Discussions By Condition: Digestive conditions

Constant Diarrhea, cramping, bloating, pain, etc...

Posted In: Digestive conditions 3 Replies
  • Posted By: kmeade17
  • August 19, 2011
  • 06:10 AM

I posted this on another forum here and still have had no replies, so I'm re-posting here in hopes that maybe this is a better place for it..

I am a 23 year old male who at this point is wanting to really give up trying. In 2006 I was having a lot of issues (Bloody loose stools, cramping, severe lower abdomen pains, lost 100lbs + in less than 4 months without trying, etc) was hospitalized for 8 days and after a lot of tests and a colonoscopy later i was diagnosed with what was written down as "Ulcerative Colitis vs Crohns". The doctor said he wrote it that way because it was def one or the other but i needed more tests to determine which one.

The colonoscopy showed that i had Inflammation and ulcers (some bleeding) pretty much throughout my GI tract from my stomach, small bowel, colon, etc. i had a slight thickening of the colon wall, as well as an H. pylori infection. ( the infection was treated, i was tested again and tested neg) The doctor only ended up taking the case, since he normally dealt with much older patients, because he said he had never seen it be as bad as it was, in a person as young as i was (we started when i was 17 trying to figure out what was wrong)

The symptoms were so bad i dropped out of college before the end of my first semester in 06 and because of that i was then dropped off of my Insurance which meant no more procedures or major tests. I was put on Pentasa (sp?) and stayed on that for 6 months as well as mild steroid treatments, it worked for about the first 3 and then was later changed to Asacol when the symptoms came back. I stayed on that (even though without insurance it was at least $400 a month) until about 2008 when I couldn't afford it anymore and stopped taking it all together. Thankfully, even though i stopped the meds the symptoms didnt return. When i spoke with my doctor he assured me that it was because I was in remission from thee UC/Crohns.

Around the beginning of 2009 the symptoms started to flare up again. First with the diarrhea, gas, bloating and cramping and then later the mucous in my stool returned. **note**i HAVE NOT had any blood in my stool since the initial flare up in 06** I went to see a new GI who did a C.oscopy and told me that I looked perfectly healthy. He said there was no thickening of my colon, no scar tissue from healed ulcers, no inflammation. Nothing. I got really upset, left the office, and didnt return.

I assumed ( in my arrogance) that this doctor must be wrong. The initial doctor that diagnosed me was not only a family friend for 10+ years, he had been practicing medicine for 30+ and was a highly respected GI. He couldnt have been wrong, so i got a second opinion, and a third, and fourth.

Today i got the results back from my "5th" opinion and his was exactly the same as the previous. Other than esophogitis (which i have always had a problem with stomach acid) i was perfectly healthy. THey have run blood tests, stool tests, urine tests, all kinds of tests. I have had cts, nuclear med scans (where they had me swallow something and watched it on like a live x-ray?), colonoscopy (s), endosco py(s), you name it...I'm easily 30k in debt and everything comes back negative. Ive been tested, and have gone on a gluten free diet, for celiacs and that is negative.

To this day i still have the same symptoms. Horrible diarrhea (I can use the bathroom between 10-15 times a day and if its not complete liquid its extremley loose), Yellowish stool (not constant goes between yellow and greenish), and it always has a lot mucous. I have horrible stomach cramps in my lower abdomen, almost like i really have to use the bathroom. I have them even when i dont have to use the bathroom though. I also have this constant "achy" feeling in my whole lower abdomen, almost like its raw. I like to explain it as " It feels like someone took a melon scraper to the inside of my stomach".

I dont know what is wrong with me, but i know it's not in my head. I have been put on anti-depressants and anti-anxeity meds off and on to make sure, but it cant be in my head. I am running out of options (well atleast i feel that way)... If anyone has any suggestions PLEASE reply


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3 Replies:

  • - "Yellowish stool (not constant goes between yellow and greenish)" = indicator of gallbladder dysfunction, seems like bile/gall goes through bowels and appears in thee stool.- If all your medical tests are normal (negative) it does not mean at all that your bowels working fine and you're alright.There is difference between tests' parameters within "normal range" and reality. It's easy to understand such simple thing reading this forum. But I'm afraid doctors do not read this forum, it's very convenient for them to tell that it's all "in your head" in spite of numerous symptoms.
    alltimatehelp 128 Replies
    • August 19, 2011
    • 06:42 PM
    • 0
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  • Ooh, ow! Wow! ...And I thought that I was bad off! I am only 3 years younger than you, also a male, and sustaining for a four month period now, frequent, explosive, and urgent watery diarrhoea. On average my stools are every 90 minutes (+-). Other minor symptoms are gas, abdominal pain, fatigue (from interrupted sleeping patterns, as of course my new 'fiancé' is the Great White Porcelein Thone)!I had seen my physician who for one thing ordered a stool specimen, and the results came back as negative for any pathogen (bacteria, viruses, parasite, amobea, etc). So this is a mystery both for me and my physician. However, he did state that at first he suspected IBS (Irritable Bowel Syndrome) but the symptom pattern is not quite matching. However only lately, there is a consensus that I may have what is a rare diarrhoeal disease called Brainerd diarrhoea (named after Brainerd, Minnesota, where the first cases began in 1983). Fortunately it is self-limiting, as no terminal cases have been found. The unfortunate thing is that as I have already sustained a third of a year, this could go on for an 'indefinite' number of months or years! Hopefully I can get over with this tomorrow, it would be so nice.Thus you have my sympathies, as though my situation is not as dramatic with your blood in stool situation, ant least I am fortunate not to have ever presented any blood in my 'organic faucet'! I do hope you can recover asap. (Also so do I for myself as well)! No fun! Missing out on Iron Maiden! Oh well!
    Hasmenés Fiú 2 Replies
    • August 16, 2012
    • 04:47 AM
    • 0
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  • I have pretty much the samething but my pain is upper stomach. And I have had doctors tell me it's Colitis and one tell me it's Corhns and then another tell me it's either. I can't get a answer and as fraustated as you are. Every test I have had told me nothing is wrong which is bs, Mine's been going on for 19 months and i got till feb till I'm off my dad's insurance. I wish you the best of luck. Wish I could give you an answer. Do you have your gallbladder?
    lmc21787 2 Replies
    • September 8, 2012
    • 01:53 AM
    • 0
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