Cerebral Aneurysm

Cerebral Aneurysm

Posted In: 13 Replies
  • Posted By: Anonymous
  • August 18, 2007
  • 06:15 AM

Hi,
Im 22 and have just been diagnosed with an aneurysm in the brain. I am looking for survivors and people to talk to about this as I am having a hard time coming to terms with it. I am feeling helpless and so upset. I am angry with myself because I cant feel happy, and usually I am...........I don't know what to do..I am hearing all these bad things, and not many people survive these things, or are ever the same..........please someone help.
Misery Guts
x

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13 Replies:

  • Hi,my mother was also diagnosed with a cerebral aneurysm. She/us were told all these horrible things that are going to happen to her. she was so scared and petrified. They shaved her head in total 2 times. She was depressed for a long time.(and the medication they put you on doesn't help) She underwent surgery to coil the aneusym by dr ho(im not sure if that is how you spell it) in shands medical center in gainsville florida. He is one of the best. Very cocky but nice. Well anyways he wasn't hopeful because of where her aneurysm was but she had the surgery and she started to get better. She has no side effects. The only side effect she did have was short term memory and that lasted for about of month after surgery. She was told to do crosswords/wordfinds to help with memory. Even after surgery she was depressed but then she realized i just surived a aneurysm who does that. Why am i depressed about my hair being gone, when i am able to see my kids everyday. She has since had a coulpe more surgerys but not for the aneursym for the leakage of CSF that surrounded her brain afterward. But Now she is 100% normal, laughing and enjoying life. She was also young to have one she is 40. Have faith in yourself because it is the battle between yourself that will be the hardest thing for you to fight. I hope that you have found this letter helpful in some way. Laughter is the greatest medicine!!!! Ashley
    willash 1 Replies
    • November 25, 2007
    • 09:40 AM
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  • I just read your post and i am so sorry for you. I can't begin to imagine what you must be going through at a time like this.I understand that you hear bad stories about things like this but you must not focus or dwell on these, you must stay as positive as possible at a time like this, however hard that may seem to you just now.Look at the positive points, one being you are at a young age, one of the most significant factors in determining the outcome of something like this is age along with general health and location of aneurysm. Someone young and of relative good health otherwise has a much greater chance of a positive outcome.I will be thinking about you in my prayers.All the bestPink Tiger
    pink_tiger 3 Replies
    • November 26, 2007
    • 00:51 AM
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  • HELLO, I JUST TYPED FOR AN HOUR(I'M SLOW TYPING), HIT A WRONG BUTTON WHILE TRYING TO COPY TO MY DRAFT FOLDER, ( SO I WOUDN'T NEED TO TYPE AGAIN), AND L-O-S-T IT...BOOHOO, SHORT VERSION,1/27/05 I HAD TRIPLE BRAIN ANEURYSMS WITH RUPTURE = 1/28/05...13 HOURS BRAIN SURGERY, 4 CLIPS, 3PLATES, 6 SCREWS. WHAT YOU RE FEELING IS N-O-R-M-A-L, IF ANYONE NEEDS TO TALK ABOUT THIS YOU MAY E-MAIL ME DIRECT. loimmarmar@yahoo.com still alive
    still alive 20 Replies
    • January 10, 2008
    • 05:32 PM
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  • :( I'm so sorry , I know how you feel. I had one also and it was a scary time. But if you e-mail me I can tell you my story. It's to long to type. E-mail me and I'll send you my phone # or send me yours and I'll call you . I used a #1 doctor. I can try to help you with this if you give me your #.I will be praying for you ,JonnieP.S. I am a mom of 4 and had my surgery Oct. 5, 2006jbrantley@1scom.net
    Jonnie 2 Replies
    • January 12, 2008
    • 09:04 PM
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  • Are you doing okay? Have you already had surgery?? Please reply if you are still on this site.:confused:
    Jonnie 2 Replies
    • January 12, 2008
    • 09:07 PM
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  • JONNIE, HI THANK YOU FOR YOUR CONCERN, YES I AM OKAY, and please don't be sorry, it is more evidence for my exposure case.:) :D I had 13 hours of brain surgery on 1/28/05 in Madisom WI, University of Wisconsin, Dr. Iskandar. I also am a mother of four, all girls, so we have alot in common. I had the best Dr. ever, first GOD who used Dr. Iskandar for the surgery. When they put me on the helicopter to life flight me to the univ. I didn't realize how serious this was, even after arrivial I did not get it, although my 2 oldest daughters were told that I had a 2% chance to live and if I did, I would be 1/2 paralized and or blind in both eyes. PRAISE GOD, I'm still alive, not paralized or blind. I will e-mail direct and you or anyone else may also. still alive Maryloimmarmar@yahoo.com
    still alive 20 Replies
    • January 13, 2008
    • 00:05 AM
