I have been really ill for a long time. My symptoms started ten years ago with severe swelling of the feet. It looks like lymphodema completely unrecogniseable as feet. The second symptom was dizzyness memory loss slight jerking of my head repeatedly for a few moments to which i was told stress i wasnt but thought my doc knows best then i gaiined a stone in weight in a month doc said i was 31 and should expect this? then another half a stone the next month to which he said i should stop eating fatty foods I was furious! Then my periods stopped (for 5 yrs) to which he said maybe it was that time in my life and offered no check. Then my left nipple startted leaking he sent me to hospital where the guy gave it a quick two minute look and said he could insert a needle to stop it leaking i declined but it seems hormonal because it doesnt do it all the time i get a distinct tingling and then it leaks it could be once a week or once a month. I then had my gallbladder removed due to pain but still get same symptoms my hair started to fall out losing the hair on my arms and my skin is thinning and silvery in colour. Swelling else where on my body my belly somedays is so hard and swollen i look 8 months pregnant other days it can look as if i lost two stone overnight! my speech is deteriorating and my language skills (i used to travel writing reports and fighting for other peoples causes and participating in conferences) Now i am seriously frustrated i cant absorb information like i did and I'm scared. My mood deteriorated and was chronically depressed with it all and now have complete apathy lack of energy and motivation. I also have joint pain in ankles and wrists and now and again pain under my arm and groin area all on the left and frequently urinating and have lost some bladder control my bowells are twice a day as opposed to three times a week. I was getting chest pains but an ultra sound showed it healthy and i had cortisol tests but the range was 150- 600 and i was 527 at ten past ten in the morning. I also have strange rage where i suddenly feel this heat rise fast through my body and i explode. I also ***k like im having a fit my limbs i cant control they ***k so bad. I have been offered anti depressents and im not sure that this will help as i was very happy when all this started? Its just the humiliation and rejection of the doctors that is tearing me apart i just want to be better.
They say things like just give me ur top five symptoms or which symptom do you want rid of or try swallowing air or are you forgetting all those biscuits you eat?? They really think im that stupid.
Are they right because i am so lethargic im ready to just accept this and curl up in a ball or is there something wrong with my hypothalamus?
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