Discussions By Condition: Cardiovascular disease

Undiagnosed and frustrated

Posted In: Cardiovascular disease 3 Replies
  • Posted By: FeelingHopeless
  • August 17, 2010
  • 01:29 AM

I'm a female and now 29 years old. I'm 5'2" and weigh 107 lb. I've always had low bp, it was never a problem for me. A few years back I started experiencing chest pain just left of the breast bone (feeling like being stabbed with an icepick). The pain will sometime extend down the left arm. I went to the doctors and was told he could hear a mitral valve prolapse with a mild regurgitation. Had an echo-cardiogram to confirm it. Sent to go see a cardiologist and before they could do anything we moved due my hubby being military. Started out with new doctor's here. The low bp has become a problem and causes heart palpitations, fatigue, lightheaded, and almost passing out. The doctor's here told me to "eat salt and gain weight" to deal with the low bp. I gained 5 lb and eat salt, not helping. The doctor here sent me off to have stomach testing done to make sure it was not my stomach. It's not. He sent me off to have a stress test done, instead the cardiologist decided to do a stress echo and said he did not see a mitral valve prolapse and dropped it. He said for the stress echo he wanted me to run on the treadmill and see if we could get my heart rate up to 160. My heart rate jumped to 160 as soon as I stood up from the table. Just standing still my heart rate was 160. Told me to "eat salt and gain weight". He did not have any answers. Went back to my doctor a few months later. Again sent off to a different cardiologist who did NO tests and just told me it was me "being a female and oversensitive". My normal doctor has run a bunch of different blood test and everything comes back normal. I have a high tolerance for pain. I always have since I was a kid. When a chest pain can hit me so hard and fast it drops me to my knees, the pain so sever it makes me nauseas and I'm overwhelmed with totally exhaustion at the same time. I can't fight to keep my eyes open yet the pain so sever and nausea making my stomach roll, I pray for it to ease off and just when I think I can't take it anymore I pass out. I open my eyes to find 4-5hours have passed, takes me 15 mins just to get to my feet. The chest pain is mild and I'm very tired. I takes 3 days to recover from it. Yet they can't figure out what is wrong and keep telling me to "eat salt and gain weight". The chest pain comes and goes, no trigger but stress, sleep, and hunger can make it worse. I bruise easy or with the high pain tolerance don't know I'm getting hurt. I heal slowly. One scratch on my leg took over 2 months to heal. The only odd thing they found was I have a very straight spine. No natural curving. I'm at a lose and don't know where to go from here.

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  • I'm a female and now 29 years old. I'm 5'2" and weigh 107 lb. I've always had low bp, it was never a problem for me. A few years back I started experiencing chest pain just left of the breast bone (feeling like being stabbed with an icepick). The pain will sometime extend down the left arm. I went to the doctors and was told he could hear a mitral valve prolapse with a mild regurgitation. Had an echo-cardiogram to confirm it. Sent to go see a cardiologist and before they could do anything we moved due my hubby being military. Started out with new doctor's here. The low bp has become a problem and causes heart palpitations, fatigue, lightheaded, and almost passing out. The doctor's here told me to "eat salt and gain weight" to deal with the low bp. I gained 5 lb and eat salt, not helping. The doctor here sent me off to have stomach testing done to make sure it was not my stomach. It's not. He sent me off to have a stress test done, instead the cardiologist decided to do a stress echo and said he did not see a mitral valve prolapse and dropped it. He said for the stress echo he wanted me to run on the treadmill and see if we could get my heart rate up to 160. My heart rate jumped to 160 as soon as I stood up from the table. Just standing still my heart rate was 160. Told me to "eat salt and gain weight". He did not have any answers. Went back to my doctor a few months later. Again sent off to a different cardiologist who did NO tests and just told me it was me "being a female and oversensitive". My normal doctor has run a bunch of different blood test and everything comes back normal. I have a high tolerance for pain. I always have since I was a kid. When a chest pain can hit me so hard and fast it drops me to my knees, the pain so sever it makes me nauseas and I'm overwhelmed with totally exhaustion at the same time. I can't fight to keep my eyes open yet the pain so sever and nausea making my stomach roll, I pray for it to ease off and just when I think I can't take it anymore I pass out. I open my eyes to find 4-5hours have passed, takes me 15 mins just to get to my feet. The chest pain is mild and I'm very tired. I takes 3 days to recover from it. Yet they can't figure out what is wrong and keep telling me to "eat salt and gain weight". The chest pain comes and goes, no trigger but stress, sleep, and hunger can make it worse. I bruise easy or with the high pain tolerance don't know I'm getting hurt. I heal slowly. One scratch on my leg took over 2 months to heal. The only odd thing they found was I have a very straight spine. No natural curving. I'm at a lose and don't know where to go from here.Look into postural orthostatic tachycardia syndrome (POTS). Some of your symptoms sound like this. My son was diagnosed 5 years ago. It took a really long time for him to get a diagnosis. Good Luck
    lfeiljj 2 Replies
    • September 21, 2010
    • 10:32 AM
    • 0
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  • Thank you so very much! I did some research on it and it definatly fits a lot of what I am experiencing. I am going to have my doctor look into it. :)
    Anonymous 42789 Replies
    • September 22, 2010
    • 04:54 PM
    • 0
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  • I totally agree with the POTS answer. My daughter was diagnosed last year at the age of 18. We went through this for years. You have to get a tilt table test in order to get the diagnoses. Good luck! Thank you so very much! I did some research on it and it definatly fits a lot of what I am experiencing. I am going to have my doctor look into it. :)
    Redeyedwolf 12 Replies
    • November 14, 2010
    • 11:29 PM
    • 0
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