Discussions By Condition: Endometrial conditions

help PLEASE!!!!!!

Posted In: Endometrial conditions 8 Replies
  • Posted By: Anonymous
  • May 2, 2007
  • 11:25 PM

I am 29 years old and have had PAINful periods since I was 14 (crouched over in pain, staying home from school). YEARS of misdiagnosis led me to a fertility dr. at the age of 22 who performed laproscopic surgery and said I had severe endometriosis. I was then put on birth control which 'helped' the symptoms. Well, I stopped the b.c pills 3 months ago. The first month of ceasing the pills, ALL the pain returned ...heavy bleeding, long periods, swollen abdomen, bleeding feces, etc. Well, 5 days ago when having sex w/ my fiance, I was curled over in pain following sex for a good 2 hours. Since then my abdomen has been very swollen (friends asked if I was pregnant...nope, took a test) and VERY painful pelvic pain. The pelvic pain greatens severly when I have to deficate (sorry). My symptoms are:
-frequent urination (not painful)
-painful sex w/ deep penetration
-swollen abdomen
-constant fatigue (not sure if related)
-depression (not sure if related)
-bleeding during feces during periods
-long painful periods w/ lots of bleeding
So, I went to a new gyn. today since I moved towns, and he said I have a bladder infection and he does not recommend another laproscopic surgery. I want to have children and i want the pain to decrease. Anyone with similar problems or suggestions, PLEASE HELP!!!! Thanks :)

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8 Replies:

