Discussions By Condition: Cervical conditions

Endometrioma

Posted In: Cervical conditions 9 Replies
  • Posted By: endometrioma
  • March 24, 2007
  • 08:55 AM

Recently, I was diagnosed of having 2 kissing Endometriomas on my left and only ovary. I wasn't aware of it till I had an ultrasound done on my ovaries. Since I had a past history of having my right ovary surgically removed when I was 6 years old, ( I don't why, but my aunt told me that it was so big the doctors have to remove it together with my appendix which was affected by then), I was curious if I can still bear a child. So to cut it short i had it checked, and found out these endometriomas. I have no pain,except during menstruation which can be tolerable sometimes; but i do feel a little bloated sometimes but i am actually connecting it with my body built coz i'm a little heavy. Sometimes i'm constipated as well. I'm afraid, if i have little symptoms, can i still bear a child? anyone who has knowledge about my condition, please help me.

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  • One of the worst things about endometriosis is that it can cause infertility with very few symptoms. (And sometimes minimal disease causes excruciating pain...) I would speak to a knowedgeable ob/gyn about your chances for fertility, especially since you are down to only one ovary. Endometriomas usually have to be surgically excised, as they don't respond well to meds. Perhaps you may be able to have surgery to remove the endometriomas and save the remaining ovary.I know my gyn has mentioned egg harvesting to me as an option. Maybe something to discuss woth your dr?Good luck!joz1791
    Anonymous 42789 Replies Flag this Response
  • Thanks...I'm scheduled this Saturday for my second ultrasound. I refused to choose from the three options (injection, oral meds.,surgery) that my ob/gyn offered me when i first learned it, so she scheduled me to another ultrasound this month. I was trying to get pregnant for the past two months but, i've no luck at all. I'm afraid to go on another surgery, you think the injections will be fine? Thank you so much.
    Anonymous 42789 Replies Flag this Response
  • Interesting that you come to a public medical forum to discuss something as concerning as your health care, future fertility, and options of treatment. Your Gyn knows you best and if you choose to ignore his/her advice, then seek another qualified opinion in person. Do not trust the internet for such things as it's full of misinformation and horror stories. The diagnosis of an endometrioma is best done through laparoscopic surgery, but otherwise, an MRI is your best choice. These entities do sometimes disappear on their own without further treatment, sometimes they need surgical excision. Endometriosis (not an endometrioma) is a leading cause of infertility and pelvic pain around the time of menstruation. Endometriomas can sometimes cause pelvic pain and lead to problems with bowel and bladder function. A repeat u/s is reasonable, an MRI would be better. Sounds like you had a non-cancerous "dermoid" (not to be confused wit a fibroid) on your right ovary. Best wishes.
    Anonymous 42789 Replies Flag this Response
  • I have battled endometriosis and lost my right ovary to a ruptured endometrioma when I was 23. I continued to try to get pregnant for years. After two failed cycles of IVF (and some laproscopies) I decided to let my doctor go in via a laprotomy and clean up the endometrial adhesions. Also, if you have two endometriomas, your tubes are probably blocked with endo as well. I am not an advocate for surgery, but when you are dealing with endo, it is important to be aggressive and to be with a doctor who is aggressive as well. I would listen to your doctor and at least take some sort of birth control pill to control the creation of more endo which with increase your endometriomas - and possibly lead to one or both rupturing and losing your remaining ovary all together. Like me. Some people with small amounts of endo are in terrible pain. I, however, had severe endo (my doc said it was the worst he had seen in years) but my pain was able to be controlled with Ibuprofen. If getting pregnant, especialy with one remaining ovary, is your goal you have to be aggressive. Today, I was told that I have another 4cm endometrioma causing me great pain in my lower left back. I knew what it was since I have been dealing with this stuff for years, but it took over a year to convince my doc to an U/S and MRI to Dx it. Anyway, today after two more IVF cycles I have 5 children (a singleton and quads) and fear losing my ovary too early for hormonal reasons and fear that the cyst is on my bowel and I will lose that when it ruptures is why I will be aggressive with this,Do yourself a favor and follow your doctor's orders. AND if you are trying to get pregnant, you should see a reproductive endocrinologist to handle your endo and not your regular OB/gyn. If you have one ovary left and it's full of endo, you may have a green light right to a reproductive endocrinologist - instread of trying to conceive for 12 months without luck which is the current protocol for most insurance companies. I had the same green light to IVF because my tubes were blocked which was seen on an hystosalpinagram (sp?) - which is an x-ray with dye put through your tubes to see if it has a clear path. Anyway, good luck. Listen to your doctor. I wish that 13 years ago when I lost my ovary I knew what endo was and I knew to NOT let my OB/gyn (the same doctor my mother went to that she took me to when I was 18) operate on me. Maybe a doc with experience with endo, fertility, etc. would have been able to save some of my ovary. BUT, if your endometriomas rupture, you WILL lose all or most of your remaining ovary. BTW - I started seeing my OB regularly because my husband and I were trying to get pregnant for 3 months and were unsuccessful. 1 month after they checked his sperm and saw that it was ok and sent us home to try for 3 months months my endometrioma (that I didn't know I had) ruptures - and thus started my life of infertility treatments.
    Anonymous 42789 Replies Flag this Response
  • I am 25 and since had a COMPLETE hysterectomy at 22. I was just diagnosed with having more endometriomas with an ER visit this weekend. Do you want to talk scary!! Ive had 25 surgeries and been on percocet off and on since I was 13 cause my pain is disabling sometimes I cant talk I am in so much pain I was throwing up alot I was always constipated. There was absolutely no chance of me ever getting pregnant. I am so screwed up inside that my dtr has to tell me when I see specialist to inform him since he propably wont have time to read my note that none of my organs are in the right place because the endo pulled on it and moved them around. I had no choice but to have a hysterectomy and even after a total hysterectomy I still have endo....Has anyone else had a hysterectomy than still have endometriosis on this site Please email if so I am scared and would like to talk to some one about this. Sweetkathie19@yahoo.com
