Discussions By Condition: Endometrial conditions

When is enough, enough?

Posted In: Endometrial conditions 5 Replies
  • Posted By: Anonymous
  • July 9, 2006
  • 11:43 PM

I am about to have my fourth D&C for endometrial hyperplasia. My symptoms are spotting for 4 days prior to my period starting and low back pain. I do not have heavy periods, or long periods or spotting between periods. I was diagnosed through internal sonograms. I am sick of these D&C's. What alternative is there except hormone therapy? I am 42 and done with child bearing seeing my baby just turned 13 yrs. old. Any help, advise or discussion would be appreciated. :o

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  • I just found out I have the same thing as you. I'v decided to take the 6 months progesterone treatment to try and clear it out. Let me tell you if It doesn't take care of it I will ask for a hysterectomy.I will not let them do what they want with me. I want my uterus out now OB/GYN says to wait too young. My family is done. Anyway good luck to you
    Anonymous 42789 Replies
    • December 5, 2006
    • 00:49 PM
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  • We women want our pain to stop and are desparate and therefore try all sorts of "treatments" and "therapies" because our doctors recommend them, only to be dissapointed and often in worse condition than previously. I think doctors just offer these "remedies" in order to give us an option when there are no cures...to shut us up and give us hope (false hope). Occassionally some things do have a positive effect (for some) to some degree for an undetermined amount of time and when we hear of it we want to try it too, but to our dismay they have no effect. I have tried everything, exhausted ALL options and ALL have failed. Some even worsenning the problem, like Lupron (Fortunately the effects wear off. I never went back for the second shot) and a hysterectomy. A hysterectomy stopped my periods and therefore I no longer have disabling cramps for 5 days every month.....BUT.... I traded that in for menopause (and the effects it causes and have to take HRT, calcium, etc.) AND hernias. It sucks to go through a surgery (and additional pain) in hopes that it will improve the condition, only to be dissappointed. (Hysterectomies, laparoscopies and hernia surgeries are painful.)A HYSTERECTOMY DID NOT DO ANY GOOD FOR ME. Nor has it helped a large percentage of other women who have tried it and they sure wish they NEVER did it. That's great you already have a family (I do not), but for your sake look into it further, Check other forums and you'll see there are many MANY women that will say they wish they never did it.I understand (all too well) that you want something, anything that will make endo go away or improve...You are desparate. But just because you want it to go away does not mean that it CAN. Just do some research. I have gone under the knife too many times due to my desparation to make the severe pain go away. I have suffered for many years now and the life I once had now seems like a hazy dream.For 2 years following my hysterectomy I had sharp stabbing pains deep in my pelvic area. Several doctors later, one of them discovered the hysterectomy caused HYERNIAS and I had to go under the knife AGAIN.IT WASN'T WORTH IT!-I wish you and all others who suffer will find an end in sight very soon!
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:00 AM
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  • Sosillyb-Is the discomfort and spotting with your period worth all of those procedures? I have read some about endometriosis, and it seems like most women have saught treatment because they wanted to conceive or they were not able to deal with the symptoms. If the spotting and cramping is not making you miserable, you can refuse the D&C and just treat your symptoms. It is your choice, you don't have to let them do whatever they want to you.My sister suffered mennoragia (sp is prob wrong), not Endo, and since she no longer wanted children she had a procedure done that removed the endometrium. Could this be something good for you to look into? The name was (something) ablation- someone else may be able to give the whole name, lol. It helped her a lot.
    pumibel 42 Replies
    • February 11, 2007
    • 04:07 PM
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  • What we have to understand is that what works for one MAY or MAY NOT have the same effect on us. Same thing goes for the after effects of a procedure. I am 40 yrs. old with 4 kids. After my 2nd child, I was told that I couldn't have anymore children because of fibroid tumors. Since then, I've had two more. And although the pain and discomfort of having them thru C-section was unspeakable, they are here and healthy (despite me being told I would never carry another child full term). For ten years, I've gone through different treatments because I didn't want to go through the pain of having a hysterectomy. Well, here I am 10 years later, and I've made the decision that a few days of pain (from having a hysterectomy) beats the discomfort, and sometimes embarassment, of heavy menstual flows, cramping, bloating, fatigue, constant pain to the lower back, abdomen and legs, etc. I've heard women talk about how having the surgery affected them. Some spoke of bad experiences, but most are glad they made the decision to do it. But honestly, it's not good to go into it thinking negative thoughts, so I will pray and hope that after all is said and done, that I'm one of the ones with a good story to tell.
    Anonymous 42789 Replies
    • December 8, 2007
    • 08:21 PM
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  • Sosillyb-Is the discomfort and spotting with your period worth all of those procedures? I have read some about endometriosis, and it seems like most women have saught treatment because they wanted to conceive or they were not able to deal with the symptoms. If the spotting and cramping is not making you miserable, you can refuse the D&C and just treat your symptoms. It is your choice, you don't have to let them do whatever they want to you.My sister suffered mennoragia (sp is prob wrong), not Endo, and since she no longer wanted children she had a procedure done that removed the endometrium. Could this be something good for you to look into? The name was (something) ablation- someone else may be able to give the whole name, lol. It helped her a lot.Hi there:I suffered from Mennoragia for 3 years .... very heavy periods, couldn't even leave the house for 5 days, just thought it was something I had to go through! Then finally went to OB/GYN and he did Endometrial Ablation which is a reduction of the uterin lining (mine had become very thick) and removal of the fibroids. This procedure takes 20 minutes and makes your periods stop completely, or make them very very light, and no PMS symptoms either! This now takes the place of Hysterectomy if the ovaries and everything else is ok ... which mine were fine.The OB/GYN's love this procedure ... it has a 1 in 10,000 rate of something going wrong - compared to 1 in 1,000 with hysterectomy.Obviously, hyst is still very, very necessary for some women, and in cases of cancer etc., but this is a great option for others. I'm soooo glad I had it done and wish I had looked into it sooner!
    Anonymous 42789 Replies
    • February 2, 2008
    • 09:22 PM
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