Discussions By Condition: Endocrine conditions

Pituitary Adenoma and Pregnancy

Posted In: Endocrine conditions 9 Replies
  • Posted By: Anonymous
  • December 18, 2007
  • 11:33 PM

My husband and I are thinking of having a baby. My endocrinologist totally freaked me out the last time I saw him, telling me that it was going to be difficult for me to get pregnant because I have a pituitary adenoma. The adenoma is under control now thanks to Dostinex - my level is around 7 right now. Has anyone had trouble getting pregnant with this diagnosis?

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9 Replies:

  • Just looking at the Consumer Drug info on Dostinex, it looks as though they will not guarantee that your pregnancy will go well. Various drugs can interfere with pregnancy or cause deformities and no controlled studies have been done so it's a risk you'd have to be prepared to take. Also if you go off the drug, it may effect your tumour growth and so may pregnancy itself because your progesterone levels will rise. About Pituitary adenoma's:http://en.wikipedia.org/wiki/Pituitary_adenoma About Dostinex:http://dostinex.com/ DOSTINEX is pregnancy category B. There are no adequate and well-controlled studies in pregnant women. Animal studies show no fetal risk. A patient should be instructed to notify her physician if she suspects she is pregnant, becomes pregnant, or intends to become pregnant during therapy.
    Anonymous 42789 Replies
    • December 20, 2007
    • 11:25 AM
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  • Thanks for your post! I know the risks associated with pregnancy and Dostinex. My doctor has talked about taking me off it once my husband and I actually try to get pregnant as it is a slow growing tumor. My concern is actually being able to get pregnant because the tumor itself affects hormones associated with pregnancy.
    Anonymous 42789 Replies
    • December 28, 2007
    • 01:25 AM
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  • Hello! I was diagnosed with the same when I decided to seek infertility treatment. I was able\ to get pregnancy with a IUI and was on Dostinex till the time the egg was fertilized. It has not interfered with my pregnancy yet. Now I'm 4 months pregnant and my concern now is that how will this condition effect the following months of this pregnency? What if the tumor grows and I need surgery? You should not stress and work towards a healthy lifestyle so that you can concentrate on becoming pregnant. The concern is what happens once we do get pregnant?
    Anonymous 42789 Replies
    • January 8, 2009
    • 00:42 AM
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  • I was diagnosed with 2 Pituitary Adenomas 12 years ago at the age of 18 as I was displaying all the signs of Menopause and had already been diagnosed with Polycycstic Ovarian Syndrome. I was told at the time it was doubtful that I would ever have children and resigned myself to the fact. Following years of treatment for the PCOS My husband and I decided we wanted to try for a child so discussed the matter with my endochrinologist. She had her doubts about my ability to fall pregnant and said we should try natuarally for 6 months before we would be automatically referred for Hormone replacement therapy or IVF though should consider adoption too. Much to everyone's surprise within 2 months we had fallen pregnant - the natural way and he is due in a weeks time. I have not had the best of pregnancies and developed a few complications but the baby is fine and has been throughout. I have been very closely monitored by a team of specialists and scans have been done on a 4 weekly basis to check growth etc. I wish you the best of luck and anything is possible despite what the medical profession say
    Anonymous 42789 Replies Flag this Response
  • I was also diagnosed with a pituitary adenoma at age 19. I too was told that it would be difficult to become pregnant however at age 25 while on dostinex i became pregnant with my now 31/2 yr old daughter. I stopped taking dostinex after learing i was pregnant. I had no problems with my pregnancy up unitl 37 weeks when all of a sudden my vison became blurred after a cat scan which showed the mass had grown a bit during preganacy i was put on streoids to shrink it .....within days my vision was back to normal however i remained in the hospital so they could monitor me. At 38 weeks they decided to take my daughter via c-section becuase they were not sure how labor would affect me. My daughter was born healthy with no complications and she has never had any health issues above a ocassional cold. I am still taking dostinex twice a week and i'm feeling great i am even considering conceving baby number two in the next yr.
    Anonymous 42789 Replies Flag this Response
  • Thanks for your post! I know the risks associated with pregnancy and Dostinex. My doctor has talked about taking me off it once my husband and I actually try to get pregnant as it is a slow growing tumor. My concern is actually being able to get pregnant because the tumor itself affects hormones associated with pregnancy.Your doctor is correct in saying that the tumor is a slow growing tumor, however, I have to let you know that when you do get pregnant, your tumor will actually grow quite rapidly. This happend to me with my pregnancy. I had no sign of a growth on my pituitary gland until during my pregnancy. Apparently, pregnancy hormones make everything grow rapidly. Take for example your hair and your nails. Those grow very fast during pregnancy. My Endocrinologist informed me that the medication Bromocriptine is a safe medication to take to shrink the tumor during pregnancy.
    Anonymous 42789 Replies Flag this Response
  • My husband and I are thinking of having a baby. My endocrinologist totally freaked me out the last time I saw him, telling me that it was going to be difficult for me to get pregnant because I have a pituitary adenoma. The adenoma is under control now thanks to Dostinex - my level is around 7 right now. Has anyone had trouble getting pregnant with this diagnosis?Listen to a living miracle yes you can have a baby with no problem. i found out i had the tumor one month the next month i was pregnant. It took five months for my cycle to be normal ,but a year later no meds and I am having another baby. Keep believing in the sumpreme being not a man!
    Anonymous 42789 Replies
    • February 8, 2011
    • 06:25 PM
    • 0
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  • My husband and I are thinking of having a baby. My endocrinologist totally freaked me out the last time I saw him, telling me that it was going to be difficult for me to get pregnant because I have a pituitary adenoma. The adenoma is under control now thanks to Dostinex - my level is around 7 right now. Has anyone had trouble getting pregnant with this diagnosis?I have been moved to bromocriptine as i had the conversation with my endo. She check my periods and they were regular. She also gave me ovulation sticks which worked. After all of this she said there should be no issues with me getting pregnant. have you seen or talked to ur endo about it? Email me anytime if u need.
    Anonymous 42789 Replies Flag this Response
  • I am 20 years old and have known about my pituitary adenoma since i was about 17. when i found out about mine my prolactin level was 132, they put me on Dostinex as well and it lowered it but still not to the normal range of below 20 after about 1 and 1/2 years of taking it consistently. They upped my dosage to 2 mg per week and my levels were around what you said yours was around January of 2011...my husband and i had tried to get pregnant for about a year and a half and every month just got so much disappointment. In late July 2011 i was a day late and like always bought $1 pregnancy test from the dollar store. i didnt think anything of it bc i thought it would be another disappointment.but i was pregnant and am now 6 months pregnant with a healthy little girl. It's not impossible. my doctor told me i would probably NEVER have kids. but Dr's cannot play God either. if your levels are that low, yes you can get pregnant. and i really hope you do i know how discouraging it is. Good luck and God bless. i just really wanted to share my story :)
    hcb205 1 Replies
    • November 27, 2012
    • 05:00 PM
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