Discussions By Condition: Endocrine conditions

5 years no diagnosis

Posted In: Endocrine conditions 3 Replies
  • Posted By: natalie
  • October 7, 2008
  • 01:06 AM

Hi Everyone,

My problems started the day my daughter was born. First migrains, they suddenly stopped, then occasional episodes of flushing, palpitations, dizziness, foggy brain. The episodes became more and more frequent until they are multiple times a day. We went down the MS path in the beginning then the allergy, then you're just crazy and here are some anti-deppressants(didn't help). So anyway, five years later here I am and just got some test results back that show I have high DHEA, high 17-hydroxyprogesterone and borderline high testosterone. Anybody with any ideas?
Thanks for listening,
Natalie

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3 Replies:

  • Have you seen an endocronlogist? I would do a test for Addison's (ACTH urine test + blood work), check your potassium levels too. It's not too common, but my mother has it and it was very difficult to diagnosis.some doctors love to tell women that they are just depressed; I've been there too.hang in there - check out all autoimmune diseases, particularly addisons.
    latejuly 9 Replies
    • October 8, 2008
    • 02:52 PM
    • 0
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  • Thanks Latejuly! I am trying to schedule an appointment with an Endo. When I went last they tested me for pheochromocytoma which seemed to come out negative the Doc thought that I might be sightly hypothyroid and put me on meds that heightened all of my symptoms. I will definately look into Addisons. My symptoms are definately progressing. Maybe now there will be more clinical data to support it. Thanks for your support!
    natalie 8 Replies
    • October 9, 2008
    • 03:25 AM
    • 0
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  • Did you ever recieve a diagnosis? I have similar issues. They tested me for Congenital Adrenal Hyperplasia. I didn't have it, but some of the symptoms matched up. It's hard to diagnose. I have high Hydroxyprogesterone, high DHEA, low iron, etc. Started with childbirth also. I would be interested if you found a diagnosis.
    Anonymous 42789 Replies Flag this Response
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