Discussions By Condition: Cardiovascular disease

Raynaud's treatments

Posted In: Cardiovascular disease 4 Replies
  • Posted By: Anonymous
  • November 5, 2006
  • 07:21 PM

I have had Raynaud's for the past 10 years and for the last 6 of them been having Iloprost infusions every Autumn. It is now time for my next infusion but I really dont want it. It means taking time off work which I can ill afford at the moment (and I know health is more important) but the biggie is that I hate the way it makes me feel whilst I'm having it. Does anyone have any different treatments that they could suggest I try before I go down the Iloprost route this year?

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4 Replies:

  • What I understand about Raynauds is that your fingers turn solid whit like porcelain when they get too cold, then when they warm up they turn blue and then red and burn and hurt a bit. I have never been diagnosed or even seen a doctor about it, but I have been having that phenomenon since I was a teenager. I sometimes get it even indoors when the temperature gets too cold for me in my office. I haven't had any treatment- didn't know it existed. Is it possible for you to discontinue it and see if you really need it? Is yours much worse or different than what I described?
    pumibel 42 Replies
    • February 16, 2007
    • 11:32 PM
    • 0
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  • http://www.raynauds.org/ Here is a good site to check out. They have boards there and can tell you alot. My doc had me on circuitory meds for a few yrs , but they didn't help me. I have Lyme and thyroid issues. Raynauds has been linked to both. The biggest thing is to keep warm and not let yourself get cold in the first place, not easy to do I know. Its been a bad winter for me with the cold. Hope you both find some help at the above link.
    Anonymous 42789 Replies
    • February 17, 2007
    • 11:09 AM
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  • I have been experiencing milder Raynaud's symptoms over the past couple of years. My toes and fingers turn white, but not porcelain white, and turn blue and red as they warm up. I have found fish oil supplements help reduce its symptoms and I feel a bit warmer. Recently I discontinued taking beta blockers and that has helped as well.
    Anonymous 42789 Replies
    • February 25, 2007
    • 02:00 PM
    • 0
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  • I remember hearing about biofeedback being used to treat raynauds in a psychology course. It was not in depth, but it was during a disscussion about migraines too. Something about learning how to expand blood vessels with relaxation.
    hopeless999 1 Replies Flag this Response
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