I am so glad I came across this forum. I thought I was the only person to have this problem! I have had it now for about a year and it's driving me mad.
My doctor puts it down to stress and I am so fed up with that diagnosis.
From time to time (though I have it more than I don't have it), my tongue gets really painful, always down the left hand side where i have had teeth out (so I am not biting on it). It gets raised red lumps, often one white lump amongst them and is so, so sore. At the same time the papillae on the top of my tongue often get raised also. It feels like my whole left cheek should be swollen when I look in a mirror, but it isn't. Sometimes it goes away for a short while, then suddenly flares up and I dont know why.
I gave up smoking thinking that would help but it had little effect, so I think that altho smoking may irritate the condition it does not cause it.
I have suspected food allergies (pasta being one) but my doctor said "if you were allergic to wheat you would have known long before now" (I am over 50), so denied my request to be tested. I am considering private allergy testing now as I am at my wits end with this and in pain today as I type this. I don't think anyone who hasn't experienced this has any idea how bad this can be.
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