Discussions By Condition: Endocrine conditions

high cortisol levels and strange symptoms

Posted In: Endocrine conditions 13 Replies
  • Posted By: Anonymous
  • April 3, 2009
  • 10:18 PM

Anyone with Cushings Disease have these symptoms - any other ideas??


Doctors haven't been able to diagnois me due to unusual symptoms. Is anyone familiar with these symtoms? at rest muscle twitches and body jolts, jaw-cheek pain, cold mouth, tingling tongue, excess saliva, and multiple joint-tendon popping and pain.

Sept 07 1'colon removed due to pre-cancerous mass (coincidense that the next problems start 2 weeks after surgury?? Doctors cannot relate the two)
Oct 07 stabbing/burning pain at base of skull with neck and shoulder pain that popped 300+ times a day for 4 months (tried with no luck: chiropractors, physical therapy, ibroprofen, hot and cold packs, physiatric dr gave oral steroid, neck x-ray normal, brain and neck MRI were normal)
Jan 08 to present - body jolts started (along with random screams, which happened hundreds of times a day and now only happens with the at-rest muscle twtiches and jolts), (EMG done on right arm was normal, tried chiropracter again, all blood work (including lymes 2 times) were normal, 2 more steroid shots - no help.)
Then the muscle twitches, involuntary movements, tongue tingling and jaw pain started (neurologist had me try neurontin=no help and did chest x-ray=normal, blood showed high inflammation which they retested with normal results months later)
Over 2008 I seen a couple neurologist who could not diagnois me. Oct 08, my knee started doing the exact same thing as my neck initially did (pop/pain hundreds of times a day with heat increasing pain), and has lasted the last 4 months. They say I have bursitis in knee but cannot get it in the neck. (This may or maynot have no impact on diagnois.)
I recently have also gotten excess saliva quite often, also a very cold tongue or mouth. Less severe is I also feel pressure in my ear(s) and have a soar heart sometimes. My doctor looked at ear and heart=normal. I have been taking Celexa for the two months to see if symptoms change which they have not - I tried telling them it wasn't physcological but have to prove it I guess.

