Discussions By Condition: Endocrine conditions

I am at my wits end with these symptoms

Posted In: Endocrine conditions 20 Replies
  • Posted By: limabean1061
  • October 31, 2006
  • 03:26 AM

For the past 3 years I have been having hot and cold flashes, extreme anxiety, excessive burbing, brain fog, internal shaking, I feel like my insides are moving too fast for my outside which worsens when I try to relax, burping, the feeling that something is moving up and down my legs and feet, twitching, muscle aches, nervousness, heart palpitions, if I touch the back of my neck I get extreme strange feelings going down my legs, my ribs feel tight while resting, aat times my body feels like it is at a steady shake, my hands and feet sometimes feel so cold that they ache, night sweats. I am taking synthroid because I had radiation to my thyroid and my last levels were at 0.4 which has taken 2 and a half years to adjust so far. My symptoms are not near as sever as they were when my thyroid levels were at 23 but I am still having all of the symptoms that I was having while levels were at 23. Dr. said GAD but does anyone know if these symptoms will ever go away. Could they still be thyroid related? It is really scarry to feel like this and very discouraging. Any help or answers would be greatly appreciated!! I have read about GAD and alot of my symptoms don't sound like GAD to me but I am not a Doctor.
Last edited by limabean1061 : Today at 09:45 PM.

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20 Replies:

  • Stress, Thyroid can all cause those ... i would get another doctor .. endocronologist. I have had thyroid and have had similar symptoms .. i recommend book "Living well with Hypothyroidism" it covers all symptoms and is an absolute life saver. What is GAD by the way?
    Anonymous 42789 Replies
    • October 31, 2006
    • 08:43 PM
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  • Stress, Thyroid can all cause those ... i would get another doctor .. endocronologist. I have had thyroid and have had similar symptoms .. i recommend book "Living well with Hypothyroidism" it covers all symptoms and is an absolute life saver. What is GAD by the way?[/quote Thank you for your input. GAD is Genaral Anxiety Disorder
    limabean1061 9 Replies
    • November 1, 2006
    • 03:13 PM
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  • Yes, I agree to go to an endocrinologist and if you already are maybe switch Drs. Doctors should not dismiss physical symptoms as anxiety.Laurie:)
    laurie hahnlen 19 Replies
    • November 16, 2006
    • 01:03 AM
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  • ditto endocronologist, check out symtoms of cushings and acromegaly
    Anonymous 42789 Replies
    • December 7, 2006
    • 07:22 AM
    • 0
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  • Hi, there. I just thought I'd share that you should find an endocrinologist who specializes in thyroid disorders. I've had serious symptoms for the last ten years that everyone dismissed. (Talk about frustrating!) I've been tested for MS & myasthenia gravis, had a bone marrow biopsy, and had multiple scans of my head, neck and thoracic cavity. All tests came back normal, with the exception that my thyroid levels seem to be constantly fluctuating.I'm a diabetic, so I discussed this with my endocrinologist. He told me it was "impossible" to gain weight with hyperthyroidism, and that the small changes I'd had in my TSH levels "couldn't possibly" cause symptoms. My neurologist had told me that all of my seemingly neurological symptoms could be thyroid-related, but my endo disagreed with her, too. Because of him being so non-chalant and seemingly unaware of some basic thyroid facts, I am going to schedule an appointment with a thyroid specialist.I can TOTALLY relate to your being frustrated and feeling like nobody's listening to you. I've been going through that for over ten years and am also at my wit's end. Hang in there and seek a second or third opinion until you find a doc that will act on your symptoms instead of dismissing them. Also -- insist that blood tests be run to determine your levels of T3 and T4 hormones, and request that they also check your levels of Free T3s and T4s.Also -- if your doc says your TSH levels are "normal", ask whether they are high or low normal. Many folks experience thyroid symptoms with TSH levels that are not "officially" high or low. Some docs recognize this and will change med dosages to get levels as close to "perfect" as possible; other docs ignore anyone who insists they are symptomatic. Keep seeking a doc that will listen to you, run the appropriate tests, and ACT on their results.It can and does get better -- I promise -- but you have to take charge and control of your own health to get anything accomplished.
