I am a 22y/o female. 5'4", 170lbs. Caucasian/European descent.
This all started when I was around 16 years old. It started with Joint pain in my knees. Multiple doctors attributed it to growth, and sent me on my way. As I got older, the pain got worse, and has spread to most joints in my body. Knees, hips, ankles, shoulders, wrists and fingers. I have had multiple RA and Arthritis panels drawn, and all were negative.
The depression set in in 2006..not severe, but enough to effect my daily life. I was prescribed prozac 20mg bid, which helped.
Also in 2006, I developed a moderate/severe pain in my left side..directly under my ribs, in the spleen area(sometimes wraps around to my back) It was/is always present, and sometimes flares. This pain landed me in the ER many nights. I was eventually diagnosed with a severe Mono infection and they attributed the spleen area pain to splenomegaly from the Mono. Problem is, the pain has never gone away. I ended up having an Appendectomy in June 2007, in the hopes that it would relieve some of my abdominal discomfort. It didn't.
I then started to experience some numbness/lack of circulation in my feet. Some of my toes and the balls of my feet would turn a white/yellow color, and I would lose all feeling, except a tingling. This is ongoing. When I brought it up to my physician, she said that it is probablly just a bit of Raynaud's.
While still experincing the left side pain/raynaud's, I had a severely swollen Left tonsil. I had a strep infection that went undetected for so long, that I developed Rheumatic fever. Thank goodness it was caught before it caused any long term heart damage. I tested positive for strep for the 6th time, and I was sent for a Tonsillectomy.
Not knowing where to go next, my GP sent me to a Urogynecologist. She diagnosed me with Interstitial Cystitis (through cystoscopy) and Endometriosis. During a laprascopic examination, I had laser ablation of the endometriosis, and release of abdominal adhesions. None of these surgeries have relieved my chronic left side pain, or any of my other symptoms. I was also given a depo-medrol/lidocaine injections in my left flank that did not relieve any of the pain.
Other tests that I have had done are below;
Kidney/Liver function panels: Normal
24 hour free urine Cortisol: Normal
Lyme test: Negative
Vitamin D: Low- Placed on 1,000 units daily..has not helped.
Endoscopy: 2 biopsies taken. Negative biopsies, negative for H. Pylori, Negative for Celiac's.
5hiaa 24 hr Urine test for Carcinoid syndrome: Negative.
Multiple RA/Arthritis panels: Negative
A1C: Negative for Diabetes
Thyroid panel:QNL (within normal limits)
Multiple Abdominal CTs- No acute process noted.
My other symptoms:
Weight gain: 35-45lbs over 18 months, mostly in abdomen
Left wrist pain: described much like carpal tunnel pain
Diarrhea/constipation on and off
TMJ like symptoms: Severe pain in Jaw, muscle relaxers didn't help
Large, red/purple Striae on abdomen
Raynaud's (tingling, pins and needles, cold) in feet
Lower GI bleed (03/08/09)
Loss of night vision
Increased hair growth
Change in bite (dental)
Nipple Discharge (sometimes milky in color..many times a greenish/black)
No sex drive
Random low grade fevers
And most recently, Severe back pain right at the level of my lowest ribs, and neck pain.
Also taken Lyrica for suspected fibromyaliga/CFS...but it did not help, and I am not convinced.
I have seen Internal med, Urogynecology, GI, Chiropractic/acupuncture, and ENT physicians.
I feel like they all focus soley on the problem that relates to their specialty, and fail to look at the whole picture. I need to find the root of this problem, before it completly takes over my entire life.
Thank you for taking the time to read this, I know it is a lot...try living it!
I am concerned that this may be some sort of Pituitary/Adrenal disorder... Anyone with a similar experience/symptoms?