Discussions By Condition: Endocrine conditions

Cushing's or just FAT

Posted In: Endocrine conditions 9 Replies
  • Posted By: Anonymous
  • February 6, 2007
  • 03:06 AM

Hi....I've got some symptoms that look like Cushing's to me, I could use some input on this. Symptoms: Infertility/Premature Menopause (at age 28), High Blood pressure, Insulin Resistance, High Cholesterol/Triglycerides, Hot Flashes, Insomnia, Excessive Weight Gain (all over but me stomach/trunk area is HUGE) and I just don't eat that much, Puffy/Round Face, Red Cheeks, all the time, Osteopenia, Fatigue, Tired Muscles, and I've now developed a lump on my upper back/neck area (discovered by my spouse), is it Cushing's ?
I'm scared if it's Cushing's I've had it a long time....I'm now 40. Any info would be GREAT....Thanks. Jen in NJ

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9 Replies:

  • Sounds like it, I have Cushings right now from being on steroids long term usage. Go get a cortisol check done and maybe this will help. Usually if there's Cushings going on by itself its from the pituiatary in the brain. Maybe you should check in with an endocrinologist.
    Anonymous 42789 Replies
    • February 6, 2007
    • 05:17 PM
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  • Your symptoms sound VERY typical of Cushing's. Have your feet or hands grown at all? How about height? I would suggest getting a 24 hour UFC done, that is the best screening test for excess Cortisol. Also, a GH and IGF-1 would be helpful, excess Growth Hormone can have symptoms like Cushing's.
    girlfromipanema 12 Replies
    • February 8, 2007
    • 03:59 AM
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  • Hi, Really sorry to hear you are so unwell. It does sound like Cushings. I have hypopituitarism, the opposite to what you might have. I am involved with the support group But please do not PANIC. First do get cortesol tests, that will tell you if you have it or not. If not, please do pursue it!!! If yes, at least they will take you seriously at last!!! Took me over twenty years to get diagnosed. I have been lucky enough to meet quite a few people with Cushings and although it does take awhile, most of them the treatments given now very effective. They are not a cure and some people living with Cushings , do end up hypot, really it is a matter of getting the balance right. After a few disagreements with my endo, I feel better now than I can remember. I do wish you well and am thinking of you.
    Wrong diagnosis 1 Replies
    • February 8, 2007
    • 08:33 PM
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  • Hi Jen in NJ, HAve you been tested for Lyme and other tick infections?? Undx'd it can cause Cushing / Adrenal/ Thyroid problems. Lyme can mess up the cortisol levels. I am in NJ too, and its crawling with Lyme and its co- infections. After 20 yrs, Its now been confirmed that I have it after yrs of misdx's and lots of suffering. Check out www.lymenet.org its in NJ. Hope you feel better soon.
    Anonymous 42789 Replies
    • February 20, 2007
    • 01:32 PM
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  • Hi Jen:I'm not sure where you are but there is a doctor named Bill Ludlam who specializes in answering the questions that you are having. He is located in Seattle Washington at Swedish hospital.He says there is a thing called cyclical Cushings that can be hard to pin down, so even if you get a lot of the tests that these folks are mentioning, you may get false negatives. It would also help you to get an MRI of your brain done to see if you have a pituitary tumor or not, as this is the only way to have Cushing's (that is my understanding).I'm not sure what kind of medical insurance you have, but if you have good insurance, I would call Ludlam at Swedish.CaroleP.S. I was looking for the answer to a question I have when I saw what you had written. I was wondering if hypopituitarism can look like Cushing's. I just haven't been back to Luldlam yet.
    Anonymous 42789 Replies Flag this Response
  • Carole, how funny that you mention Ludlam. he is the dr who diagnoed my daughters Cushings from a Pituitary tumor. I was going to suggest that jen contact him. He is writing a paper on the different cases he has seen. I believe he works out of Swedish hospital there in Seattle. good luck jen Hi Jen:I'm not sure where you are but there is a doctor named Bill Ludlam who specializes in answering the questions that you are having. He is located in Seattle Washington at Swedish hospital.He says there is a thing called cyclical Cushings that can be hard to pin down, so even if you get a lot of the tests that these folks are mentioning, you may get false negatives. It would also help you to get an MRI of your brain done to see if you have a pituitary tumor or not, as this is the only way to have Cushing's (that is my understanding).I'm not sure what kind of medical insurance you have, but if you have good insurance, I would call Ludlam at Swedish.CaroleP.S. I was looking for the answer to a question I have when I saw what you had written. I was wondering if hypopituitarism can look like Cushing's. I just haven't been back to Luldlam yet.
    Anonymous 42789 Replies Flag this Response
  • Hi, I am 32 years old and have had so many symptoms of Cushings disease but was not easily diagnosed until a couple months ago...In the past 4 yrs my weight has increased 60ilbs, which doesnt seem much to the average person with cushings but it was strange to me, i have went from the wild party girl to a very depressed, emotional and irritable person, my body has changed and i have had every physical and mental symptom that cushings offers its affected, minus the stretch marks...so i was extremely pushy and aggressive with my dr's, even if they were not ready to diagnose me...trust yourself and your bodywhat i will tell anyone with any weird symptom you have, you have to know and understand your body and when it doesnt feel right, you have to be persistent until you feel satisfied with an answer...i have a pituitary adenoma of 8mm along with a cyst in my pituitary gland...i do not know what is next for me...but i now have some answersi dont know if its cushings or just fat for you, but you need to find out because the symptoms are horrible and really do get worse everyday...and in the mean time you have to push yourself to exercise, eat well and stay strong...if it is cushings my research has shown me that it can be fixed and there is a positive outcome, but nothing happens over night so u have to keep your body strong for recovery...i think the only reason i have gained 60ilbs compared to the other worse cases i have read up on is because i try hard to stay active, as tired and miserable as i am...i push and dont give up...at the end of the day no one cares or feels as bad as you do, TRUST ME i KNOW...it isnt easy or fun waiting for a dr to diagnose you or believe you...i was belittled, told i needed prozac and that i ate too much...anyway, my point is follow ur gut and ask questions, do ur research and get the test done!!!
    Anonymous 42789 Replies
    • October 30, 2010
    • 02:33 AM
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  • From all the reading I've been doing, it sounds a lot like Cushing's. Normal weight gain doesn't cause premature menopause; something hormonal does, and your symptoms are consistent with Cushings.
    Anonymous 42789 Replies
    • December 3, 2010
    • 08:42 PM
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  • Was it Cushing's?
    Anonymous 1 Replies Flag this Response
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