Discussions By Condition: Endocrine conditions

Diabetes Insipidus

Posted In: Endocrine conditions 2 Replies
  • Posted By: Anonymous
  • May 19, 2008
  • 11:55 PM

I have been recently diagnosed with DI after 2 yrs dealing with constant lightheadedness. I have had 12 prior dx beside the DI. My question is I tried the intranasal ddavp and got worse in symptoms of lightheadedness, headache, nausea. The endo I see is very unhelpful, and actually missed the dx earlier, my pcp found it. The endo only treats 1 other pt. with DI. Has anyone experienced sensitivity to ddavp. And does anyone know of an endo who specializes in DI in the pittsburgh, pa area. Thx

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2 Replies:

  • I'm sorry I can't answer your questions, but you might want to try www.cushings-help.com. They have a good board there and many people with cushings have DI, and might be able to point you in the right direction. Kiera
    Anonymous 42,789 Replies Flag this Response
  • I thank you for the information. I am having a difficult time finding very much information about DI, and or those who have it. Thanks again for the advice. Rae
    raerae19 2 Replies Flag this Response
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