    Anonymous 42789 Replies
    • December 29, 2006
    • 05:14 AM
    • 0
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  • I have been trying to figure out why I feel like my insides are moving fast for a long time and was recently diagnosed with hypothyroidism. My mother had hyperthyroid diagnosed when she was 52 the same age I am now. It feels like I can just never feel relaxed. It' like I am nervous in the middle of my body but in my head there is nothing i can point to as to why i feel this way. I thought the thyroid drug they put me on was making it worse but after 2 weeks of being off of it the symptoms are just as bad. It is really depressing to the point of worrying that I can't live like this much longer. I seem to have all of the symptoms of hyperthyroid but diagnosed as hypo. If you ever were able to come to any conclusions about your problem i would love to hear from you.
    Anonymous 42789 Replies Flag this Response
  • I have also wondered if caffeine could be causing this and will stop it for a time to see. I only drink a cup or two in the morning and afternoon.
    Anonymous 42789 Replies Flag this Response
  • These endos are crazy I have yet to meet one who was normal
    Anonymous 42789 Replies Flag this Response
  • If you get any answers please post them. For the last year or so, I've been thinking I was going crazy because I have all these insane symptoms and almost all my tests come out normal. It's so frustrating. My internal shakiness has gotten to the point that I feel it on the outside when I do anything that requires a little effort. I also am so foggy in the head sometimes that I feel like I'm underwater. Any help from anyone would be appreciated. I have an appt. scheduled with an endocrinologist next week and am hopeful he'll be able to come up with something.
    Anonymous 42789 Replies Flag this Response
  • I hear ya'.. Finding what works is a lifelong pursuit.You just gotta keep plugging away. You'll get closer to feeling okay.Regards..
    Anonymous 42789 Replies Flag this Response
  • i have recently had my last ovary removed. I have been having hot flashes, exhaustion, metal confusion, lack of concentration, extreme weight gain and joint aches and pains. I can no longer where my contact because my eyes are very dry. I have gained about 80 lbs. in 5 years. I need help!!!!!!! I made an appointment with an endocronologist. Do you think he can help?
    Anonymous 42789 Replies Flag this Response
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  • You said that you received radiation to the thyroid and that your levels (I'm assuming TSH) were at 23 before, so I'm assuming you had a thyroid tumor?If you are still experiencing the same symptoms, then I doubt that these are related to your thyroid. You may indeed have hypothyroidism, as a result of the radiation. But you may have something in addition to this. GAD could be the diagnosis, though I'm not an anxiety exter by ay means. See a specialist for this. Another thing - and I know this is gross - is to look at your stools. You mentioned that your "insides move faster" and that you have gastroenterological symptoms (burping, etc). Are your stools watery or do they have large portions of undigested food sometimes? You not be absorbing food properly. This could be related to a hormonal or GI condition. I would make appointments with several different specialists (GI specialist, endocrinologist, psychologist, maybe even a neurologist) to pinpoint your problems.
    kisses4alexandra 3 Replies Flag this Response
  • You seem to have a thyroid condition of some sort. I had numbness of the fingers, the pinky and ring finger of my left hand. The numbness lasted for 8 days, with no let-up. I went to the doctor. He said it might be a thyroid problem, and scheduled test for me at the hospital. I came home and started to read my juicing book about thyroid conditions. Heinerman suggested radish and/or cranberry juice. I had no radishes in the house. Nor did I have fresh cranberries. I just began to drink bottled cranberry juice. The numbness let up almost immediately. I still plan to buy radishes and juice them. Heinerman suggest drinking about 32 ounces of cranberry juice a day. Radishes come with a warning however. *must not be taken alone...juice of radishes is too strong...must be mixed with another juice, like carrot or tomato juice. Good fortune!
