Discussions By Condition: Ear conditions

retracted ear drum

Posted In: Ear conditions 5 Replies
  • Posted By: Anonymous
  • February 20, 2007
  • 02:17 AM

My son has had fluid problems in his ear since birth. He has already had 3 sets of ear tubes, the last set in Aug. In Jan, his ENT sent us to CHOP as he couldn't do any more for him. The specialist at CHOP said his left ear drum is severely retracted and the tube from Aug had fallen out. He is not even sure he can get another tube in. If we do not reverse this, it can lead to major complications besides just hearing loss. Their office sees only a small percentage of children in this situation. I am looking for advice and assistance. I want to find the Best of the Best in the US to treat him. How do I find this out? I want to find specialist who sees this all the time, not a small %.

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5 Replies:

  • so dame sorry to hear this i wish soooooo much i could help but all i can say it i wish you all the very best :(
    jaycob 6 Replies
    • February 25, 2007
    • 06:40 AM
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  • here is a resource for finding a doctor (important)http://www.castleconnolly.com/and something I found on another thread that may help:http://www.earpopper.comReply With QuoteHope it helps
    Anonymous 42789 Replies Flag this Response
  • My son has had fluid problems in his ear since birth. He has already had 3 sets of ear tubes, the last set in Aug. In Jan, his ENT sent us to CHOP as he couldn't do any more for him. The specialist at CHOP said his left ear drum is severely retracted and the tube from Aug had fallen out. He is not even sure he can get another tube in. If we do not reverse this, it can lead to major complications besides just hearing loss. Their office sees only a small percentage of children in this situation. I am looking for advice and assistance. I want to find the Best of the Best in the US to treat him. How do I find this out? I want to find specialist who sees this all the time, not a small %.My daughter is having the same problem. She has already had tubes twice, adenoids removed & a graft done to close a perforation on her eardrum. Now, her ENT says her eardrum is retracted badly & he wants to try to put a tube in to see if that helps. If not, she will be referred to another ENT to do a different type of graft. So worried! I absolutely hate having her put to sleep. Have you had any success w/ your son?
    Anonymous 42789 Replies
    • November 17, 2009
    • 03:01 PM
    • 0
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  • I am 25 and have had ear problems my entire life, 9 sets of tubes and adenoids removed twice. I have a had a retracted eardrum for years, they used a tube to try to correct it but it eventually came out. However, I will say that it worked well as a temporary solution and that I am not having a lot of problems with my ears themselves other than hearing loss that will continue due to the deterioration of my tympanic membrane/eardrum. I do not wish to minimize your concern about your son's condition by saying "I have the same problem and he will be fine", it is important for your son to continue receiving treatment if it is available. I find seeing my ear doctor (otolaryngologist) or going to hospitals very stressful because of my experience, so I feel it important to offer emotional advice, do not encourage the hope that he will "grow out of this" or "everything will be ok" these phrases can become painful after years of frustration. Listen carefully to how your child feels about their doctor, I've had mine for about 12 years and I am often frustrated with him. It is a long list, and I'm not here to complain about my issues but hoping to guide you with yours. If you have insurance, contact your provider for a list of audiologists and/or otolaryngologists(aka ear nose and throat doctor), this may be an agonizing process, but hopefully CHOP can contact dr.s with "red tape" and get your son in for an appt as soon as possible. While I have personal problems with my current doctor, at least he has seen a retracted eardrum before. His name is Thomas Willcox at Jefferson hospital, 925 Chestnut St, there are several other doctors at that location, but he is the only one I have seen. As far as I know they are covered by Aetna, and some Blue Cross/Blue Shield policies.
    Anonymous 42789 Replies
    • February 6, 2010
    • 04:13 AM
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  • Because of 30 yrs experience with ear problems/gromets with my 4 children, I now know it is all caused by intolerance to dairy products (cows milk, cheese, yoghurt, chocolate, icecream) Please try using goats/soy milk instead, and hopefully you will find the ear problems disappear. It worked overnight for my kids.
    gypsygirl 18 Replies
    • December 25, 2010
    • 03:50 AM
    • 0
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