Discussions By Condition: Digestive conditions

Can anyone help my sister after 2 years of agony?

Posted In: Digestive conditions 8 Replies
  • Posted By: helpcindy
  • December 30, 2008
  • 10:44 PM

My sister wanted me top post this for her. She has been to every doctor you can think of and had numerous tests and they can’t find out what is wrong with her. For the past 2 years she has had trouble with keeping food down. When it comes up, no matter how long after she has eaten it is as if it has just been chewed, not digested at all. She has heartburn, constantly burps, and hears ‘burping sounds’ coming loudly from her stomach all the time. She said when she first started having problems it felt like something was stuck in her throat, but now this feeling has moved down more towards her stomach.. She said it doesn’t feel like food reaches her stomach, and feels like it is always getting stuck somewhere. Even if she doesn’t eat she still throws up acidy, yellow, bitter, stuff, Sometimes it has a taste similar to soap. She said it doesn’t have the smell that puke usually has. All foods come back up, but, some in particular that aggravate it are- caffeine, coffee, pop, etc, nuts, When all of this first started 2 years ago after throwing up a bunch of dark, brown stuff gushed out. It just did that for awhile, but not now. Through all of this she lost just a little weight, but can’t understand if she can’t keep anything down why she still has the extra weight she does have.
Her bowel habits are not normal like they used to be. She frequently has diarrhea, but not severely. Somewhere between normal and thin.
She doesn’t know if this is related, but lately has had back pain, dark, strong, cloudy, urine.
She had her gallbladder removed several months ago, but that didn’t help any of her symptoms.
They’ve run all kinds of tests including an esophageal manometry procedure, a lower esophageal body study, a barium tablet and barium esophagram, a hida scan for her gall bladder some kind of test that starts with IGA (?Something), an endoscopy, an EGD procedure, x-rays, a gastric emptying scintigraphy, etc…
She does smoke, takes anti-depressants, and takes Nexium, which helps the heartburn somewhat.
It’s hard to write for someone else, and I’m just going by what she told me over the phone. She’s very desperate and would appreciate any help anyone has. Thanks so much.

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8 Replies:

  • 1st of all i am no doctor ! Speaking from experience i have suffered with the same kind of thing for the last two years! sometimes i walk around because the pain is that bad. I find it very worrying that they can not find anything wrong. some members of my family are the same aswell. Getting infomation:On this website there are videos relating to heartburn and the GI tract that if she watches she may understand more - because i did when i wacthed them. at the bottom of where you will find the videos there are videos on heartburn medication! Dont give up !Ive been to the doctors and iva had all kinds of excuse such as not eating regularly enough, and needing to get a bra properly fitting. suggestions:eat regular and change life style habbits - they explain that on the videos on this website i mentioned such as not laying down 3 hours after eating etc.the sphincter muscle of the stomach that opens when food goes down (and is ment to close when food has been eaten) could be weak and is not closing for what ever reason. eating greasy foods, chocolate and caffine are all causes of this!they tested me for stomach ulsers which is not major or uncomfortable at all: you breathe into a tube. wait ten minuets and take an antacid solution that they give you to drink, and breathe into another tube.:) hope i helped and good luck......... :) let me know any more infomation if you have it can i also please ask:does it get worse with foods such as bread? pasta? potatoe?does it get worse with stress?has the pain woken her up in the night before?
