Discussions By Condition: Ears, Nose, Mouth & Throat conditions

Twitches, Jolts, Jaw/Cheek Pain, Excess Saliva:

  • Posted By: Anonymous
  • February 11, 2009
  • 03:54 PM

Doctors haven't been able to diagnois me due to unusual symptoms. Is anyone familiar with these symtoms? at rest muscle twitches and body jolts, jaw-cheek pain, cold mouth, tingling tongue, excess saliva, and multiple joint-tendon popping and pain.

Sept 07 1'colon removed due to pre-cancerous mass (coincidense that the next problems start 2 weeks after surgury?? Doctors cannot relate the two)
Oct 07 stabbing/burning pain at base of skull with neck and shoulder pain that popped 300+ times a day for 4 months (tried with no luck: chiropractors, physical therapy, ibroprofen, hot and cold packs, physiatric dr gave oral steroid, neck x-ray normal, brain and neck MRI were normal)
Jan 08 to present - body jolts started (along with random screams, which happened hundreds of times a day and now only happens with the at-rest muscle twtiches and jolts), (EMG done on right arm was normal, tried chiropracter again, all blood work (including lymes 2 times) were normal, 2 more steroid shots - no help.)
Then the muscle twitches, involuntary movements, tongue tingling and jaw pain started (neurologist had me try neurontin=no help and did chest x-ray=normal, blood showed high inflammation which they retested with normal results months later)
Over 2008 I seen a couple neurologist who could not diagnois me. Oct 08, my knee started doing the exact same thing as my neck initially did (pop/pain hundreds of times a day with heat increasing pain), and has lasted the last 4 months. They say I have bursitis in knee but cannot get it in the neck. (This may or maynot have no impact on diagnois.)
I recently have also gotten excess saliva quite often, also a very cold tongue or mouth. Less severe is I also feel pressure in my ear(s) and have a soar heart sometimes. My doctor looked at ear and heart=normal. I have been taking Celexa for the two months to see if symptoms change which they have not - I tried telling them it wasn't physcological but have to prove it I guess.

I don't know if a ENT Dr would be a good idea. Maybe do a EEG? MRA? Spinal Tap? Other??

Dr. thinks its not Parkinsons because I am only 40 and I havent been rolling my finger/thumb together. They do not think it is Epilespy because when I have a body JOLT, it is only a second, I am fully aware of it, and it makes it wide awake, not sleepy. They do not think it is Tourettes since I have many other odd symptoms. They do not think it is nerve damage (not sure why - because thats what it sounds like to me).

Thank you for listening to my story and would appreciate any feedback you may have on a possible diagnois or what test to have done next.

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3 Replies:

  • Hi....you sound a bit like me with some of the things you're going through. I have ulcerative colitis, asthma, joint pain, back/neck problems, mouth issues as you explain, headaches, depression (am on Effexor XR 75mg), ulcerative colitis related liver disease (PSC), sensitivities , heart-like pains / flutters (have a heart murmur). I would suggest strongly that you get an appointment with a rheumatologist . I think you might benefit from being checked out regarding your autoimmune markers and the possibility of having Sjogren's or something along that line?Of course, you'd have to do the homework on it and convince your doctor that it could serve you well. k
    kwinzy 5 Replies
    • February 16, 2009
    • 04:59 AM
    • 0
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  • thank you for your reply. I have seen a rhemotologist who "supposedly" ruled out any diseases he works with. I have read up on colitis (but it doesn't seem to matter what I eat and how it affects me) and when I read on Sjogren's, my mouth (and eyes) water alot, so that didn't seem to match up either. Thank you for your input!
    Anonymous 42789 Replies
    • February 16, 2009
    • 03:19 PM
    • 0
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  • May 2009 - I was diagnoised with Cushing's Disease.(high coritsol level - pituitary gland tumor)Some of my symptoms were typical, many are not.
    Anonymous 42789 Replies Flag this Response
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