Discussions By Condition: Eye conditions

Cornea Edema or something else?

Posted In: Eye conditions 24 Replies
  • Posted By: Anonymous
  • July 14, 2006
  • 04:59 AM

My regular eye Dr. says I have corneal edema, which means that when I wake up after sleeping, my cornea is swelled from edema and when my eyelid opens it scratches the cornea which is very painful. He says normally the edema leaves the cornea immediately after you wake up, but mine does not. I have been seeing this Dr. for over a year for this painful condition. We have tried eye drops that have not helped. For the past 8 months we have been using bandaid contact lenses which keep the cornea from being scratched, but I am having the pain now before I open my lid. And also this is starting in the other eye. I am also having sharp stabing feeling in both eyes from time to time.
Is there anyone out there that have experienced these symptoms and found an answer. Does my Dr. know what he is talking about? I have recently read about Fuch's disease. I do have the bouts with blurred vision and it makes me wonder if there is more to my condition that my Dr. even knows.
Any takes on this? Please let me hear from you. Thanks!

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24 Replies:

  • I tried "MURO 128" as suggested by one of the techs at Duke Eye Center when I told them I did not want surgery. It does help with the eyes. My eyes still sometimes feel like they are tearing off a scab when I open them in the mornings. I only use the Muro 128 when I feel it starting with the soreness and irritation. I am not good at these boards and I may not be able to get back here to see what is written. but I have printed the info and will check into the Fuch's Disease. I just figured it was something I would have to live with. When I looked into it I thought it might be a vitamin A deficiency(even though it does not happen often). You have to be careful with Vit A, it is not good to have to much.Good LuckDonna, North Carolina, NC
    Anonymous 42789 Replies
    • November 30, 2006
    • 03:30 PM
    • 0
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  • Your condition sounds very much like Fuch's (early morning pain, hazy vision, edema) or, at a minimum, some other form of cornea dystrophy. If you're not already seeing a cornea specialist you need to be. Specifically, I'm referring to an Ophthalmologist (an MD) - particularly one who specializes in corneas. Your insurance company or a web search engine should help you locate one in your area.Good luck.
    Anonymous 42789 Replies
    • December 14, 2006
    • 02:22 AM
    • 0
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  • I have the very same symptoms, it took months to find the answer. My Doctor the third opthamologist i had seen, finally diagnosed Map Dot Fingerprint Dystrophy. I had been treated for Herpes for months.I am using Muro 128, cream before bed, i wake up frequently at night, becuase i can feel the cornea inflaming, and i just use regular artifical tears, then in the monring more Muro 128 drops, which burn. This treatment is helping.Get a second, third, fourth opinion if you have to. The doctor, should be able to see small fingerprint like marks on your cornea, inlcuding dots that look like the map of a continent. Your doctor, must use a silt lamp, with the blue light to see it.I hope that helps. Good luck. It is an extremley painful condition. The MURO 128 should be available without a prescription.Take care,Caroline
    Anonymous 42789 Replies
    • February 20, 2007
    • 03:12 AM
    • 0
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  • As Caroline notes, the most likely cause of your symptoms is recurrent corneal erosion syndrome. This condition occurs exactly as you describe and is associated commonly with Map-Dot-Fingerprint corneal dystrophy (also known as Epithelial Basement Membrane Dystrophy, Cogan's Dystrophy, Anterior Basement Membrane Dystrophy and others). Unfortunately the findings can be very subtle.The treatment is first with lubricants (especially an ointment at bedtime - Muro 128 is good and Genteal gel is as well). Bandage contact lenses can be helpful, but really at this point it sounds that your best bet is a superficial keratectomy or phototherapeutic keratectomy. Both have about a 90% chance of providing you long-term relief.Fuchs dystrophy or other causes of endothelial failure can cause bullae (blisters) to form on the surface and cause similar symptoms, but this generally happens at its most advanced forms and is fairly obvious. If that is occurring, the above procedures can work but the person is headed towards a cornea transplant.
