Discussions By Condition: Congenital conditions

Mobius and Poland Syndrome

Posted In: Congenital conditions 26 Replies
  • Posted By: jbrown
  • December 14, 2006
  • 03:29 AM

Hi there,

I have unilateral aplasia of the Pectoralis Major, which sounds interesting but is surprisingly not. I don't have a left major pectoral muscle. I have been looking on the internet for information about this and have found some interesting things and would appreciate it greatly if anyone could help me answer some questions.

First of all, the only condition I have found to do with pectoral aplasia is Poland Syndrome, however this requires deformation of the hand also, which I don't have - thank goodness. Is my condition likely to be a variant of Poland Syndrome or is it something altogether separate?

And secondly, I also found that Mobius Syndrome is associated with Poland Syndrome and I have some of the symptoms of Mobius Syndrome though very mildly. I dribbled a lot as a child, I breath through my mouth a lot, have difficulty closing my mouth while eating, I have a mild lazy-eye (left) and my speech is quite unclear even though I have been to speech lessons. Though, once again thankfully - I have no trouble smiling.

Is it possible to have a very mild form of Mobius Syndrome?

If anyone has any ideas I would be interested in hearing your thoughts. Thanks, James.

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26 Replies:

  • Hi James,Am a male who has pectoral aplasia on the right side of my chest (which is most common with Poland Syndrome), and I am missing the sternum portion of the pectoralis on my right side as well (also symptomatic of Poland Syndrome). I do not have webbing or aplasia of any limbs (visibly). I don't think you have to have the hand deformity in order to have Poland's. I'm not sure if I definitely have it either, but I know my right deltoid muscle is significantly larger than my left to compensate for strength and I have hair growth only on the arm side of my armpit and on the inside of my right biceps where I don't have any on the left arm. I hope some of this stuff helps. Being fairly skinny, I have always had a complex about my physical appearance with my shirt off. But, we're both lucky that we don't have many other complications. I hope some of this helps. Take care.Mark
    Anonymous 42789 Replies
    • October 13, 2008
    • 00:12 AM
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  • Hi,I'm interested to learn more about Poland syndrome.I have a congenital missing Left Pectoralis Major and i too have a small nipple on the left side as well as a small amount of underarm hair on the (L) armpit.This was found early in my life and now i'm in my late forties.It has in no way held me back apart from being very self consious about my chest.I have been lucky in that i have been slim most of my life but as i have put on a few pounds, the lack of muscle is more emphasised.I have always done a manual job involving a lot of lifting,which has never been a problem until recently.I now suffer with back ache and have a slight curvature to the right in my spine and suffer with hip ache on my right side.My upper body muscle has always compensated on the right side and now wonder if i'm beginning to feel the effects of that lack of "Pec"??I'd be grateful to hear from anyone with the same condition or symptoms.Until today i had had never heard of Poland Syndrome and i'm not convinced that this is what i have??? look forward to hearing from you.....regards Ted
    THeath 1 Replies
    • October 22, 2008
    • 03:26 PM
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  • I recently foound out that i have herpes type 1 and 2, as child i had cold sores and high fever, but thought nothing of it. Now i'm in my ealy 20's and had a one time sexual experience with someone older, mid thirties. It was my first and only sexual incountre with anyone, he performed oral sex on me, and least to say i wasn't thrill of finishing the whole act so i stopped. he rubbed his private part down there etc, but that was it, he didn't penetrate, i was scared ****less. Surface to say we did not have sex, so i'm still a virgin. About 2yrs to the that day i had a cold sore and kept getting it, i did some research on the internet and found that it was associated with herpes. I went to get tested immediately and came out positive. i haven't told anyone in my family about this (ashame, because i'm always careful, still haven't had sex yet 21yrs, lol!!) anyway i was wondering if you can die from this, some sites said no, but.... Plus i seem to have a persistant stuffy noise, and light cough, please enlighten me and is there no cure for this
    kedisha 2 Replies
    • October 22, 2008
    • 03:52 PM
    • 0