    STUDENTNURSEAIMEE 15 Replies
    • January 11, 2009
    • 05:05 PM
    • 0
    Flag this Response
  • My sister wanted me top post this for her. She has been to every doctor you can think of and had numerous tests and they can’t find out what is wrong with her. For the past 2 years she has had trouble with keeping food down. When it comes up, no matter how long after she has eaten it is as if it has just been chewed, not digested at all. She has heartburn, constantly burps, and hears ‘burping sounds’ coming loudly from her stomach all the time. She said when she first started having problems it felt like something was stuck in her throat, but now this feeling has moved down more towards her stomach.. She said it doesn’t feel like food reaches her stomach, and feels like it is always getting stuck somewhere. Even if she doesn’t eat she still throws up acidy, yellow, bitter, stuff, Sometimes it has a taste similar to soap. She said it doesn’t have the smell that puke usually has. All foods come back up, but, some in particular that aggravate it are- caffeine, coffee, pop, etc, nuts, When all of this first started 2 years ago after throwing up a bunch of dark, brown stuff gushed out. It just did that for awhile, but not now. Through all of this she lost just a little weight, but can’t understand if she can’t keep anything down why she still has the extra weight she does have. Her bowel habits are not normal like they used to be. She frequently has diarrhea, but not severely. Somewhere between normal and thin. She doesn’t know if this is related, but lately has had back pain, dark, strong, cloudy, urine. She had her gallbladder removed several months ago, but that didn’t help any of her symptoms. They’ve run all kinds of tests including an esophageal manometry procedure, a lower esophageal body study, a barium tablet and barium esophagram, a hida scan for her gall bladder some kind of test that starts with IGA (?Something), an endoscopy, an EGD procedure, x-rays, a gastric emptying scintigraphy, etc… She does smoke, takes anti-depressants, and takes Nexium, which helps the heartburn somewhat. It’s hard to write for someone else, and I’m just going by what she told me over the phone. She’s very desperate and would appreciate any help anyone has. Thanks so much.Hi,Have you looked into any problems with her spleen or her pancreas? Sounds like you have not had her levels checked for problems with the pancreas or spleen...You are welcome to contact me if you have more questions...Good luck to you...I have been in pain for years and have had endless trouble getting a diagnosis that was correct and helped me live in less pain...Seems like we pay these docs a lot and they don't seem to be able to figure out what is wrong with us if we don't fit a certain criteria...
    furfly 2 Replies Flag this Response
  • I'm so sorry to hear your sis is suffering so badly and with no diagnosis. I wish I had some kind of magic answer but I really don't, I really just wanted to let your sis know she's not alone in getting no diag. and no help. Please tell her there are so many of us out here suffering with no name and often the wrong treatment if any. It would seem after so many test these doctors would have some sort of an idea wouldn't it. You are so very right when it comes to doctors to! We not only pay them we pay them well and for what. It's a rare thing to find a good doctor but tell your sis not to give up there are still a handful of great doctors who really do care about their patients! I will add her to my research and if I run across anything that sounds helpful I'll be sure to let you know. If your sis is like most of us ANY thoughts or ideas are worth looking into!Good luck to you and your sis!May God bless and keep you both
    klaritydawn 20 Replies Flag this Response
  • I am so sorry you're going through this, I've been there with digestive and gastrointestinal problems. It's possible she could have parasites, leaky gut, food intolerance and/or severe acid reflux. Since, for some reason, I cannot post a link to my blog here, I'll copy and paste some information for you. Leaky Gut So far, I’ve talked about parasites, food allergies and the benefits of digestive enzymes. Now, it’s time to talk about something called leaky gut syndrome. Why all this focus on digestive health? Because the digestive and immune systems are so closely linked! Many autoimmune disorders have been traced back to increased gut permeability (leaky gut). Just what is leaky gut? In a person with leaky gut, the stomach lining is more porous than it should be, allowing protein molecules to slip through the gut and enter the blood stream where it causes an autoimmune response. What causes leaky gut?Prolonged/chronic antibiotic useParasitesFood allergies/intoleranceLow stomach acidFood additives and preservativesAlcohol consumptionCaffeine consumptionOral contraceptivesHow can leaky gut be treated?ProbioticsDigestive enzymesFiberHerbsProbiotics are live, active cultures found in yogurt, kefir and tempeh. They are the “friendly bacteria” that protect your body from invading organisms, break down food and produce vitamins in the intestinal tract. You may be thinking, “Okay, I can just eat more yogurt then, right?”Not really. There aren’t enough live, active cultures in yogurt to give you the type of benefit you’d need to