LATEST TESTS = showed high cortisol levels and will be tested for Cushings

Reply Flag this Discussion

13 Replies:

  • Try www.cushings-help.com. My dad had cushings and we found great support there. Also, if cushings is the cause you will most likely not be able to fall asleep at night and if you do you will have a hard time getting up in the AM. Cushing can cause many many problems. Your symptoms could alle be caused by it. Kiera
    Anonymous 42789 Replies Flag this Response
  • I have been taking Celexa for the two months to see if symptoms change which they have not - I tried telling them it wasn't physcological but have to prove it I guess.I thought you should know that psychological reasons aren't the only reasons they prescribe anti-depressants. These meds, Celexa included, effect your seratonin levels and sometimes other neurotransmitters as well. Basically, more seratonin available to your body means less cortisol production. So, these meds can help with high cortisol levels even if you have no psychological issues. They aren't necessarily giving you these meds for mental stuff. Also, to get any effect from Celexa, you need to take it 6-8 weeks. Sounds like you are just at the eight week mark....you might try giving it a little more time to work, everyone is different. Good luck! Sorry I can't really help about everything else but I thought you would like to know about the meds.
    Harmonium 322 Replies Flag this Response
  • I also have the twitches,bone/joint issues, excess saliva, and a whole host of other problems(crazy heartbeat,trouble sleeping,frequent kidney stones,digestive, head tingling,etc.) I was tested for autoimmune inflammatory diseases(lupus,etc.). Found nothing but hypothyroid, low potassium, and vitamin d deficiency. They are now thinking I have something wrong with adrenal glands. They had thought I had a tumor before and ruled it out. Now they are right back to that. The twitching has turned very much seizure like now, and causing coordination issues when acting up. Of course til they get something concrete in tests they will try to give u happy pills(first thing they did to me too). I told them if i were crazy it would be alot easier to treat than all the physical garbage. I have had repeated ER and hospital stays for tachycardia and fluid/potassium loss. Still no luck. Please don't give up! If your cortisol levels are high, then its either adrenal or pituitary. Either way, there is a remedy. Good luck!
    bsmayes 2 Replies Flag this Response
  • May 2009 - I was diagnoised with Cushing's Disease.(high coritsol level - pituitary gland tumor)Some of my symptoms were typical, many are not.
    Anonymous 42789 Replies Flag this Response
  • You should optimize your tables quite often. That will help.Anyway, there isnt much I can tell you to do because I am not familiarized with your servers specs nor traffic.My 2 cents
    krakosabrokovich 2 Replies Flag this Response
  • Hello friends,These symptoms sound very similar to mine as well. your symptoms, along with the fact that nothing shows up on tests --as well as the fact that onset hit strongest after trauma to the body-- suggest Chronic Fatigue Syndrome. Many people think of CFS as something that causes constant tiredness and that is mainly it. However, that is not the case at all. There are several other debilitating physical symptoms that accompany the fatigue. Here is a link to a fantastic website (InvisibleDiseases.com) that has helped so many people already: http://invisiblediseases.com/Your symptoms sound a lot like the hypoglycemia symptoms that many experience. Problems with digestion (Irritable Bowel Syndrome) are also synonymous with CFS. It is so scary to go through this, and I am so sorry that you have to. I hope that you have a good support network. There are many great people out there who know what you are experiencing. You are not alone! Please check out www.InvisibleDiseases.com when you can. They may offer a lot of help. ..I wish you so very well!! you will find relief, I know it!! Be patient and know that you are among friends.
    Anonymous 42789 Replies Flag this Response
  • My doctor finally put me on a beta blocker because I was trembling too much and couldn't calm down at night. He had given me effexor to work with my lexapro and Ativan to calm me down. The beta blocker is starting to work. I ended up in the hospital for 3 days with this excess cortisol adrenaline symptom. Had to be treated for GERD also. I had way too much stress for a whole year. I am a 55 year old woman with my own business and had to find relief or lose my business. But I really think the beta blocker is working. Only taken it for week and a half.
    Anonymous 42789 Replies Flag this Response
  • It is funny you mention the low potassium and vitamin D. I'm having that problem, along with hair loss and drooling. I now added legs filling up with fluid. They have no clue what is wrong. We is House when you need him?????
    Anonymous 42789 Replies Flag this Response
  • To the post of the above unregistered user - did you ever find out what was wrong with you? I have the low pot, low vit d, and edema. Curious to know any of your other symptoms.
    Anonymous 42789 Replies
    • November 11, 2010
    • 01:05 AM
    • 0
    Flag this Response