    Anonymous 42789 Replies Flag this Response
  • I had extreme pain and completely distorted vision in one eye, at first when it started I went to a optometrist who gave me Muro and vigamox which didnt help me but later I went to an opthamologist who gave me FML, it took long but completely got rid of the symptom and I was fine. Now I am having the same situation again went to another doc and she said the same thing that my eyelid messes up my cornea which is indeed painful and almost no vision in the eye. She has given me somethin stronger then FML for inflamation and she said its gettin infected so i got an antibiotic too. I didnt put that bandaid contact in, I cant wear contact cause of dry eye. Also at night put refresh PM which is off the counter to keep the eyelid from messing up the cornea. This is tough I hope we all get better from this ailment. take care
    Anonymous 42789 Replies
    • August 30, 2007
    • 03:23 PM
    • 0
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  • I had poked myself in the eye with the brush part of my curling iron about 5 years ago. My dr. at the time put a contact on eye to heal the injury done. But I was still waking up with pain in eye occasionally and light is too bright and I can't see without sunglasses on etc. My new dr. says it is corneal erosion and prescribed Muro 128 which really burns at first. Does this really get better or not? When I can't face the light and the pain is hurting in the eye it kind of feels like if you had something in the eye like an eyelash etc. but there never is anything in the eye. Anyone else having this same problem?
    kcer22 1 Replies Flag this Response
  • I have the same problem. Mine is also beginning in the other eye. The drops my eye doctor gave didn't work, but then we tried Bausch & Lomb's Muro 128 5% ointment. I use it before I go to bed at night and it works like a charm!
    Anonymous 42789 Replies Flag this Response
  • It is good to hear what you all have to say. I was beginning to feel very alone with all of this. I, too, have problems with my left eye on awakening in the morning. It is now starting in my right eye. Two years ago my Optometrist said he thought it was Epithelial Basement Cell Dystrophy. I had an appointment with an Ophthalmologist who said that he did not see any abrasions and sort of made me feel dismissed. I have used the Muro 128 since seeing my Optometrist the first time, but sometimes my eye still bothers me even when I have put it in the night before. And as the other post mentioned, I too sometimes feel it before I even open my eye. I will find another doctor if necessary. It can be very uncomfortable to deal with. So far, the Muro 128 works the best for me. The other ointments just don't do as well. I wish you all the best in dealing with this.
    Anonymous 42789 Replies Flag this Response
  • It is good to hear what you all have to say. I was beginning to feel very alone with all of this. I, too, have problems with my left eye on awakening in the morning. It is now starting in my right eye. Two years ago my Optometrist said he thought it was Epithelial Basement Cell Dystrophy. I had an appointment with an Ophthalmologist who said that he did not see any abrasions and sort of made me feel dismissed. I have used the Muro 128 since seeing my Optometrist the first time, but sometimes my eye still bothers me even when I have put it in the night before. And as the other post mentioned, I too sometimes feel it before I even open my eye. I will find another doctor if necessary. It can be very uncomfortable to deal with. So far, the Muro 128 works the best for me. The other ointments just don't do as well. I wish you all the best in dealing with this.My symptoms which certainly sound like coreal edema, started soon after laser surgery but only seems to affect my right eye; it gets stuck shut while sleeping. The Bousch & Lomb Muro 128 5% ointment use prior to sleep is about the only thing I have found that works. There are also drops for day time use (they do sting a bit). Something new I found on line and will investigate is Bausch & Lomb Soothe XP Emollient (lubricant) eye drops. I will give this a try to see if it helps at all. They also have a night time lubricant eye ointment called advanced eye relief night time but do not know if it would work any better than Muro. Muro is expensive; best price I have found is at Costco pharmacy; box of two for a little more than cost of one tube on the outside. If it is corneal edema then the question to answer is what is the underlying cause?
