Discussions By Condition: Digestive conditions

nobody really knows

Posted In: Digestive conditions 2 Replies
  • Posted By: green eyes dragon
  • November 24, 2006
  • 09:03 AM

hi people out there, this is my first time writing to the web in any form so i apologise if i make any mistakes .Im a 35 yr old mum of 3 aged 12,8,&2.In the past 4 yrs my life has been turned upside down. So far a array of specialists have decided that I have the worst reflux in australia(GERD),hiatus hernia, gastroparesis,raynards, von willibrand blood disease (also rh neg),barretts oesophagus,in the past ive had endometriosis,there has also being queries of me having either scleroderma or CREST, or SMA-superior mesenteric artery syndrome,I;m also getting unusual reading in only 1 blood test my ANA is positive with a low titre 1:80 speckled pattern. my iron has been on low for awhile now. one gastro specialist told me that i didn;t really fit into any catagory so he made up a name for my condition he calls it global upper gastroeosophageal dysmotility with possible conective mussle type disease. I have being going for tests since july 2005 and have another colonoscopy due in dec just in time for xmas. Is there any one similar to me out there cause I feel like no one can really understand what it is that i go through:eek:

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2 Replies:

  • Hi Green Eyes Dragon,How about start from scratch and tell of your symptoms, and not worry for the time what you have been diagnosed with just in case you have been misdiagnosis and you don’t really fit half the symptoms described for the conditions by the doctors. For example, I was suspected of having Cushing’s Syndrome, but I didn’t think I had severe or enough symptoms for it, and low and behold I don’t have Cushing’s, but if I said I had the symptoms for the disease it wouldn’t have been totally correct and difficult for someone to ascertain what really might be happening.Look forward to hearing from you.Agape,searchingsam
    Anonymous 42,789 Replies
    • November 24, 2006
    • 09:27 AM
    • 0
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  • hi searchingsam,thanks for your reply you proved that im not writting to myself:D.ive written a little more about myself under the heading gastrointestinal since i think maybe im more under that heading please read what ive written there and if you have any questions please fire away from green eyes dragon
    green eyes dragon 3 Replies
    • November 24, 2006
    • 02:12 PM
    • 0
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