begin healing leaky gut and its related autoimmune effects. It is recommended that you supplement your diet with probiotics containing 1-20 billion CFUs (Colony Forming Units). Use a probiotic that requires refrigeration or is ‘shelf-stable’ to ensure your body is receiving an optimal dose of these live, active cultures. Probiotic supplementation has been known to not only improve proper absorption of nutrients and help heal leaky gut; it has also been linked to helping improve symptoms of those who suffer with irritable bowel syndrome, inflammatory bowel disease, ulceritive colitis, high cholesterol, high blood pressure and inflammation. It improves immune system function, prevents infection and has even been touted as an anticarcinogenic (anti-cancer). Caution: Start slow with probiotics. Begin with a dose of 1-3 billion CFUs once per day at first, and then gradually increase your dosage based on its effect on your symptoms. Some people will notice ‘die off’ symptoms similar to those being treated for parasite infection. Those symptoms could be diarrhea, headache, bloating and gas as toxins are expelled from the body. This is temporary and a part of the body’s healing process. Lactose intolerant people and vegetarians should use a probiotic that is rice-based. If you have pancreatitis, consult your doctor before using probiotics. It is advisable to consult your healthcare practitioner before adding probiotics or other supplements to your diet. Digestive Enzymes Fiber is a very important element in the digestive process that is missing from today’s high-fat, sugary, processed diet. Few people get their recommended daily serving of fruits and vegetables. Therefore, it is important to add this essential ingredient into our diets through a bulk fiber supplement. Bulk fiber acts as a sponge, which absorbs waste, water and toxins in the intestine. This helps form a soft, bulky stool that can be then quickly and smoothly eliminated from the body. This is especially essential for those with leaky gut and related autoimmune disease as those with these conditions produce far more toxins in the body than healthier individuals. A good bulk fiber I’ve used for years is called psyllium fiber. It can be taken mixed with water or in tablet form. Psyllium fiber helps to lubricate and heal damaged intestinal walls. There are three herbs I have personally used for my digestive health. Those are turmeric, gentain root and ginger. Turmeric acts as an anti-inflammatory and helps strengthen the intestinal walls, decreasing gut permeability. Gentain root promotes the production of gastric juices and bile. Ginger also aids in digestion by stimulating bile flow and helps relieve bloating and flatulence. If you’ve been suffering with autoimmune-related health problems, leaky gut may be the source. Help reverse the effects and you’ll discover a whole new world of good health! Parasites Do you suffer from any of the following symptoms?Chronic diarrhea/and or alternating with constipationMultiple food allergiesChanges in appetiteSudden weight lossInsomniaAnxiety/IrritabilityBrain fogBloatingMuscle painSore intestinesGurgling intestinesAnal itchingYeast infectionsItching on the soles of the feetFowl-smelling gasDizzinessNausea/vomitingAnemiaConjunctivitisPalpitations (indicates hookworms)Coughing bloody sputum (in some cases)Then you might have parasites. According to research, over 50% of Americans are infected with some type of parasite. Not only can parasites be picked up from eating undercooked meat, walking barefoot in gardening soil and sexual contact, they can also be transmitted through your pets, a mosquito bite (they carry dog heartworm) or simply by breathing or drinking tap water! In other words, it’s very easy to get them! So how can you get rid of them? The following are the most effective natural methods for getting rid of parasites:Black Walnut HullsWormwoodClovesCaprylic AcidGrape Seed ExtractPau D’ArcoMale FernGarlicCranberry PowderPumpkin SeedsFennelSageThymeThe three most important methods are the first three, Black Walnut Hulls, Wormwood and Cloves. Black Walnut Hulls oxygenates the blood, which helps kill parasites, and acts as a laxative to help expel the worms from the body. Wormwood asks as an anesthetic to the worm, which helps loosen its grip on the intestines so that it can pass from the system. Cloves are antibacterial, antiparasite and antifungal and are most effective when fresh. The parasites are gone. Now what? Now it’s time to help your body heal. Introduce a good probiotic to your diet (live acidophilus requiring refrigeration is best) to help rebuild healthy intestinal flora. Turmeric is also useful in this. Use a bulk fiber (such as psyllium) to flush wastes and toxins left from the die-off of parasites. Milk thistle is good for healing and rebuilding the liver and pure aloe vera juice will soothe the irritated digestive tract. Caution:You may experience “die off” or flu like symptoms such as fatigue, brain fog, diarrhea, chills, fever, body aches and excess mucus in the nose and chest as your body releases toxins. This is temporary and part of the healing process. Start off slowly, with the lowest dose of the remedy/remedies to see how your body will respond. If you have a serious medical condition, consult your healthcare provider before embarking on a parasite cleanse.