    Anonymous 42789 Replies
    • August 14, 2007
    • 06:37 AM
    • 0
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  • For the past 3 years I have been having hot and cold flashes, extreme anxiety, excessive burbing, brain fog, internal shaking, I feel like my insides are moving too fast for my outside which worsens when I try to relax, burping, the feeling that something is moving up and down my legs and feet, twitching, muscle aches, nervousness, heart palpitions, if I touch the back of my neck I get extreme strange feelings going down my legs, my ribs feel tight while resting, aat times my body feels like it is at a steady shake, my hands and feet sometimes feel so cold that they ache, night sweats. I am taking synthroid because I had radiation to my thyroid and my last levels were at 0.4 which has taken 2 and a half years to adjust so far. My symptoms are not near as sever as they were when my thyroid levels were at 23 but I am still having all of the symptoms that I was having while levels were at 23. Dr. said GAD but does anyone know if these symptoms will ever go away. Could they still be thyroid related? It is really scarry to feel like this and very discouraging. Any help or answers would be greatly appreciated!! I have read about GAD and alot of my symptoms don't sound like GAD to me but I am not a Doctor.Last edited by limabean1061 : Today at 09:45 PM. I'd suggest too that you find out about sleep disorders and sleep apnea. It could cause some of these symptoms as well.Since you said you drink lots of coffee, that would alert me to the possibility that you feel tired and need the caffeine boost? Right?http://www.thesleepsite.com/There's an article on the page about sleep apnea causing Fibromyalgia-like symptoms. And Fibro's symptoms are similar to hypothyroidism. So this could be source of some of your symptoms. And anxiety is a symptom of sleep apnea. Night sweats are a symptom of sleep apnea, especially around your neck area.
    Anonymous 42789 Replies
    • September 2, 2007
    • 03:58 AM
    • 0
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  • I have been trying to figure out why I feel like my insides are moving fast for a long time and was recently diagnosed with hypothyroidism. My mother had hyperthyroid diagnosed when she was 52 the same age I am now. It feels like I can just never feel relaxed. It' like I am nervous in the middle of my body but in my head there is nothing i can point to as to why i feel this way. I thought the thyroid drug they put me on was making it worse but after 2 weeks of being off of it the symptoms are just as bad. It is really depressing to the point of worrying that I can't live like this much longer. I seem to have all of the symptoms of hyperthyroid but diagnosed as hypo. If you ever were able to come to any conclusions about your problem i would love to hear from you.I have Hashimoto's Thyroiditis, auto-immune. I am veri6 sensetive to synthroid replacement that it causes bad hyperthyroidism in me. I got that GAD thing to. However, Hashimoto's Thyroiditis is the leading cause of hypothyroidism which also has periods of hyperthyroidism, thyrotoxocosis. A simple antibody test at the Endocrinologist answers if you have Hashiomoto's Disease also known as Chronic Lymphocytic Thyroiditis and yeah it is chronic. That is all.