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  • Hello Ted, I know what you feel, Im in my late 30's with the same problem but on the right side, except for the spine curvature, at least I dont think so, never asked a Doctor so not for sure, and this is the first time I have found this sydromes name, have you heard of any correction that can be done? Mikwil Hi,I'm interested to learn more about Poland syndrome.I have a congenital missing Left Pectoralis Major and i too have a small nipple on the left side as well as a small amount of underarm hair on the (L) armpit.This was found early in my life and now i'm in my late forties.It has in no way held me back apart from being very self consious about my chest.I have been lucky in that i have been slim most of my life but as i have put on a few pounds, the lack of muscle is more emphasised.I have always done a manual job involving a lot of lifting,which has never been a problem until recently.I now suffer with back ache and have a slight curvature to the right in my spine and suffer with hip ache on my right side.My upper body muscle has always compensated on the right side and now wonder if i'm beginning to feel the effects of that lack of "Pec"??I'd be grateful to hear from anyone with the same condition or symptoms.Until today i had had never heard of Poland Syndrome and i'm not convinced that this is what i have??? look forward to hearing from you.....regards Ted
    mikwil 2 Replies
    • November 12, 2008
    • 01:58 AM
    • 0
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  • hi everyone47yo male with an absent right pec major, tiny nipple on same side, minor lower rib asymmetry, minor abdominal hair asymmetry, arms and hands OK.Not good at doing bench presses. Not good at arm wrestling. Hopeless at tennisWhether this meets with a definition of Poland's Syndrome is really semantic. I haven't seen a firm definition differentiating Poland's syndrome, Poland's anomaly, Poland sequence, etc. The name really doesn't matterThe thing to do with this, guys, is wear it with pride. Go shirtless. Act like you don't care and people think you're James Dean. If they want to have a look, let 'em. It's endlessly amusing watching their faces as they try to steal a glance without you noticing.If you can, try to avoid getting surgery for just cosmetic purposes. Having cosmetic surgery proves that you were once worried enough about it to have cosmetic surgery. (Of course, true reconstructive surgery to address functional defects is another issue). But if you want to look normal all you have to do is act normal, which will actually make you look tougher than normal. How cool is that? Anyway, the cosmetic surgery available is not good enough to fix it properly, so why do it?BTW, just curious: are we all really slim as well? I'm really slim. Also, how many of us were adopted, or had a mother who underwent chorionic villus sampling at about week 6-7 of pregnancy, or experienced some other trauma at around that stage of pregnancy? Just curiousJohn in Australia
    Anonymous 42789 Replies
    • October 6, 2009
    • 02:38 PM
    • 0
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  • Hi All,I am a teenage female with absent right pec muscle, i have been diagnosed with polands syndrome by a specialist and I have no webing or hand deformity just the very uneven chest area. I have little to no strength in my right arm, i cannot do push ups although i am quite fit. i underwent many physical tests, i had to do pushups and my arm was trembling, i was unable to complete it.I am currently awaiting surgery to have a breast implant and i wear a prostheisis. I was bullied about it through my childhood as it was noticable even then, I am nervous about my surgery but i cannot wait.if there are any female's in australia who have the same problem could u please reply to this discussion.people with Polands syndrome, we are 1 in 100,000 people!-Kate
    Anonymous 42789 Replies
    • October 8, 2009
    • 11:22 PM
    • 0
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  • Hey everyone,I'm a 37 yo male missing my right pec muscle, or at least that's what I've been able to gather. I also have some asymmetry in my lower rib cage. I used to think my collar bone on my affected side was bent but now I think it just looks different because of the different musculature in that area.I don't have any of the hand webbing or aplasia associated with Poland's syndrome.I have been lucky in that cosmetically it's something folks only notice after it's pointed out to them. I'm neither thin nor overweight but have felt it's easier to spot when I've either been leaner or when I've been going to the gym regularly. In the latter case, I'd end up building up the other side, making the different more obvious.I don't have any significant impairments in terms of strength or mobility, but my right shoulder is noticably pulled forward - it looks like poor posture more than anything. I've found that this side is prone to aches and pains and rotator cuff injuries.The nipple on the affected side is the same as the right. The right side of my chest, however, has a bit less hair close to the armpit area. Armpit hair is the same both sides.I'm curious to know more about the inner structure of how my body is different. Can a healthy person (in Canada) just get an MRI of their body for the "fun" of it?Very informative reading your posts!
