hi i have our baby boy with partial monosomy 21 and a ring 21 chromosome,he is now 6 months old,but has problem after problem since he was born,hes never taken to the bottle or even known how to feed or sleep,he has a ng feeding tube since he was born he is awaiting to go into hosp for the peg.he is so fussy and irritable all the time.now we live in uk and have been told he is only 1 in uk with this,now dont no if there is anyone outside of uk with same but could do with some answers or help,as noone nos here how to help him as they dont understand his chromosome problem,and i no he shouldnt be here with it.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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