I'm 30 years old and have an "odd" set of symptoms. About 3 years ago I had an MRI because of extreme headaches and dizziness. My doc said that my pituitary was slightly enlarged and that it should be checked periodically, but nothing was done at that time. I've had headaches off and on (different from the migraines I've always suffered from) and about a year ago went to the doctor for them again. Because of some breast milk leaking I had been having for over a year (never thought much about it though) and my telling her about the slightly enlarged pituitary, she wanted to recheck it. So another MRI was done and again, nothing unusual. Bloodwork was also done at that point but apparently nothing was found because nothing was ever done. Fast forward to about 3 weeks ago. I was having sex with my husband and had the most awful pain in the back of my head. Had a headache and stiff neck for 2 days before I called my primary doc who told me to go to the ER. They did a CT scan and spinal tap, searching for blood, thinking there was a possible aneurism that had ruptured. Thank God that wasn't found but the ER doc referred me to a neurologist. She sent me for another MRI as well as an MRA to recheck the pituitary gland. So far I don't have the results of that back yet. I find that out on Monday.
But here's where I'm very confused. Almost everything that is going on with me can be traced back to something hormonal. That I know for sure. What I don't understand is why some of the symptoms are contradictory. They're as follows:
*Irregular periods - sometimes frequent and heavy, sometimes very infrequent and nothing more than spotting.
*Intermittent breast milk production (small amount most of the time)
*Breast tenderness that's very extreme
*Weight gain of about 10-12 lbs all in the mid section. I look about 5 months pregnant when I relax my tummy (and I'm normally a very tiny person) but I attributed it to recently quitting smoking. Not sure though.
*Starting to notice extreme hair growth in some places - tummy ("happy trail" area), inner thighs, chin, upper lip, and sides of face (not super dark but a few long, dark hairs and thickening of the lighter hairs to the point of being noticable), lower back, butt cheeks, the back of my upper arms, toes, and I even have 2 dark hairs growing on my chest. All of the hair seems to grow back really fast after plucking or shaving too.
*Recently I've begun to lose the hair on my head in gobs. Every time I wash it, brush it, or run my fingers through it I have a ton of it tangled in my fingers. A lot more than the "normal" hair that I know we shed from day to day. Thank goodness I have very thick hair! lol
*I've always had a round face with chubby cheeks but for some reason my face just looks fat right now. I have no clue if this means anything or not but it's a definite change in my appearance.
*I'm so tired all the time, yet I can't sleep.
*Rash/blotchy skin on the sides of my face & neck. (dunno if this is related to anything either)
*I went through a period where I had no sex drive, now it's through the roof.
*And of course the headaches.
That's all I can think of at the moment. Most of it seems to be definitely hormone related. But some of it really seems contradictory to me. Sometimes I seem to be producing too much estrogen and sometimes it seems more testosterone related. I'm very confused. I'm so afraid that the neurologist will tell me that the size of my pit is still within the high side of normal ranges and send me on my way. This is a set of symptoms that has been worsening over the years and now it's quite embarassing sometimes. I've been with my husband for 11 years but the hair growth makes me feel so shy around him because I know how noticable it is. I'm the type of person who rarely goes to a doctor unless it's something extremely painful or an illness that won't go away. But I also know when something is seriously wrong with my body. I don't understand how I could have such an odd set of symptoms and have doctors do one set of bloodwork, see things that are borderline high or low, and never recheck it. I don't understand how my pit can be "slightly enlarged" yet it not be cause for concern with the other symptoms. I've been told it could possibly be a pit tumor (prolactinoma because of the breast milk production but that doesn't explain the hair growth or hair loss), or possibly something with my adrenal gland but that has never been checked that I can recall. I'm confused, scared, and sick of feeling this way.
Thank you in advance for any help or insight on this. I would really love any suggestions on what to say to the doctor if I'm told "nothing's wrong" on Monday when I get the MRI results. What other tests should I suggest and where should I go from here?
Edit--I feel like I should also add that I have a couple of autoimmune disorders. I have psoriasis and fibromyalgia, though I highly doubt they have anything to do with all this. Also I was diagnosed about 8 years ago as being bipolar but I've done better for the last 3 years without meds than I did for the previous 5 with them, so I honestly don't think I am, although I do notice myself to be a lot "moodier" than usual lately. I think that's all of my ailments. lol