    Anonymous 42789 Replies
    • September 28, 2007
    • 07:34 AM
    • 0
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  • i so appreciate what all of you have written. I had a hysterectomy and my right kidney removed due to renal cell carcinoma five years ago, and three years ago, because of upper abdominal pain, i had my gall bladder removed, along with 5 hernias that were because of the scar tissue from the kidney surgery. Since then, i pick up everything but money and men ;-D I have had several respiratory illnesses, aches, chronic pain which is being treated by a specialist, but i still feel horrible. I teach 3rd grade, so of course I KNOW am suffering from GAD! But i walk into my classroom early in the morning, and when i open the door to let my kids in, suddenly i am sweatingn buckets. Just got over shingles - actually through the first ten days, now the post-herpetic pain symptoms are starting. I have all the symptoms you all have described. I am 49 years old, and i feel ancient. my 80 year old father is better off than i am. I am finding it harder and harder to speak to physicians, because they can be so dismissive. I live in a small town in florida, and my mom made the rounds of the doctors in town, and they all told her it was either in her head, or it was arthritis (it turned out to be fatal pancreatic cancer)... I no longer know what to ask for. And i feel so embarrassed when i have to blow something or someone off because i am so exhausted. I work and come home and go to bed! I have had sleep apnea tests, and i have a cpap machine. i'm on cymbalta, an anti-depressant that is supposed to help with the chronic joint pain, along with wellbutrin, and estratest, to boost the hormones that went with the hysterectomy. My hair and nails are brittle, and i have a chronic skin thing - boils all over, in addition to the shingles ...thanks for being here and letting me vent. I am reading your suggestions. and though it's awful for us to be in so much pain and discomfort, i am comforted knowing there are other people like me. HELP!Claudia
    ciciinfla 2 Replies
    • February 20, 2008
    • 03:38 AM
    • 0
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  • Thank you for your input. GAD is Genaral Anxiety DisorderHow is your FreeT3 level? Many people report that when their FreeT3 level is NOT in the upper mid range, they have anxiety.Anxiety is a symptom of hypothyroidism. Quite a few doctors don't know or treat this. Sometimes adding Cytomel to the Synthroid helps the anxiety. Each person is different.Definitely get another doctor, maybe even an internist. Some of them are even better than an endo.Have you seen this website?http://www.freewebs.com/thyroidGreat place for support on the forum too.
    Anonymous 42789 Replies Flag this Response
  • For the past 3 years I have been having hot and cold flashes, extreme anxiety, excessive burbing, brain fog, internal shaking, I feel like my insides are moving too fast for my outside which worsens when I try to relax, burping, the feeling that something is moving up and down my legs and feet, twitching, muscle aches, nervousness, heart palpitions, if I touch the back of my neck I get extreme strange feelings going down my legs, my ribs feel tight while resting, aat times my body feels like it is at a steady shake, my hands and feet sometimes feel so cold that they ache, night sweats. I am taking synthroid because I had radiation to my thyroid and my last levels were at 0.4 which has taken 2 and a half years to adjust so far. My symptoms are not near as sever as they were when my thyroid levels were at 23 but I am still having all of the symptoms that I was having while levels were at 23. Dr. said GAD but does anyone know if these symptoms will ever go away. Could they still be thyroid related? It is really scarry to feel like this and very discouraging. Any help or answers would be greatly appreciated!! I have read about GAD and alot of my symptoms don't sound like GAD to me but I am not a Doctor.Last edited by limabean1061 : Today at 09:45 PM. Hi there:I just went to a pituitary symposium and learned that it is better to test and adjust the T4 AND the T3 levels. Is your doctor adjusting both of these or just looking at your T4's?Good luck,Carole
    Anonymous 42789 Replies Flag this Response
  • Hi, I hope you are feeling better! I get a lot of these symptoms, The internal shakiness, palpitations, lightheaded, ice cold feet and hands among others, and they are caused by POTS ( Postural Orthostatic Tachycardia Syndrome) Go online and research on this. drinking a lot of water helps, among meds to control the heart,. Good luck!:)
    marijos1 1 Replies
    • August 31, 2008
    • 07:42 PM
    • 0
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  • HiI'm no expert but it seems to me that you have hyperthyroidism, and after reading about your symptoms I can't beleive a doctor would just tell you your results are normal & thats the end of it!! You are still getting all the symptoms!! There is a fab site that might be of interest to you, thyroid-disease.org.uk (sorry, not sure if I can put it on here but it really would help you) The people on the forum there have helped me a great deal & have recommended Dr Skinner who is a thyroid specialist in the UK who takes into account your symptoms rather than your blood test results. He is a private doctor so therefore you need to pay to see him (I believe it to be around £160 for your 1st appointment) but your doctor needs to refer you to him. If that is not an option then I would see an endocrinologist for further tests to be done, GPs don't know everything about the thyroid, just the basics and can be wrong a lot of the time. You know your body & how you feel.
    Anonymous 42789 Replies
    • October 22, 2008
    • 09:14 PM
    • 0
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