Discussions By Condition: Endocrine conditions

Need advice..any ideas..

Posted In: Endocrine conditions 2 Replies
  • Posted By: Anonymous
  • November 13, 2009
  • 03:06 AM

Hello!
I am a 22y/o female. 5'4", 170lbs. Caucasian/European descent.

This all started when I was around 16 years old. It started with Joint pain in my knees. Multiple doctors attributed it to growth, and sent me on my way. As I got older, the pain got worse, and has spread to most joints in my body. Knees, hips, ankles, shoulders, wrists and fingers. I have had multiple RA and Arthritis panels drawn, and all were negative.
The depression set in in 2006..not severe, but enough to effect my daily life. I was prescribed prozac 20mg bid, which helped.
Also in 2006, I developed a moderate/severe pain in my left side..directly under my ribs, in the spleen area(sometimes wraps around to my back) It was/is always present, and sometimes flares. This pain landed me in the ER many nights. I was eventually diagnosed with a severe Mono infection and they attributed the spleen area pain to splenomegaly from the Mono. Problem is, the pain has never gone away. I ended up having an Appendectomy in June 2007, in the hopes that it would relieve some of my abdominal discomfort. It didn't.
I then started to experience some numbness/lack of circulation in my feet. Some of my toes and the balls of my feet would turn a white/yellow color, and I would lose all feeling, except a tingling. This is ongoing. When I brought it up to my physician, she said that it is probablly just a bit of Raynaud's.
While still experincing the left side pain/raynaud's, I had a severely swollen Left tonsil. I had a strep infection that went undetected for so long, that I developed Rheumatic fever. Thank goodness it was caught before it caused any long term heart damage. I tested positive for strep for the 6th time, and I was sent for a Tonsillectomy.
Not knowing where to go next, my GP sent me to a Urogynecologist. She diagnosed me with Interstitial Cystitis (through cystoscopy) and Endometriosis. During a laprascopic examination, I had laser ablation of the endometriosis, and release of abdominal adhesions. None of these surgeries have relieved my chronic left side pain, or any of my other symptoms. I was also given a depo-medrol/lidocaine injections in my left flank that did not relieve any of the pain.

Other tests that I have had done are below;
Kidney/Liver function panels: Normal
24 hour free urine Cortisol: Normal
Lyme test: Negative
Vitamin D: Low- Placed on 1,000 units daily..has not helped.
Endoscopy: 2 biopsies taken. Negative biopsies, negative for H. Pylori, Negative for Celiac's.
5hiaa 24 hr Urine test for Carcinoid syndrome: Negative.
Multiple RA/Arthritis panels: Negative
A1C: Negative for Diabetes
Thyroid panel:QNL (within normal limits)
Multiple Abdominal CTs- No acute process noted.

My other symptoms:
Weight gain: 35-45lbs over 18 months, mostly in abdomen
Left wrist pain: described much like carpal tunnel pain
Diarrhea/constipation on and off
TMJ like symptoms: Severe pain in Jaw, muscle relaxers didn't help
Insomnia
Large, red/purple Striae on abdomen
Raynaud's (tingling, pins and needles, cold) in feet
Lower GI bleed (03/08/09)
Loss of night vision
Headaches
Muscle pain
Increased hair growth
Change in bite (dental)
Nipple Discharge (sometimes milky in color..many times a greenish/black)
ALWAYS thirsty
No sex drive
Random low grade fevers
And most recently, Severe back pain right at the level of my lowest ribs, and neck pain.
Also taken Lyrica for suspected fibromyaliga/CFS...but it did not help, and I am not convinced.


I have seen Internal med, Urogynecology, GI, Chiropractic/acupuncture, and ENT physicians.
I feel like they all focus soley on the problem that relates to their specialty, and fail to look at the whole picture. I need to find the root of this problem, before it completly takes over my entire life.
Thank you for taking the time to read this, I know it is a lot...try living it!

I am concerned that this may be some sort of Pituitary/Adrenal disorder... Anyone with a similar experience/symptoms?

