Discussions By Condition: Digestive conditions

nobody really knows

Posted In: Digestive conditions 0 Replies
  • Posted By: green eyes dragon
  • November 24, 2006
  • 01:14 PM

hi people out there, this is my first time writing to the web in any form so i apologise if i make any mistakes .Im a 35 yr old mum of 3 aged 12,8,&2.In the past 4 yrs my life has been turned upside down. So far a array of specialists have decided that I have the worst reflux in australia(GERD),hiatus hernia, gastroparesis,raynards, von willibrand blood disease (also rh neg),barretts oesophagus,in the past ive had endometriosis,there has also being queries of me having either scleroderma or CREST, or SMA-superior mesenteric artery syndrome,I;m also getting unusual reading in only 1 blood test my ANA is positive with a low titre 1:80 speckled pattern. my iron has been on low for awhile now. one gastro specialist told me that i didn;t really fit into any catagory so he made up a name for my condition he calls it global upper gastroeosophageal dysmotility with possible conective mussle type disease. I have being going for tests since july 2005 and have another colonoscopy due in dec just in time for xmas. Is there any one similar to me out there cause I feel like no one can really understand what it is that i go through:eek:

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.