I was diagnosed with KFS as a child and received chiropractic most of my life. C1 flips up and is fused to the Occiput and C2/C3 are fused together on the right side. The chiropractic worked well until age 25 or so when the pain and discomfort began to increase exponentially. By 30 I was about to enter pain management when I finally tried acupuncture. The results were amazing. The first treatment relieved the pain for the rest of the day. After going regularly for a few months, the pain was gone. Over a year later, I still go once a month or so just to keep it all in check.
Looking back , I feel like the pain was related to the toxins being stored in the muscles from years and years of constant contraction and tightness. I think the acupuncture worked like a drain of sorts.
Good Luck to all and give acupuncture a try if you can.