    Anonymous 42789 Replies
    • January 18, 2010
    • 04:57 AM
    • 0
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  • Hey everyone,I'm a 37 yo male missing my right pec muscle, or at least that's what I've been able to gather. I also have some asymmetry in my lower rib cage. I used to think my collar bone on my affected side was bent but now I think it just looks different because of the different musculature in that area.I don't have any of the hand webbing or aplasia associated with Poland's syndrome.I have been lucky in that cosmetically it's something folks only notice after it's pointed out to them. I'm neither thin nor overweight but have felt it's easier to spot when I've either been leaner or when I've been going to the gym regularly. In the latter case, I'd end up building up the other side, making the different more obvious.I don't have any significant impairments in terms of strength or mobility, but my right shoulder is noticably pulled forward - it looks like poor posture more than anything. I've found that this side is prone to aches and pains and rotator cuff injuries.The nipple on the affected side is the same as the right. The right side of my chest, however, has a bit less hair close to the armpit area. Armpit hair is the same both sides.I'm curious to know more about the inner structure of how my body is different. Can a healthy person (in Canada) just get an MRI of their body for the "fun" of it?Very informative reading your posts!I also have polands syndrome and Moebius Syndrome lucky me. My hand is deformed on the right side and my arm is small. I have the absence of the right peck. right Shoulder is small.My question here is i suffer from back pain in my lower back and upper back i believe this is caused by PS. Just wondering if anyone else has the same problem.
    Anonymous 42789 Replies Flag this Response
  • I also have polands syndrome and Moebius Syndrome lucky me. My hand is deformed on the right side and my arm is small. I have the absence of the right peck. right Shoulder is small. My question here is i suffer from back pain in my lower back and upper back i believe this is caused by PS. Just wondering if anyone else has the same problem. I too have polands syndrome, afected on the right side of my chest. I'm currently 28 and had a consultation at 20 to have reconstructive surgery. They had planned to move muscle from my lower back and place it on the chest. The surgery and recovery time would have been a long process and was on a temporary contract at work so couldn't afford the time off to have it done. I have a physical job which involves alot of manual handling and lifting in awkward positions, I have curvature of the spine and pins and needles to the right hand side of my spine between my shoulder blades along with a constant ache which is uncomfertable to sleep with. I'm currently having physiotherapy and having chiropractor treatment. The other day I had ultra sound treatment on my back which gives a feelings of pins and needles in the area where the instrument is put. On full power I could hardly feel it on my right side of my back which would suggest that I also am missing muscle from the right side of my back as well. I'm going to see specialist about it again to see if anything can be done, as I'm concerned about the quality of life I will have if I continue to do a physical job.
