For a few months my 17 yr old daughter has been battling what seems to be some sort of inflammatory bowel disorder that causes her to have to use bathroom immediately after eating (sometimes before she even finishes the meal). we tried lots of dietary adjustments but to no avail.
Now just about 2 weeks ago she presented with swollen lymph nodes behind the jaw, ear pain, blurry vision and headache. went we to our family DR who treated for conjunctivitis and sinusitis with antibiotics drops for eyes and augmentin orally, though she didn't have signs or other indicators of either diagnosis.
The next day we discovered it was caused by the onset of Bell's Palsy on the right side of her face. Just one week later after adding an anti-viral (Acylovir) to her regiment, the Bell's is already almost gone.
However she still has EXTREME BLURRED VISION. We went to a ophthalmologist and he ran several tests then insisted she go immediately to get an MRI. We promptly hit the pediatric ER (only way they would take us and provide MRI on the same day). The MRI came back inconclusive as to a reason for her blurred vision and swelling of the optic nerve and other areas of the eye, so they did a lumbar puncture which also came back with perfect spinal fluid pressure and nothing abnormal in the fluid testing. They sent us home (12 hours later) and said to seek out a neurologist. But in the meantime the ophthalmologist who sent us for the MRI went to the hospital to see her (on his day off no less, WOW) assuming she had been admitted, looked into the inconclusive test results and took it upon himself to get her an appointment with a retina specialist, which we did today and after spending 4+ hours there and undergoing every retina involved eye test known to man...we once again left without any answers. Her vision is so BAD she cannot read the large E at the TOP of the eye chart. He is now referring us to a rheumatologist before we see a neurologist.
So... all we have been successful with is meeting the $5000. deductible on her dads insurance and are almost no better off then before we started!!! All we know is what she DOES NOT have. I am so lost with this if ANYONE out there has had any mystery illness close to this PLEASE let me know!
****ALSO, she has also had a stool lab, urinalysis, and blood work ups 2x. Which have shown nothing more then some sort of IBD and a bacteria present in stool sample (bacillus cereus) which they say is not the cause for the long term bowel issues as it is usually associated a food born illness, commonly known as fried rice syndrome and usually last no more than 24 hrs.