    Anonymous 42789 Replies
    • August 21, 2007
    • 06:41 PM
    • 0
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  • Poor woman! I read your post with a heavy heart. It sounds like you have and continue to suffer so much! Endo's so unfair! I too had endo from the time I was a kid (13?) and wasn't taken seriously and diagnosed until I was 23. I used to throw up and pass out from pain and would litterally have to huddle on the side of the street if the pain hit me before I could get enough meds in my body. I had lazer surgery in 1997 on my left ovary. It helped for a few months and then came back - maybe partly because I wasn't willing to take any hormones back then. Fast forward to 2008 and I've been on every hormone and pain med and am now slated for another surgery, possibly oopherectomy (ovary removal) or even hysterectomy. Through Ultrasound they also just found 2 endometriomas on my left ovary, which need to be taken out. Gad zooks, it never ends!Endo is a major pain in the arse. I call it the "Red Devil!" Unfortuntaly I don't think your story is too unusual, though it is one of the severest cases I've read about in such a youngster. It is often the case that endo sufferers have multiple surgeries and it still comes back. Problem is that it is hard to see in the abdomen and grows back no matter what the surgeons try. I think the best thing you can do is to educate yourself MASSIVELY. Make it a mission and read everything you can (and be sure to read reliable medical info, not just newgroups - which can scare the *** out of you with worst-case stories!) I cannot tell you how much my being educated has helped me in choosing the right Drs and the right treatments. It has not been unusal for me to know more than my Drs! Sad, but true. (I just had one surgeon tell me a hysterectomy WOULD cure me 100% and because I've read so many stories like your own, I KNOW that is not the case, that endo can be ANYWHERE in the body and even the drastic step of total hysterectomy is NO guarantee.) One other thing I've learned is that if you aren't getting anywhere with a particular Dr or treatment then by all means switch! Even if this means you have to pay for a consultation with a Dr outside of your insurance, trust me it is soooo worth it! Drs vary as to how up-to-date they are on current research, surgical techniques, and medicinal treatments. (ex: I went for 4 surgical consults and got 4 different suggestions for treatment! I just kept on asking until I found a Dr I was COMPLETELY comfortable with and who's advise made sense based on what I know having had these disease for so long.)I'd also like to recommend the National Endomeriosis Association, which puts out endo bibles like the following, which I highly recommend to everyone with Endo as well as to their family and friends:1. The Endometriosis Sourcebook2. Endometriosis: The Complete Reference For Taking Charge of Your HealthThe website for ordering and for all Endo Assoc. info is:http://www.endometriosisassn.orgWe all have to advocate for Endo research and hopefully medical science will advance to help all of us woman who suffer SO MUCH with this god awful painful, life-altering disease.Blessings to you and I hope your next round of treatment goes better.MichelleMarinBookkeeping@yahoo.com
    Anonymous 42789 Replies Flag this Response
  • I just found out I have a 1 inch endometrioma in one of my ovaries when I had an ultrasound done by my fertility doctor. Should I have this removed or just go straight to IVF? I am scarred it will rupture. If I was to get pregnant by IVF, could having the endometrioma put me at greater risk for misscarriage?
    Anonymous 42789 Replies
    • February 3, 2010
    • 03:42 AM
    • 0
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  • hai recent i did sono for ma ovary since im having ***l of pain during menstrual and also sometime with pelvic pain .. then i have diagnose with endometrioma wohich the size is 3.4cm.is that any medication for that?? wat is the treatment .. what i suppose to do ???? so confused.....
    Anonymous 42789 Replies
    • November 25, 2010
    • 02:47 AM
    • 0
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  • Dear Unregistered, After reading your excellent response to that woman's question, I hope you can understand why someone might come to a public medical forum to see if anyone else had had a similar experience or some information or support to give. The information you posted about endometriomas was very helpful to me. What you may or may not know, is that not all ob/gyns are as knowledgeable about endometriosis, and even if they are, there's still much to be learned. Gyns are also not always so forthcoming with detailed information during office visits which, at least in Los Angeles where I live, are sometimes quite rushed. Therefore, getting feedback online can help a patient ask the right questions and stay on topic with her doctor until she gets an answer. I've been to a few ob/gyn's about my endometriomas and none has suggested an MRI (only ultrasounds). Thanks to your post, I might ask about whether or not that could be a good option for me next time I see my doctor. Thanks for your insightful response and I would request that you not make disparaging statements to fellow posters seeking out the information or general support that can frequently be found on these web sites from women who have been through the same thing.Best wishes to you (and to all of us suffering from endometriosis),CareyInteresting that you come to a public medical forum to discuss something as concerning as your health care, future fertility, and options of treatment. Your Gyn knows you best and if you choose to ignore his/her advice, then seek another qualified opinion in person. Do not trust the internet for such things as it's full of misinformation and horror stories. The diagnosis of an endometrioma is best done through laparoscopic surgery, but otherwise, an MRI is your best choice. These entities do sometimes disappear on their own without further treatment, sometimes they need surgical excision. Endometriosis (not an endometrioma) is a leading cause of infertility and pelvic pain around the time of menstruation. Endometriomas can sometimes cause pelvic pain and lead to problems with bowel and bladder function. A repeat u/s is reasonable, an MRI would be better. Sounds like you had a non-cancerous "dermoid" (not to be confused wit a fibroid) on your right ovary. Best wishes.
    Anonymous 42789 Replies
    • February 28, 2011
    • 09:16 PM
    • 0
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