    richard214 1 Replies Flag this Response
  • I too have polands syndrome, afected on the right side of my chest. I'm currently 28 and had a consultation at 20 to have reconstructive surgery. They had planned to move muscle from my lower back and place it on the chest. The surgery and recovery time would have been a long process and was on a temporary contract at work so couldn't afford the time off to have it done. I have a physical job which involves alot of manual handling and lifting in awkward positions, I have curvature of the spine and pins and needles to the right hand side of my spine between my shoulder blades along with a constant ache which is uncomfertable to sleep with. I'm currently having physiotherapy and having chiropractor treatment. The other day I had ultra sound treatment on my back which gives a feelings of pins and needles in the area where the instrument is put. On full power I could hardly feel it on my right side of my back which would suggest that I also am missing muscle from the right side of my back as well. I'm going to see specialist about it again to see if anything can be done, as I'm concerned about the quality of life I will have if I continue to do a physical job.I am in the process of having physio at the moment. There has been some improvement. My legs are still very weak which also could be causing my back problems. Surgery isn't a option because i have had too much because of my Moebius and i don't want to go through it again. I don't do much lifting so i am pretty lucky there. I would love to have reconstructive surgery on my Polands but as i said before i don't want to go through it all again. I also have the problem with anesthetics because of my narrow pathways. They have to insert the tube with a camera while i am a wake. I don't know if this is a common problem with Polands but this is something richard214 you should be aware of and you should also make the anesthetists aware of it as well in case you have this problem as well. Because if the anesthetists isn't aware of the obstruction they can kill you. I was only lucky because i had the same anesthetist all the time. Before he had to use the camera it wasn't a big deal but it was getting harder for him each time and then finally he couldn't do it. So i had to come back a couple of weeks later where they did it while i was awake with the camera. They needed me a awake so i could guide in the tube.
    Anonymous 42789 Replies Flag this Response
  • I too have polands syndrome, afected on the right side of my chest. I'm currently 28 and had a consultation at 20 to have reconstructive surgery. They had planned to move muscle from my lower back and place it on the chest. The surgery and recovery time would have been a long process and was on a temporary contract at work so couldn't afford the time off to have it done. I have a physical job which involves alot of manual handling and lifting in awkward positions, I have curvature of the spine and pins and needles to the right hand side of my spine between my shoulder blades along with a constant ache which is uncomfertable to sleep with. I'm currently having physiotherapy and having chiropractor treatment. The other day I had ultra sound treatment on my back which gives a feelings of pins and needles in the area where the instrument is put. On full power I could hardly feel it on my right side of my back which would suggest that I also am missing muscle from the right side of my back as well. I'm going to see specialist about it again to see if anything can be done, as I'm concerned about the quality of life I will have if I continue to do a physical job.I am in the process of having physio at the moment. There has been some improvement. My legs are still very weak which also could be causing my back problems. Surgery isn't a option because i have had too much because of my Moebius and i don't want to go through it again. I don't do much lifting so i am pretty lucky there. I would love to have reconstructive surgery on my Polands but as i said before i don't want to go through it all again. I also have the problem with anesthetics because of my narrow pathways. They have to insert the tube with a camera while i am a wake. I don't know if this is a common problem with Polands but this is something richard214 you should be aware of and you should also make the anesthetists aware of it as well in case you have this problem as well. Because if the anesthetists isn't aware of the obstruction they can kill you. I was only lucky because i had the same anesthetist all the time. Before he had to use the camera it wasn't a big deal but it was getting harder for him each time and then finally he couldn't do it. So i had to come back a couple of weeks later where they did it while i was awake with the camera. They needed me a awake so i could guide in the tube.Attention mods. I have just registered please disregard last post. Sorry for the inconvenience.
