Discussions By Condition: Endocrine conditions

Cushings cycles: confused

Posted In: Endocrine conditions 1 Replies
  • Posted By: vanyali
  • June 20, 2013
  • 01:15 AM

I am a 37 year old woman, and I have several symptoms of cushings that point to a 6-month on, 6-month off cycle.

In particular, I only menstruate for 6 months of the year. The other 6 months I have no bleeding at all. This has gone on for the last year and a half (before that I was on about a 6-8 week cycle for maybe a year).

I have a buffalo hump. My face has gotten much rounder over the past 2 years. My waistline has expanded. I had one period of weight gain during a "dry spell" a year and a half ago, during which time I was very depressed. I attributed the weight gain and depression to birth control pills a doctor put me on to regulate my periods, so I threw out the pills after about 3 months. That's when my 6 month on/off cycles started. I am currently 170 pounds, which is overweight but not obese, and also not unprecedented for me (I was the same weight in my 20's, but not as big. I am guessing I had more muscle back then? I lost a lot of weight when I had my children several years ago).

Recently, I turned over in bed and my hips didn't come with me. This led to such bad pain that I went to the hospital (using my husband as a walker). Turns out I have degeneration in my spine, my disks are shot, and I have muscle weakness in my back and hips which has put me into physical therapy. So, I suppose that counts as "proximal muscle weakness"?

I just tested normal with an overnight low-dose dexamethasone suppression test, so the doctor says there's nothing wrong with me. I am not diabetic, I am not PCOS, I have normal blood pressure. My blood work overall says I'm healthy as a horse. I am currently in a 6-month "on" cycle where I am menstruating normally and not gaining any more weight. So the doc told me to come back for more tests only if I start gaining weight again.

The problem is, I'm having weird new symptoms NOW even though I'm not gaining weight and haven't missed a period. I have had a vaginal yeast infection for over a month that I can't get rid of with medicine. Now I have a painful yeast infection in my mouth, though I haven't been on any steroids or antibiotics. I have been having dizzy spells that I can't find a cause for. I feel like my vision is more blurred lately, but my overall field of vision is fine.

Does this sound like Cushings at all, or am I barking up the wrong tree? Is it likely that I am on a 6-month Cushings cycle, like I assumed? If so, what could be causing the dizziness, yeast infections, blurred vision and back pain now, during what should be a "normal" period?

Thanks for your ideas!

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1 Replies:

  • The overnight low-dose dexamethasone suppression test is not considered a reliable test for Cushings. ( see: http://jcem.endojournals.org/content/89/3/1222.full and http://www.ncbi.nlm.nih.gov/pubmed/16915537 )Diagnosis or exclusion of Cushing's requires multiple tests.(see "Testing Options" here: http://www.healio.com/endocrinology/adrenal/news/print/endocrine-today/%7B6224334e-508c-4b90-a1f1-d1d8ccd9e68d%7D/the-difficulties-of-cushings-syndrome )Consider finding a specialist with more experience with Cushing's
    laurielf 1 Replies
    • December 13, 2013
    • 10:14 AM
    • 0
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