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  • First I understand where your fear of a cereberal aneurysm is coming from. I had a right carotid opthalmic aneurysm repair done two weeks ago. I am 62 years of age and yes I was frightened. However I think you are being given some bad images and information. I work in the medical field and did a lot of research. First let me caution you not to take the first opinion. The easy endovascular way to correct the problem may not be in your best interest. This procedure although less invasive is not always a permanent fix. I was being pushed by a physician to have this but choose to get another opinion. I saw the neuroscience team at Columbia Medical Center in NY and am so happy I did. I don't know where you live but there is sure to be a neuro science center in a major city near you. You are very young and therefore if I were you I would consider clipping of the aneurysm rather then the endovascular coiling so that you do not have to worry about it ever again. The recovery time is longer but worth it. Endovascular procedures also carry risks that they don't like to talk about. I did not have my head shaved either. They shaved a two inch strip behind my hair line and no one would even know it was done. Get on the web and find yourself a neuroscience center at a major hospital (avoid small community hospitals at all costs) and don't be afraid to ask questions. Remember we are the lucky ones that have had this detected and have the opportunity to have it taken care of. I lost someone in my family at the age of 37 because her aneurysm burst, she did not know it existed. I am sorry for your fear but you must put that aside now and do your homework. Incidently I walked into the operation room on my own two feet and walked out of the intensive care unit to go home three days later on the same two feet, I have no visual problems or any other neuro deficits from the surgery not bad for a 62 year old grandmother. I hope my story helps you and good luck I will be praying for your full recovery.
    nanadiane 1 Replies
    • January 30, 2008
    • 10:53 PM
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  • Blaze, Thank you for the info on cell phone use...I appreciate it. I am the now 50 yr old that had 3 aneurysms with 13 hours brain surgery. My 3 year anniversary of the rupture was the 27th and anniversary of the surgery was the 28th...right now is the 11th year anniversary of life support for 5 days due to pneumonia...I did not have a cell phone until a year ago...I did have a 3 1/2 year natural gas leak in my home, it started 4 months prior to the life support incident. Again Thank you, GOD BLESS! still alive:D
    still alive 20 Replies
    • February 1, 2008
    • 10:24 PM
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  • It's nice to find this post here--I went through a similar experience three years ago now, woke up one morning very ill and ended up having surgery within a couple of days. I was 28 at the time and had no idea that anything was wrong. Very scary, but as all of you have noted, we must be thankful for the beauty in life, especially in light of our own mortality. I am curious to find out more information on the cell phone--aneurysm connection, if there is one or if any studies have been done. I have always had the feeling that there was some connection. In any case Jaszi, if you still read this post, I hope your surgery went well and that you have come to realize that we who have been through experiences like this are the fortunate. Wish you all the best.
    Anonymous 42789 Replies Flag this Response
  • Hello Fleur, This is still alive...Whoo-Hoo... Sorry, got lost there...My aneurysm that ruptured was located in the circle of willis, 3rd nerve, PCA at the brain stem on the right...2 other aneurysms were found, 1 on left, PCA at brain stem and the other is a giant one on the internal corrodid (spelling) artery. Now, as for the cell phone connection...NOT IN MY CASE. I had used a cell phone maybe a total of 4 or 5 times over the years, prior to the rupture and or knowledge of aneurysms. I do not discount the possiability of this happening although it will be as hard to prove your theory, as it is and has been hard for me to prove that the natural gas leak in my home did not kill by asphication or blowing up, It injured my immune system to the point of systemic failures...but what you have does not have a name or never heard of such a thing before. It would be so refreshing to find a DR. that did not just ASSUME that we are making up these fantastic tales. I WILL NOT STOP LOOKING! And for anyone else going through these struggles, KEEP IT UP, the ones you save will quietly say thank you and who knows it might just be your family member in the future...DO NOT GIVE UP! PRAYERS to everyone. GOD BLESS!! Mary Brickner...still alive
    still alive 20 Replies Flag this Response
  • hi my name is sunshine i was told three months ago that i have a 7mm comunicating cerabl anurysm i also have a pituryty toumor im very very scared im crying every day and most days im in bed i get dizzy and get blurred vission sometimes i dint see a ns until the middle of june i have to wait all this time with only my family to talk to can anyone help me im so scaredlots love sunshine
    Anonymous 42789 Replies Flag this Response
  • Are you doing okay? Have you already had surgery?? Please reply if you are still on this site.:confused:hello.Jonnie How are you?Im looking for the effects of anuerysm and i.'ve found this blog.. my boyfriend had also been operated when he was only 15 or 16 y/o then..Now he is in 30's..But unfortunately the effects of his operations. He had a stroke of his left body..His arm and left leg had been affected.. I want to know if we can have baby? But even though we could not have one..Im still love him..i hope u will reply...
    Anonymous 42789 Replies
    • November 25, 2009
    • 04:11 PM
    • 0
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  • My mom told me today that the results of the MRI on her brain are that she is in the early stages of small vessel disease. She is only 58, but had small strokes about 10 years ago and has struggled with memory, headaches, vision problems, and some cognition since then. I cant find much information about cerebral small vessel disease, or how it is treated, or what to expect.
    Maxnumar 2 Replies Flag this Response
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