Discussions By Condition: Congenital conditions

Congenital Lymphocytopenia here!

Posted In: Congenital conditions 2 Replies
  • Posted By: dougsgirl63
  • August 17, 2007
  • 03:15 AM

Yes that is what i said and it has destroyed my life.I am 43 yrs old and it has caused me to nearly die everytime i get an ecoli infection of fungal infection for which i now have Histoplasmosis in the disiminated form as it went from my lungs to my skin and now is calcifying in my lymph nodes.I now have a 1.4 c.m. mass in my chest that no doctors here want to touch as they said they would have to crack open my chest to get to it and it is sitting right ontop of my heart intertwined in my aorta's and all.What a mess!Any one know of a good Histoplasmosis or immune doc here in Northern Illinois?
Lost and confused and terrified!!!
Beth

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2 Replies:

  • I hope you are still out there. I just saw your symptoms.Please try to watch the Mystry Diagnosis episode "Man with rocks in his chest" Contact the doctor in that episode. Him and I have the same exact symptoms as you do.I think the doctor in that episode is your answer. Please contact me and I can give you more details: mamoonk@hotmail.comRegards
    Anonymous 42789 Replies
    • February 9, 2009
    • 04:23 AM
    • 0
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  • I wrote to the Doctor that was on that episode about 9 months ago and no one replied to me.The mass in my chest in now 2.6 c.m. by 1.4 c.m. and is in my thymus.They don't want to do anything cause it is wrapped in the aorta's to my heart.I was on Sporanox for a year and the lesions went away but i have pictures of it all.The say i have/had/ Chronic Disiminated Histoplamosis.I also have a form of cancer amongst other things but all brought on by the Congenital Lymphocytopenia.I am prone to catch viral fungle and bacterial infections.They read my cultures at Heartford Collage and those at the round table diagnosed it as i mentioned.I am also in a group but most of those people has ocular histo.I have not met any one quite like me as of yet.Would love to talk to you more.I have sent an email to you.. Beth
    dougsgirl63 6 Replies
    • February 11, 2009
    • 06:42 PM
    • 0
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