  • I would very strongly urge that most of you have your ionized/serum calcium levels, PTH (Parathyroid Hormone) levels checked, possibly along with Vit D. Most of you are displaying classic symptoms of Hyperparathyroidism ! This is the #1 cause of kidney stones, alone.The excess calcium/PTH circulating in your body causes muscle "malfunction", adrenal/renal issues, destruction to endothelial integrity, GERD, hair loss, fatigue, brain "fog", intestinal issues & a host of other things.I respectifully urge you all to PLEASE do a search by high calcium & thoroughly research Hyperparathyroidism symptoms (they're frequently mistaken for "thyroid" issues). Much luck to you all.
    Anonymous 42789 Replies
    • December 29, 2010
    • 04:42 AM
    • 0
    Flag this Response
  • I would very strongly urge that most of you have your ionized/serum calcium levels, PTH (Parathyroid Hormone) levels checked, possibly along with Vit D. Most of you are displaying classic symptoms of Hyperparathyroidism ! This is the #1 cause of kidney stones, alone.The excess calcium/PTH circulating in your body causes muscle "malfunction", adrenal/renal issues, destruction to endothelial integrity, GERD, hair loss, fatigue, brain "fog", intestinal issues & a host of other things.I respectifully urge you all to PLEASE do a search by high calcium & thoroughly research Hyperparathyroidism symptoms (they're frequently mistaken for "thyroid" issues). Much luck to you all.Although inadequate calcium intake and calcium depletion is considered the largest contributor to the weakening of bones and increasing chances of fractures, it is actually Vitamin D which determines your bone health. Vitamin D3 regulates the amount of calcium which remains in blood circulation and the amount which is deposited in your teeth and bones. It promotes the absorption of phosphorous and calcium in your body, strengthening your bones. Even if you intake calcium in adequate amounts through your food and medicinal supplements, if you have less than optimum level of Vitamin D, the calcium will remain in the bloodstream and will not be absorbed, which could ultimately lead to the deterioration of your bones.
    Anonymous 42789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Having some of the same unexplained symptoms as well - Heart paplitations, huge adrenaline rushes, dystonia (tremors and muscle jerking) extreme fatigue following the rush and dystonia attacks. So far, all tests show that I am perfectly healthy. But here is a thought or two. In my research I have come across two interesting possibilities; the first being fluroquinolone toxicity syndrome (from antibiotics like Cipro and Levaquin - not sure on spelling) OR mercury toxicity possibly from a mouth full of amalgam fillings. Google and see what you find. Scary -- and the FDA cover-ups are maddening. Definiate possibilities, but best of luck getting someone to listen - I have been poo-pooed on the idea. Probably best to go to a naturopath who uses electro-dermal testing. I know, sounds crazy, but it really does get to the heart of the matter - or has for me in the past. Going to see my gal on Saturday. Hopefully she has the answers that the mainstream medical profession hasn't so far - but bless them for trying so hard for me :)
    Anonymous 42789 Replies Flag this Response
  • Anyone with Cushings Disease have these symptoms - any other ideas??Doctors haven't been able to diagnois me due to unusual symptoms. Is anyone familiar with these symtoms? at rest muscle twitches and body jolts, jaw-cheek pain, cold mouth, tingling tongue, excess saliva, and multiple joint-tendon popping and pain.Sept 07 1'colon removed due to pre-cancerous mass (coincidense that the next problems start 2 weeks after surgury?? Doctors cannot relate the two)Oct 07 stabbing/burning pain at base of skull with neck and shoulder pain that popped 300+ times a day for 4 months (tried with no luck: chiropractors, physical therapy, ibroprofen, hot and cold packs, physiatric dr gave oral steroid, neck x-ray normal, brain and neck MRI were normal)Jan 08 to present - body jolts started (along with random screams, which happened hundreds of times a day and now only happens with the at-rest muscle twtiches and jolts), (EMG done on right arm was normal, tried chiropracter again, all blood work (including lymes 2 times) were normal, 2 more steroid shots - no help.)Then the muscle twitches, involuntary movements, tongue tingling and jaw pain started (neurologist had me try neurontin=no help and did chest x-ray=normal, blood showed high inflammation which they retested with normal results months later)Over 2008 I seen a couple neurologist who could not diagnois me. Oct 08, my knee started doing the exact same thing as my neck initially did (pop/pain hundreds of times a day with heat increasing pain), and has lasted the last 4 months. They say I have bursitis in knee but cannot get it in the neck. (This may or maynot have no impact on diagnois.) I recently have also gotten excess saliva quite often, also a very cold tongue or mouth. Less severe is I also feel pressure in my ear(s) and have a soar heart sometimes. My doctor looked at ear and heart=normal. I have been taking Celexa for the two months to see if symptoms change which they have not - I tried telling them it wasn't physcological but have to prove it I guess.LATEST TESTS = showed high cortisol levels and will be tested for CushingsHigh cortisol levels can be caused by consuming products that contain licorice, like licorice candy, herbal teas or laxatives. High levels of licorice consumption also causes sodium retention. potassium loss, high blood pressure, fluid retention.
    Anonymous 42789 Replies
    • August 22, 2011
    • 06:38 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.