  • Did you come off the pills to try to get pregnant? If so, you may want to find yet another OBGYN, someone who specializes in fertility and/or endometriosis. It doesn't sound like you got great advice from the last one. If you are actively trying to get pregnant, sometimes it helps to have another lap to ensure that all the endo is cleaned out. I tried to get pregnant for a year before finally deciding to have a lap done. The month after the endometriosis was lasered, I was pregnant. I realize it's not that easy for most people. Trying to get pregnant with endometriosis can be a very painful process.
    Consultant 5 Replies Flag this Response
  • thank you. Was this your first or second lap that you got done. The dr. said 2 laps is not safe. He compared it to 'cancer' and said if you have cancer the tumor can be removed but come back and if you have surgery it will come back b/c they can't get it all, but if I take lupron, its like chemo for cancer patients and it will permanently go away. Not sure what to think of this????
    Anonymous 42789 Replies Flag this Response
  • Sweetie, I'm begging you to find a new doctor. Please see someone who specializes in Endometriosis. I don't know what area you live in, but there are some well known physicians in this area who have established superior reputations for their treatment of Endo. I have had 7 laps in the past 10 years. I got pregnant after the first one. A few of them were done by doctors who didn't specialize so the endo returned immediately after. It wasn't removed propertly. However, my last surgery was 7 years ago, and it's been completely controlled since. Everything depends on the technique your doctor uses to remove the endometriosis, and there are different methods. Some techniques give you a better chance at going a longer period of time without symptoms. Others just remove the surface endo but leave plenty there to grow.
    Consultant 5 Replies Flag this Response
  • Sweetie, I'm begging you to find a new doctor. Please see someone who specializes in Endometriosis. I don't know what area you live in, but there are some well known physicians in many areas who have established superior reputations for their treatment of Endo. I have had 7 laps in the past 10 years. I got pregnant after the first one. A few of them were done by doctors who didn't specialize so the endo returned immediately after. It wasn't removed properly. However, my last surgery was 7 years ago, and it's been completely controlled since. Everything depends on the technique your doctor uses to remove the endometriosis, and there are different methods. Some techniques give you a better chance at going a longer period of time without symptoms. Others just remove the surface endo but leave plenty there to grow. I advise strongly against Lupron, especially if you want to get pregnant in the next few years. It will really mess your body up. Please, do your research on this drug before considering it. It puts your body into a false menopause state. You WILL experience hot flashes, memory loss, and other very troubling symptoms. And when you stop taking the injection, your body won't just suddenly return to normal. It can take 2 years or more. And your doctor comparing Lupron to chemo in a cancer patient scares me.... I'm sorry but he sounds like a complete quack if he's pushing the drug like that. They are NOTHING similar and Lupron does NOT cure your endo. It temporarily supresses it, but it will return when you stop treatment. Please find a new doctor. I have helped women with endo for many, many years; I used to run an internet support group, and I've worked with hundreds of women over the years. I have to say..... your doctor's advice is probably the scariest that I've seen yet. Find you a good doctor who knows what he's talking about and is willing to perform a lap the right way..... Try to research different techniques for removing endo over the internet. I can't emphasize enough how important it is for you to learn all you can before you make any big decisions. And if you haven't read it yet, get a copy of the book The Endometriosis Source Book.
    Consultant 5 Replies Flag this Response
  • Thank you so much for your response. I actually plan on going to a fertility specilist who has knowledge in this area. I appreciate all your insight. And if anyone else has been through similiar, let me know! I hear so many different stories on this endo!!!
    Anonymous 42789 Replies Flag this Response
  • Sweetie, I'm begging you to find a new doctor. Please see someone who specializes in Endometriosis. I don't know what area you live in, but there are some well known physicians in many areas who have established superior reputations for their treatment of Endo. I have had 7 laps in the past 10 years. I got pregnant after the first one. A few of them were done by doctors who didn't specialize so the endo returned immediately after. It wasn't removed properly. However, my last surgery was 7 years ago, and it's been completely controlled since. Everything depends on the technique your doctor uses to remove the endometriosis, and there are different methods. Some techniques give you a better chance at going a longer period of time without symptoms. Others just remove the surface endo but leave plenty there to grow. I advise strongly against Lupron, especially if you want to get pregnant in the next few years. It will really mess your body up. Please, do your research on this drug before considering it. It puts your body into a false menopause state. You WILL experience hot flashes, memory loss, and other very troubling symptoms. And when you stop taking the injection, your body won't just suddenly return to normal. It can take 2 years or more. And your doctor comparing Lupron to chemo in a cancer patient scares me.... I'm sorry but he sounds like a complete quack if he's pushing the drug like that. They are NOTHING similar and Lupron does NOT cure your endo. It temporarily supresses it, but it will return when you stop treatment. Please find a new doctor. I have helped women with endo for many, many years; I used to run an internet support group, and I've worked with hundreds of women over the years. I have to say..... your doctor's advice is probably the scariest that I've seen yet. Find you a good doctor who knows what he's talking about and is willing to perform a lap the right way..... Try to research different techniques for removing endo over the internet. I can't emphasize enough how important it is for you to learn all you can before you make any big decisions. And if you haven't read it yet, get a copy of the book The Endometriosis Source Book.I am very interested in your opinion as to what type of specialist you saw, how you found them, and the various surgical techniques. My 19 year old daughter has been suffering with severe pelvic "stabbing" pain since the onset of her period at 12 years old. After having been diagnosed with endo, she underwent laparoscopic surgery (CO2 laser removal). After only 1 1/2 years following surgery, the severe pelvic pain started to return just as severe but not lasting as long over the summer. Now she has started the bleeding between periods with the severe pain becoming more frequent and longer lasting. She missed so many day, actually months of middle and high school,even going on home instruction eventually. Now that she is in college, she is very worried about what to do for the pain. Narcotics put her to sleep and antiinflammatories need to be taken prior to the start of the bleeding and throughout to be effective. That never worked since she was having the severe pain at least 3 weeks of every month. Any suggestions that you can give would be greatly appreciated. Again if you could let me know the type of specialist you saw, how you found them, and the various surgical techniques ( as well as the one that worked for you), it would really help! Thanks so much!
    Anonymous 42789 Replies
    • October 13, 2010
    • 09:21 AM
    • 0
    Flag this Response
  • I saw an oncologist to take care of my endo. Normally, this is not necessary but my endo had wrapped around many organs including my bladder and kidneys. Therefore, he was the only doctor that would touch it. If you have problems finding a doctor to do the surgery, then you might want to try an oncologist who specializes in the pelvic area.
    YvetteM 20 Replies
    • October 15, 2010
    • 08:00 PM
    • 0
    Flag this Response
  • I used an ar code to get all tms and hms. I just really wanted the tms. but anyways, in olivine city, this guy says u need to get surf to come here. so i go back to the city before eutetrick or something like that, and since i already have it, when the guy offers it to me, the bag is already full and i cant get surf. I need to know a way to delete my hms. PLEASE HELP
    HEEBROGUE 5 Replies Flag this Response
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