Discussions By Condition: Cardiovascular disease

Looking for others with Giant Cell Myocarditis or Heart Transplant at a Young Age?

Posted In: Cardiovascular disease 0 Replies
  • Posted By: cafilson
  • January 6, 2014
  • 03:41 PM

My name is Claire. I am a 22 year old woman recently diagnosed with Giant Cell Myocarditis.
I am looking for others with Giant Cell Myocarditis, or those living with or possibly needing a heart transplant. Particularly others close to my age.

With the rarity of this disease, finding others to connect with has been difficult. Just looking to "compare notes,"offer support, and just talk to other people who know what it's like to live with this disease.

Please shoot me an e-mail if you are, or know someone, with Giant Cell Myocarditis.

Thanks,
Claire

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