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2 Replies:

  • My company needs some H2B Roofers for a client, anyone know where to find them?we are looking for someone with experience and is already in United States seeking extension for November 09 - 2010 season.thank you,
    Falocroro 3 Replies
    • November 15, 2009
    • 11:44 PM
    • 0
    Flag this Response
  • Hi,Have you had blood cortisol labs drawn? Vitamin B12? What was your Vitamin D level at? (with ranges) What were your thyroid levels? Can you post your results with ranges? Many of your symptoms sound hormonal in nature. I may be able to help you.TriciaHello! I am a 22y/o female. 5'4", 170lbs. Caucasian/European descent. This all started when I was around 16 years old. It started with Joint pain in my knees. Multiple doctors attributed it to growth, and sent me on my way. As I got older, the pain got worse, and has spread to most joints in my body. Knees, hips, ankles, shoulders, wrists and fingers. I have had multiple RA and Arthritis panels drawn, and all were negative. The depression set in in 2006..not severe, but enough to effect my daily life. I was prescribed prozac 20mg bid, which helped. Also in 2006, I developed a moderate/severe pain in my left side..directly under my ribs, in the spleen area(sometimes wraps around to my back) It was/is always present, and sometimes flares. This pain landed me in the ER many nights. I was eventually diagnosed with a severe Mono infection and they attributed the spleen area pain to splenomegaly from the Mono. Problem is, the pain has never gone away. I ended up having an Appendectomy in June 2007, in the hopes that it would relieve some of my abdominal discomfort. It didn't. I then started to experience some numbness/lack of circulation in my feet. Some of my toes and the balls of my feet would turn a white/yellow color, and I would lose all feeling, except a tingling. This is ongoing. When I brought it up to my physician, she said that it is probablly just a bit of Raynaud's. While still experincing the left side pain/raynaud's, I had a severely swollen Left tonsil. I had a strep infection that went undetected for so long, that I developed Rheumatic fever. Thank goodness it was caught before it caused any long term heart damage. I tested positive for strep for the 6th time, and I was sent for a Tonsillectomy. Not knowing where to go next, my GP sent me to a Urogynecologist. She diagnosed me with Interstitial Cystitis (through cystoscopy) and Endometriosis. During a laprascopic examination, I had laser ablation of the endometriosis, and release of abdominal adhesions. None of these surgeries have relieved my chronic left side pain, or any of my other symptoms. I was also given a depo-medrol/lidocaine injections in my left flank that did not relieve any of the pain.Other tests that I have had done are below;Kidney/Liver function panels: Normal24 hour free urine Cortisol: NormalLyme test: NegativeVitamin D: Low- Placed on 1,000 units daily..has not helped.Endoscopy: 2 biopsies taken. Negative biopsies, negative for H. Pylori, Negative for Celiac's. 5hiaa 24 hr Urine test for Carcinoid syndrome: Negative.Multiple RA/Arthritis panels: Negative A1C: Negative for DiabetesThyroid panel:QNL (within normal limits)Multiple Abdominal CTs- No acute process noted. My other symptoms:Weight gain: 35-45lbs over 18 months, mostly in abdomenLeft wrist pain: described much like carpal tunnel painDiarrhea/constipation on and offTMJ like symptoms: Severe pain in Jaw, muscle relaxers didn't helpInsomniaLarge, red/purple Striae on abdomen Raynaud's (tingling, pins and needles, cold) in feetLower GI bleed (03/08/09)Loss of night vision HeadachesMuscle painIncreased hair growth Change in bite (dental)Nipple Discharge (sometimes milky in color..many times a greenish/black)ALWAYS thirsty No sex drive Random low grade feversAnd most recently, Severe back pain right at the level of my lowest ribs, and neck pain. Also taken Lyrica for suspected fibromyaliga/CFS...but it did not help, and I am not convinced.I have seen Internal med, Urogynecology, GI, Chiropractic/acupuncture, and ENT physicians. I feel like they all focus soley on the problem that relates to their specialty, and fail to look at the whole picture. I need to find the root of this problem, before it completly takes over my entire life. Thank you for taking the time to read this, I know it is a lot...try living it! I am concerned that this may be some sort of Pituitary/Adrenal disorder... Anyone with a similar experience/symptoms?
    Lyra19 7 Replies
    • November 21, 2009
    • 06:32 AM
    • 0
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