    Anonymous 42789 Replies
    • December 9, 2008
    • 05:30 AM
    • 0
    Flag this Response
  • My regular eye Dr. says I have corneal edema, which means that when I wake up after sleeping, my cornea is swelled from edema and when my eyelid opens it scratches the cornea which is very painful. He says normally the edema leaves the cornea immediately after you wake up, but mine does not. I have been seeing this Dr. for over a year for this painful condition. We have tried eye drops that have not helped. For the past 8 months we have been using bandaid contact lenses which keep the cornea from being scratched, but I am having the pain now before I open my lid. And also this is starting in the other eye. I am also having sharp stabing feeling in both eyes from time to time.Is there anyone out there that have experienced these symptoms and found an answer. Does my Dr. know what he is talking about? I have recently read about Fuch's disease. I do have the bouts with blurred vision and it makes me wonder if there is more to my condition that my Dr. even knows.Any takes on this? Please let me hear from you. Thanks! Debee I have a similar condition to one eye after laser surgery correction. I used Muro 128 5% sodium chloride hypertonicity ointment to prevent eye from sticking shut during sleep. I was able to wean off the ointment by using the same Muro 128 5% product but in the form of drops and smaller amounts of the ointment and now to the point of using just the 128 5% solution instead of the ointment. The solution really stings for a minute but you can get used to it. It draws the water causing the edema out of the cornea. Use it a 15 -20 minutes before sleep (again, if you use the ointment you can wean yourself off the ointment by first using a combination of the solution and the the ointment just before sleep, using a little less ointment as time progresses. Hope things work out for you. FGM
    Anonymous 42789 Replies
    • February 4, 2009
    • 03:13 AM
    • 0
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  • I had the same symptoms that you described. Eye pain, blurred vision, light sensitivity. The episodes would come and go. My fourth ophthalmologist finally diagnosed me with Map Dot Corneal Dystrophy. I am using FML and Muro 128 and Refresh PM.The eye doc also recommended using a hot compress on my eyes 5 minutes a day in the morning when I awake and in the evening before bed (and any other time my eyes are feeling uncomfortable). The hot compress (wash cloth in hot water) seems to help. It is easy and free. Use it before your bedtime eye ointments.
    spunkae 2 Replies Flag this Response
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  • Several months ago I was experiencing the same symtoms that have been listed previously; sharp pain, severe light sensitivity, trouble focusing, constantly pouring tears. My eye doctor said it was corneal edema caused by overwear and improper fitting contacts. So I wore glasses for three weeks, changed my prescription and brand of contacts, and used muro 128. Eventually it went away but today I woke up with the same problem only this time it's much more severe. I couldn't even go to work today because of the excrutiating pain. It's so bad that I had to take Vicoden to dull the pain. I've been using the muro drops all day but they don't seem to be working. Has anyone else had this bad of an attack before and if so what helped? I'm tired of sitting in the dark, using drops, soaking up tears and waiting for relief......
    Anonymous 42789 Replies
    • September 30, 2009
    • 02:29 AM
    • 0
    Flag this Response
  • Several months ago I was experiencing the same symtoms that have been listed previously; sharp pain, severe light sensitivity, trouble focusing, constantly pouring tears. My eye doctor said it was corneal edema caused by overwear and improper fitting contacts. So I wore glasses for three weeks, changed my prescription and brand of contacts, and used muro 128. Eventually it went away but today I woke up with the same problem only this time it's much more severe. I couldn't even go to work today because of the excrutiating pain. It's so bad that I had to take Vicoden to dull the pain. I've been using the muro drops all day but they don't seem to be working. Has anyone else had this bad of an attack before and if so what helped? I'm tired of sitting in the dark, using drops, soaking up tears and waiting for relief...... You may also have dry eye (insufficient tearing). Your eye doc can easily test for it. If my eye becomes too dry the lid may stick to a tiny weak spot on the cornea. Then I move my eye and cause painful damage to the cornea. My eye doc prescribed Restasis drops twice a day to promote increase tear production - but it can take months to work. The Muro 128 is only a lubricant. It wont help after you have pain. I use the Muro before bed and then I wake up every night @ 3am and put more in. Even with all that I still occasionally have a small bit of pain and blurring but it is managable. If your pain is so bad that you cant see to drive, your may have a significant corneal abrasion. Your eye doc can insert a bandage contact lense so that abrasion can heal (and not be disturbed by blinking). I know from experience, the days were bad but the nights were ***l