    awakeningspirit 10 Replies Flag this Response
  • I just posted a reply that would have helped you and it wasn't allowed to post because it had links and I can't contact you privately or give you my email address. I don't know what to do. I don't like this website. I'm so sorry. I'll try this as a last-ditch effort I told you I was sick dot com. Bless you.
    awakeningspirit 10 Replies Flag this Response
  • I just posted a reply that would have helped you and it wasn't allowed to post because it had links and I can't contact you privately or give you my email address. I don't know what to do. I don't like this website. I'm so sorry. I'll try this as a last-ditch effort I told you I was sick dot com. Bless you.Hello..... I'm so sorry that happened to you. It's not the first time someone had a link in a reply to me and they wouldn't let it go through. So....there must be a way to chat that's not on this forum right? Hmmm....So it looks like something is wrong with your sis?? I hope she's been able to get some answers? Let me think about this for a bit and see if we can find a way to chat.Bless you right back!!! Thank you for going out of your way to try and contact me. We both know to be here on this forum means we are desperate for help so I'm awful sorry for whatever is going on with you or your sis. I'm going to read your post now....Blessings,Christa
    klaritydawn 20 Replies Flag this Response
  • My sister wanted me top post this for her. She has been to every doctor you can think of and had numerous tests and they can’t find out what is wrong with her. For the past 2 years she has had trouble with keeping food down. When it comes up, no matter how long after she has eaten it is as if it has just been chewed, not digested at all. She has heartburn, constantly burps, and hears ‘burping sounds’ coming loudly from her stomach all the time. She said when she first started having problems it felt like something was stuck in her throat, but now this feeling has moved down more towards her stomach.. She said it doesn’t feel like food reaches her stomach, and feels like it is always getting stuck somewhere. Even if she doesn’t eat she still throws up acidy, yellow, bitter, stuff, Sometimes it has a taste similar to soap. She said it doesn’t have the smell that puke usually has. All foods come back up, but, some in particular that aggravate it are- caffeine, coffee, pop, etc, nuts, When all of this first started 2 years ago after throwing up a bunch of dark, brown stuff gushed out. It just did that for awhile, but not now. Through all of this she lost just a little weight, but can’t understand if she can’t keep anything down why she still has the extra weight she does have. Her bowel habits are not normal like they used to be. She frequently has diarrhea, but not severely. Somewhere between normal and thin. She doesn’t know if this is related, but lately has had back pain, dark, strong, cloudy, urine. She had her gallbladder removed several months ago, but that didn’t help any of her symptoms. They’ve run all kinds of tests including an esophageal manometry procedure, a lower esophageal body study, a barium tablet and barium esophagram, a hida scan for her gall bladder some kind of test that starts with IGA (?Something), an endoscopy, an EGD procedure, x-rays, a gastric emptying scintigraphy, etc… She does smoke, takes anti-depressants, and takes Nexium, which helps the heartburn somewhat. It’s hard to write for someone else, and I’m just going by what she told me over the phone. She’s very desperate and would appreciate any help anyone has. Thanks so much.Hey there.... I'm sorry I thought I'd responded to you but I guess not because I don't see it or it didn't go through or something. At any rate....I don't know a lot about the tummy issues other than my daughter has some serious issues as well. The One thing I do recognize is the back pain and the dark cloudy urine....That Sounds Like a Kidney, Bladder, Urinary Tract infection... I only know this because my daughter has passed around 50 kidney stones, had nonstop kidney, bladder, or urinary tract infections.... That back pain could be her kidneys and the dark, cloudy urine certainly is indicative of an infection. Is your sis swelling? I mean is she sure the weight she's not losing isn't fluid retention or something? Same thing happened to my daughter there as well. I sure hope she gets some help SOON! I just hate to hear how everyone suffers so and cannot seem to get the help they so desperately need.God bless