    Anonymous 42789 Replies Flag this Response
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  • Hi KateI am a 37yr old female born without a left pec muscle. The affected arm is not straight when you hold it out, is slightly shorter than the other arm and my underarm hairs do not grow where they should grow.I used to do gymnastics to build the strength of my 'weaker' arm. However, I ended up having a much larger right arm as it seemed to compensate for it. When I was younger, I wanted to have breast implant as I was teased and of course it was hard with boyfriends. However, I never did. I have since had two babies and managed to breastfeed - the smaller nipple has actually helped me as I had two very premature babies and their mouths were too small for the normal size nipple!Today I wear a prosthesis and am mortified that the government does not give any rebate unless you have had a complete masectomy!! They need to be educated.I do not have any webbing and have been diagnosed with Polands Syndrome. Now that I have got older, I am finding it more painful to sleep on the 'weaker' side as my shoulder aches and I have lost a lot of strength in that arm - does anyone know what we can expect in the future?Cherie Hi All,I am a teenage female with absent right pec muscle, i have been diagnosed with polands syndrome by a specialist and I have no webing or hand deformity just the very uneven chest area. I have little to no strength in my right arm, i cannot do push ups although i am quite fit. i underwent many physical tests, i had to do pushups and my arm was trembling, i was unable to complete it.I am currently awaiting surgery to have a breast implant and i wear a prostheisis. I was bullied about it through my childhood as it was noticable even then, I am nervous about my surgery but i cannot wait.if there are any female's in australia who have the same problem could u please reply to this discussion.people with Polands syndrome, we are 1 in 100,000 people!-Kate
    Anonymous 42789 Replies Flag this Response
  • Hi KateI am a 37yr old female born without a left pec muscle. The affected arm is not straight when you hold it out, is slightly shorter than the other arm and my underarm hairs do not grow where they should grow.I used to do gymnastics to build the strength of my 'weaker' arm. However, I ended up having a much larger right arm as it seemed to compensate for it. When I was younger, I wanted to have breast implant as I was teased and of course it was hard with boyfriends. However, I never did. I have since had two babies and managed to breastfeed - the smaller nipple has actually helped me as I had two very premature babies and their mouths were too small for the normal size nipple!Today I wear a prosthesis and am mortified that the government does not give any rebate unless you have had a complete masectomy!! They need to be educated.I do not have any webbing and have been diagnosed with Polands Syndrome. Now that I have got older, I am finding it more painful to sleep on the 'weaker' side as my shoulder aches and I have lost a lot of strength in that arm - does anyone know what we can expect in the future?CherieWow, I didn't realise how common this problem is; I always thought I was the only one!I am a male, 39, missing a pec major on the left side. Slightly less hair on the left chest side and armpit. No diagnosis of any syndrome just a missing pec. I have full strength and am left handed. My left shoulder muscles, the frontal deltoids are more developed than the right. I am very self-conscious and think about it every day. I have had no plans to correct this as I've been told the results are quite poor.
    Anonymous 42789 Replies
    • August 20, 2010
    • 06:42 PM
    • 0
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  • I just discovered today that my 9 week old son may or may not be missing his left pectoral muscle. Is there anything that can be done at an early age to prevent injury or posture complications as a result? The doctor pointed out the asymmetry of his chest today and said he would re-check him again at 4 months, but I am curious about how it will affect him later in life.Wow, I didn't realise how common this problem is; I always thought I was the only one!I am a male, 39, missing a pec major on the left side. Slightly less hair on the left chest side and armpit. No diagnosis of any syndrome just a missing pec. I have full strength and am left handed. My left shoulder muscles, the frontal deltoids are more developed than the right. I am very self-conscious and think about it every day. I have had no plans to correct this as I've been told the results are quite poor.
    Anonymous 42789 Replies
    • November 29, 2010
    • 10:51 PM
    • 0
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  • Wow, I didn't realise how common this problem is; I always thought I was the only one!I am a male, 39, missing a pec major on the left side. Slightly less hair on the left chest side and armpit. No diagnosis of any syndrome just a missing pec. I have full strength and am left handed. My left shoulder muscles, the frontal deltoids are more developed than the right. I am very self-conscious and think about it every day. I have had no plans to correct this as I've been told the results are quite poor.Same story here...41 yr old male, missing right pec and asymmetric chest hair growth on right side as well. No noticeable differences elsewhere and otherwise 'normal' (whatever that means). Hasn't really affected me other than being self-conscious about it, especially at the pool/beach. I've considered a pec implant, though haven't spoken to a doctor. Anyone had experience with an implant?