    spunkae 2 Replies
    • October 2, 2009
    • 07:10 AM
    • 0
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  • Hello, my name is Lee (female) and I have fuchs corneal dystrophy....or at least I had Fuchs.....I have had one Full thickness corneal Transpland....and one DSAEK....which is the newer procedure and heals very quickly. My vision is awesome. The symptoms of Fuchs is...foggy vision in the morning and then gradually clearing up during the day. When the Fuchs becomes worse...the vision can be foggy most of the day. The street lights and car headlights are very distorted....car lights look link big spikes around the lights. The street lights have huge halos.....like cotton balls..... If you are worried about Fuchs......I belong to the Fuchs Corneal Dystrophy Foundation....message board Fuchsfriends.....Also there is a sister group attached to ours....that takes care of any corneal problem you may have....The group is called Corneal Dystrophy....you can contact this group by this link. signe@maximous.info ......At Fuchs friends.....just type the name on the google or yahoo search engine....and you will find the link. The name is Fuchsfriends..........not fuchssupport, I would not have had so much information had I not joined Fuchs Friends in 2001....Many people there have had the newer corneal transplant called DSAEK......shorter healing time...no stitches...no astigmatism....etc......I had my DSAEK two weeks ago...and I can already see so clearly. I hope this helps youYou will not be sorry that you Joined Fuchs Friends and Signe's group..Signe's group is more for other diseases of the corneal and many there have had a corneal transplant with great success... Stay wellKeep a song in your heartLee Your condition sounds very much like Fuch's (early morning pain, hazy vision, edema) or, at a minimum, some other form of cornea dystrophy. If you're not already seeing a cornea specialist you need to be. Specifically, I'm referring to an Ophthalmologist (an MD) - particularly one who specializes in corneas. Your insurance company or a web search engine should help you locate one in your area. Good luck.
    divalee 2 Replies
    • December 5, 2009
    • 11:10 PM
    • 0
    Flag this Response
  • Hello, my name is Lee (female) and I have fuchs corneal dystrophy....or at least I had Fuchs.....I have had one Full thickness corneal Transpland....and one DSAEK....which is the newer procedure and heals very quickly. My vision is awesome. The symptoms of Fuchs is...foggy vision in the morning and then gradually clearing up during the day. When the Fuchs becomes worse...the vision can be foggy most of the day. The street lights and car headlights are very distorted....car lights look link big spikes around the lights. The street lights have huge halos.....like cotton balls..... If you are worried about Fuchs......I belong to the Fuchs Corneal Dystrophy Foundation....message board Fuchsfriends.....Also there is a sister group attached to ours....that takes care of any corneal problem you may have....The group is called Corneal Dystrophy....you can contact this group by this link. signe@maximous.info ......At Fuchs friends.....just type the name on the google or yahoo search engine....and you will find the link. The name is Fuchsfriends..........not fuchssupport, I would not have had so much information had I not joined Fuchs Friends in 2001....Many people there have had the newer corneal transplant called DSAEK......shorter healing time...no stitches...no astigmatism....etc......I had my DSAEK two weeks ago...and I can already see so clearly. I hope this helps youYou will not be sorry that you Joined Fuchs Friends and Signe's group..Signe's group is more for other diseases of the corneal and many there have had a corneal transplant with great success... Stay wellKeep a song in your heartLee Your condition sounds very much like Fuch's (early morning pain, hazy vision, edema) or, at a minimum, some other form of cornea dystrophy. If you're not already seeing a cornea specialist you need to be. Specifically, I'm referring to an Ophthalmologist (an MD) - particularly one who specializes in corneas. Your insurance company or a web search engine should help you locate one in your area. Good luck.