    klaritydawn 20 Replies Flag this Response
  • I am so sorry you're going through this, I've been there with digestive and gastrointestinal problems. It's possible she could have parasites, leaky gut, food intolerance and/or severe acid reflux. Since, for some reason, I cannot post a link to my blog here, I'll copy and paste some information for you. Leaky Gut So far, I’ve talked about parasites, food allergies and the benefits of digestive enzymes. Now, it’s time to talk about something called leaky gut syndrome. Why all this focus on digestive health? Because the digestive and immune systems are so closely linked! Many autoimmune disorders have been traced back to increased gut permeability (leaky gut). Just what is leaky gut? In a person with leaky gut, the stomach lining is more porous than it should be, allowing protein molecules to slip through the gut and enter the blood stream where it causes an autoimmune response. What causes leaky gut?Prolonged/chronic antibiotic useParasitesFood allergies/intoleranceLow stomach acidFood additives and preservativesAlcohol consumptionCaffeine consumptionOral contraceptivesHow can leaky gut be treated?ProbioticsDigestive enzymesFiberHerbsProbiotics are live, active cultures found in yogurt, kefir and tempeh. They are the “friendly bacteria” that protect your body from invading organisms, break down food and produce vitamins in the intestinal tract. You may be thinking, “Okay, I can just eat more yogurt then, right?”Not really. There aren’t enough live, active cultures in yogurt to give you the type of benefit you’d need to begin healing leaky gut and its related autoimmune effects. It is recommended that you supplement your diet with probiotics containing 1-20 billion CFUs (Colony Forming Units). Use a probiotic that requires refrigeration or is ‘shelf-stable’ to ensure your body is receiving an optimal dose of these live, active cultures. Probiotic supplementation has been known to not only improve proper absorption of nutrients and help heal leaky gut; it has also been linked to helping improve symptoms of those who suffer with irritable bowel syndrome, inflammatory bowel disease, ulceritive colitis, high cholesterol, high blood pressure and inflammation. It improves immune system function, prevents infection and has even been touted as an anticarcinogenic (anti-cancer). Caution: Start slow with probiotics. Begin with a dose of 1-3 billion CFUs once per day at first, and then gradually increase your dosage based on its effect on your symptoms. Some people will notice ‘die off’ symptoms similar to those being treated for parasite infection. Those symptoms could be diarrhea, headache, bloating and gas as toxins are expelled from the body. This is temporary and a part of the body’s healing process. Lactose intolerant people and vegetarians should use a probiotic that is rice-based. If you have pancreatitis, consult your doctor before using probiotics. It is advisable to consult your healthcare practitioner before adding probiotics or other supplements to your diet. Digestive Enzymes Fiber is a very important element in the digestive process that is missing from today’s high-fat, sugary, processed diet. Few people get their recommended daily serving of fruits and vegetables. Therefore, it is important to add this essential ingredient into our diets through a bulk fiber supplement. Bulk fiber acts as a sponge, which absorbs waste, water and toxins in the intestine. This helps form a soft, bulky stool that can be then quickly and smoothly eliminated from the body. This is especially essential for those with leaky gut and related autoimmune disease as those with these conditions produce far more toxins in the body than healthier individuals. A good bulk fiber I’ve used for years is called psyllium fiber. It can be taken mixed with water or in tablet form. Psyllium fiber helps to lubricate and heal damaged intestinal walls. There are three herbs I have personally used for my digestive health. Those are turmeric, gentain root