops 3 different ones. Anyone out there ever have a tube shunt after the transplant. Don't want to mess with the transplant.
    mlphillippe 3 Replies Flag this Response
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