    divalee 2 Replies
    • December 5, 2009
    • 11:16 PM
    • 0
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  • I found this sight by doing a search on Muro 128. It seems to help the best of anything I've tried. I have corneal erosion too. It started in 2001. The first Ophthalmologist I went to called it nocturnal erosion. He gave me a prescription which I used when it really hurt...some kind of a steroid. In 2006 I moved to a different part of the country and had another bad episode with a lot of pain. My doctor filled my prescription and I also put a patch on my eye. Big, big mistake. The pain became intolerable and I went to an Ophthalmologist I found in the phone book. My corneal erosion had developed into a corneal ulcer. He did surgery right away and said if I had waited one more day I would have lost my sight. This man saved my eye.The patch I put on incubated the problem. It's been a few years and I can't remember the cause. I think he said it was bacterial and could be found in soil, dirt, etc. The reason I'm writing is that this isn't anything to take too lightly. If the pain become too intense, you should go to an Ophthalmologist. Be careful with patches, etc. Drinking alcohol seems to make the symptoms worse. Wish I had an easy resolution to this problem, but I don't think there is one outside of using some of the drops you can find in a drug store. Believe me in 9 years I have tried them all. The Muro seems to work as well as anything but I have trouble finding it at CVS. Supposedly vitamin C helps somewhat, but there isn't any scientific proof. All I know is that I feel deeply for each of you that experiences this. The pain is like nothing I have ever felt before. I often get to work late because I wake with pain and light sensitivity. I need to lay in bed for an hour or so before it is tolerable to wake and drive to work.Hang in there,J
    jdidj5 1 Replies Flag this Response
  • I too have recently been diagnosed with Recurrent Corneal Erosion Syndrome or Corneal Edema. I injured my eye on an old crib mattress approx. 2 years ago and had to wear a patch for 24 hours. I went back to the Doctor the next day and he said it was all healed. It was great for a little while and then started with the pain at nighttime and I too can feel it before I even open my eye. I have been using the Murano drops and ointment for a month now. I am not sure if it is working yet but there is hope. I never knew so many people had the same problem. Good luck to all of you.
    Anonymous 42789 Replies Flag this Response
  • I recently was diagnosed with map dot fingerprint dystrophy, and was wearing a bandaid contact for a week. the doctor has taken out the contact, and prescribed muro 128 four times a day. with the contact out, i am feeling all the symptoms of dry eye, and cannot figure out whether it is because of the muro, or because the contact lens has been removed. does anyone know whether muro can cause dry eye to get worse?Lucy in CT
    Anonymous 42789 Replies Flag this Response
  • Several months ago I was experiencing the same symtoms that have been listed previously; sharp pain, severe light sensitivity, trouble focusing, constantly pouring tears. My eye doctor said it was corneal edema caused by overwear and improper fitting contacts. So I wore glasses for three weeks, changed my prescription and brand of contacts, and used muro 128. Eventually it went away but today I woke up with the same problem only this time it's much more severe. I couldn't even go to work today because of the excrutiating pain. It's so bad that I had to take Vicoden to dull the pain. I've been using the muro drops all day but they don't seem to be working. Has anyone else had this bad of an attack before and if so what helped? I'm tired of sitting in the dark, using drops, soaking up tears and waiting for relief......I have the same thing. Happened once 4 years ago - started on Muro 128 5% ointment at bed and worked till now. Every morning my left eye is freaky - sometimes just feels hot, and about 3 times a week rips the cornea. One time it was so bad it took 5 days of sitting with eyes closed to heal. The doc put a pressure bandage on for the last 48 hours and that did the trick, but I have to get up after 3 hours of sleeping and put more stuff in, and then it might still happen in the morning. What I do when I feel it coming on during the night, is sit up in bed and try sleeping that way. It never tears when I am sitting up, only when lying down. Usually worse when lying on Right side - it is my right eye. I guess the thing to do would be find out why there is inflammation in the body!
    Anonymous 42789 Replies
    • October 23, 2010
    • 04:25 PM
    • 0
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  • I had poked myself in the eye with the brush part of my curling iron about 5 years ago. My dr. at the time put a contact on eye to heal the injury done. But I was still waking up with pain in eye occasionally and light is too bright and I can't see without sunglasses on etc. My new dr. says it is corneal erosion and prescribed Muro 128 which really burns at first. Does this really get better or not? When I can't face the light and the pain is hurting in the eye it kind of feels like if you had something in the eye like an eyelash etc. but there never is anything in the eye. Anyone else having this same problem?I had similar symptoms and my eye doctor (optometrist) suggested corneal erosion and that I use drops, but that it could take a better part of a year to get significantly better. At the time only GenTeal PM ointment at night and drops in the morning helped. I never tried Muro 128. He was right it took many months to get better and now I generally use Refresh Liquigel Extra Strength as maintenance.
    Anonymous 42789 Replies
    • February 28, 2011
    • 02:30 AM
    • 0
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