and ginger. Turmeric acts as an anti-inflammatory and helps strengthen the intestinal walls, decreasing gut permeability. Gentain root promotes the production of gastric juices and bile. Ginger also aids in digestion by stimulating bile flow and helps relieve bloating and flatulence. If you’ve been suffering with autoimmune-related health problems, leaky gut may be the source. Help reverse the effects and you’ll discover a whole new world of good health! Parasites Do you suffer from any of the following symptoms?Chronic diarrhea/and or alternating with constipationMultiple food allergiesChanges in appetiteSudden weight lossInsomniaAnxiety/IrritabilityBrain fogBloatingMuscle painSore intestinesGurgling intestinesAnal itchingYeast infectionsItching on the soles of the feetFowl-smelling gasDizzinessNausea/vomitingAnemiaConjunctivitisPalpitations (indicates hookworms)Coughing bloody sputum (in some cases)Then you might have parasites. According to research, over 50% of Americans are infected with some type of parasite. Not only can parasites be picked up from eating undercooked meat, walking barefoot in gardening soil and sexual contact, they can also be transmitted through your pets, a mosquito bite (they carry dog heartworm) or simply by breathing or drinking tap water! In other words, it’s very easy to get them! So how can you get rid of them? The following are the most effective natural methods for getting rid of parasites:Black Walnut HullsWormwoodClovesCaprylic AcidGrape Seed ExtractPau D’ArcoMale FernGarlicCranberry PowderPumpkin SeedsFennelSageThymeThe three most important methods are the first three, Black Walnut Hulls, Wormwood and Cloves. Black Walnut Hulls oxygenates the blood, which helps kill parasites, and acts as a laxative to help expel the worms from the body. Wormwood asks as an anesthetic to the worm, which helps loosen its grip on the intestines so that it can pass from the system. Cloves are antibacterial, antiparasite and antifungal and are most effective when fresh. The parasites are gone. Now what? Now it’s time to help your body heal. Introduce a good probiotic to your diet (live acidophilus requiring refrigeration is best) to help rebuild healthy intestinal flora. Turmeric is also useful in this. Use a bulk fiber (such as psyllium) to flush wastes and toxins left from the die-off of parasites. Milk thistle is good for healing and rebuilding the liver and pure aloe vera juice will soothe the irritated digestive tract. Caution:You may experience “die off” or flu like symptoms such as fatigue, brain fog, diarrhea, chills, fever, body aches and excess mucus in the nose and chest as your body releases toxins. This is temporary and part of the healing process. Start off slowly, with the lowest dose of the remedy/remedies to see how your body will respond. If you have a serious medical condition, consult your healthcare provider before embarking on a parasite cleanse.Wow...that's a lot of information to take in isn't it. She does have many of these symptoms for sure and many she doesn't have. I will certainly look into all of this information and suggestions though. There are several members of my family on my mothers side with severe and even life threatening diseases regarding their intestines, colons etc. I'm just now piecing it all together though. I have acute and chronic pancreatitis and I certainly cannot drink alcohol due to all the medications I'm on. My 14mo. old sister almost died about 6yrs ago from two tumors one the size of a grapefruit and one the size of a baseball neither of which were picked up on repeated CT Scans and sonograms!! What the doctor kept seeing was a cyst the size of a quarter and he was being so cruel to my sister every time she came to the ER or his office. By the time he decided to open her one of the tumors had just burst filling her full of bile. They had to remove a bunch of her colon....I don't know it's just a mess of a story. Similar story with my aunt and my Grandma. Just believe there must be some kind of autoimmune disease that runs in our family. I'm making an appointment with a gastro. doctor asap. Thank you so much for all the information!!!Blessings,Christa
    klaritydawn 20 Replies Flag this Response
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