    Anonymous 42789 Replies Flag this Response
  • Hi All,I am a 28 year old male with no left pectoral muscle. My left arm and shoulder has always been smaller though over the years i have built them up through going to the gym. I have over the years also developed a larger tricept on my left arm, which i think has occurred to compensate for my weaker left chest. Besides this everything seems normal.I actually went to see a Plastic & reconstructive surgeon today and he informed me of the Poland's Syndrome. After reading about this syndrome i am not entirely sure if it is what i have, though i suppose the most important consideration is what ill do about it now. I am considering having a custom implant inserted, has anyone had this operation performed?John from Australia makes some good points and i agree with you John! Though i do still feel that the surgery would be money well spent. Yes at the end of the day we should be happy with what we have, though i also believe we should always be working towards improving ourselves physically, personally and mentally.My advice to anyone with this or similar problems is do what you can yourself to correct the problem. eg go to the gym, by looking fit and healthy this will take the focus off your underdeveloped chest, make a padded insert to put under a singlet, to wear under your shirt, so your problem is not as noticeable. I have now achieved my fitnesss goals and am happy with my body image, i am also fully developed as a male. Do you think i should now go ahead with the plastic surgery. Your comments are welcomed.Ryan from Australia
    Anonymous 42789 Replies Flag this Response
  • Hey everyone I have got same problem. No Pec at left side. and compartivly less hair at left side of chest.I have read alot about pland syndrome and reconstructive surgery. can any one tell me Does implanted muscle grow with time???I was thinking to have surgery if it is so..... Waiting for reply......
    Anonymous 42789 Replies Flag this Response
  • Did you guys have the surgery? If anyone has any questions you can ask me, I had surgery in 2004. I had the back surgery where they transfer the muscle from your back and move it to the front. I also had a breast implant as I"m female.My surgeon was very good. He did the surgery endoscopically so there's harldy any scars. The muscle is also kept alive. I can ''move'' it. I have experienced some atrophy but I think that's because I don't work out. MY surgeon says if I work out more it won't happen. So in answer to your question yes it does grow with you but you have too make sure you exercise.
    Anonymous 42789 Replies Flag this Response
  • Hi All,I am a teenage female with absent right pec muscle, i have been diagnosed with polands syndrome by a specialist and I have no webing or hand deformity just the very uneven chest area. I have little to no strength in my right arm, i cannot do push ups although i am quite fit. i underwent many physical tests, i had to do pushups and my arm was trembling, i was unable to complete it.I am currently awaiting surgery to have a breast implant and i wear a prostheisis. I was bullied about it through my childhood as it was noticable even then, I am nervous about my surgery but i cannot wait.if there are any female's in australia who have the same problem could u please reply to this discussion.people with Polands syndrome, we are 1 in 100,000 people!-KateI have an 8 yr old daughter. I just noticed the other day that she is missing her left major pec muscle. Her's is not really noticable, but it's because she is skinny as a stick. What suggestions can you give me to help support her, as she goes to the doc and is about to go through puberty, so i can help make this go a little easier on her.
    Anonymous 42789 Replies Flag this Response
  • I am a 44 year old female. I have always had asymmetrical breasts but only found out two years ago (as a result of a mammogram) that this is due to not having a major petoral muscle on my right hand side. I do not have any webbing in my hands but I do have a chest that dents inward and a slight curvature in my spine. I haven't officially been diagnosed with Poland's syndrome.In the past two years I have been suffering pain in my right under arm area with pains radiating down my arm and also into my ribs. I have had many tests which have not showed the cause of the pain but I have been visiting a physiotherapist who has helped me to discover that the pain is from my right minor pectoral muscle which is very tight (presumably as it has had to perform tasks beyond what it would usually perform in person who has a major pectoral muscle).I was just wondering if anyone else has had pain in the armpit region and arm as a result of not having a major pec muscle? And if so how you have treated it?Thanks very much.
    puddleduck 1 Replies
    • October 5, 2011
    • 06:34 AM
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