I'm so glad I found this forum because on days like today I feel like NOBODY understands what I'm experiencing. In 2003 I experienced a massive pulmonary emboli. Then, in 2006, after a VQ scan, they found "evidence of three more". I was on coumadin and lovenox for a while, but because I lost my insurance, I had to stop taking the coumadin and lovenox.
The biggest problem is that here I am 7 years later and I experience EXTREME chronic pain where the clots have landed. The doctors keep telling me there is nothing wrong, or I have pneumonia or I have pleurisy. I've had a bazillion CT Scans to rule out additional PE's, that now I run the risk of cancer from the scans.
Anyway, it seems as though every few weeks I get these massive pain flares that cannot be controlled by anything except IV meds. This has caused me to have numerous visits to the ER and now my record is "blemished" as I've been marked as a drug seeker.
When I talk to my PCP about this, he says "I don't think throwing more pain meds at you is going to help". He wants me to go back to a therapist (which I agree with) and that there is nothing more he can do for me.
Am I REALLY supposed to live the rest of my life in this much pain? I'm only 33 years old and have a kid to take care of. I cannot do this much longer. Advice?
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