Discussions By Condition: Cardiovascular disease

I Think I've Been Mis Diagnosed. Life Threatning?

Posted In: Cardiovascular disease 6 Replies
  • Posted By: RawlsB
  • March 17, 2011
  • 01:33 AM

Okay so here is my story. Its quite long but it's been ***l for me for the past 3 weeks to a month.

To start off I'd like to say that I'm a perfectly healthy 19 year old guy. Before i started having problems I'd go to the gym every day, and work out + do cardio, it's safe to say i was in shape.

1 Month ago - I was on my way home from the gym driving by myself and i suddenly got very dizzy, and my heart started beating extremely fast followed by ringing in my ears, an extreme burning throughout my entire body, with an irritated tingling in my entire body, so i quickly slammed on my breaks and pulled over. I was taken to the hospitol but by the time i got there i had calmed down, and they said it was due to a particular workout supplement (Jack3d). The best way i can describe the attack is to say it literally felt like i was going to die.

3 days later - I went back to the gym on all of my supplements except for jack3d, and the exact same thing happened on the way home. I went to the emergency room again and they told me it was my other supplements

Supplements i took: Up your mass/Jack3d/Endurox v4/Crealkalyne (Never over the recommended dosage, under the rec if anything)

-After this i was scared to death so i decided to throw out every supplement i owned, and since that day up to now i havn't touched one nor have i worked out.

The following day I felt worse than i had ever felt in my life. I would randomly have these same attacks and my chest was incredibly sore.

I continued to have these attacks for the next week, and ended up in the E.R 2 more times because of it, each time i was told i was fine and there was nothing they could do about it since they couldn't catch the attack on a monitor.

I went to my regular care doctor and he suggested it was 1 of 4 things.

-Anxiety
-Work out Supplements
-A tumor
-Heart Palipatations/Arrythmia.

I have since then gone to a cardiologist and recieved a heart monitor, and an Ecocardiogram.

All the results from those tests came back to show that i had a perfectly fine heart, and the monitor only picked up on high beating rates, nothing out of the ordinary though.

I have also gone to get a CT scan, which came up negative aswell, so no brain tumor, and it's been 1 month since i've touched a supplement, so they are clearly no longer causing an attack, but i still continue to have them.

Other symptoms i have. - I cant go an entire day without taking a nap mid day, every time i take a i feel great when i get up, i feel dizzy from time to time, and my heart rate randomly starts beating very very fast with a slight chest pain, after each attack i need to lay down.

Since this has started I've been unable to leave my house except for doctor appointments due to the fear that this will happen again, like i said, it literally feels like i'm going to die when i have an attack.

During an attack - I do not freak out, i'm actually quite calm about it, i just close my eyes and breathe in every 3 seconds and out every 3 seconds with deep breaths until it goes away. The pain lasts for about 1-2 minutes, then the heart rate just continues to be fast for the next 20 or so.

My main care doctor has diagnosed me with anxiety, but never worry about anything, my life is actually just exactly where i want it to be, I'm making great grades in college. have an amazing income. loving family and girlfriend, etc. I've also never heard about someone having a burning\tingling sensation from anxiety with all these other symptoms. The doctors say the tingling could possibly be from lack of breathing while in an attack, but that's always my main priority, I'm sure I'm getting enough, and not too much oxygen.

My doctor gave me Lexapro, and it made me not want to eat, it also didn't make my attacks go away. i took it for 5 days, and haven't taken it for 3 days since then. It was a personal choice to quit the Lexapro.

I also feel short of breath sometimes, just randomly without attacks.

I'm very sorry for the extremely long story, but i just feel that every detail is important.

The frequency of the attacks are probably close to 1-3 times a day. only 3 have been extremely bad, others just make me dizzy/short of breath/rapid heart beat.

Any ideas? :\

Edit: I'm going bowling with my friends right now. first time I've thought about getting out for a month. We'll see how this goes.

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6 Replies:

  • I can relate to your post. The " tingling/burning" your feeling is very common in people who suffer from anxiety. I have that as one of my symptoms all the time. Along with the rapid heart beats, shortness of breath, feeling dizzy, ect. Its amazing what anxiety can do to a person. Trust me. i have had anxiety/panic disorder for over 15 yrs now. It can get worrisome at times , i know. If you have had tests done, and all are fine- i would try not to worry to much. It is very common for people to "fear having another attack" and refuse to leave their home because of that fear. ( been there, done that ! ) Medications can be very helpful. Anti-depressants are used to treat anxiety, as well as a few other medications such as Ativan, and Clonazapam. These two are used only in moderation..... as they can be attictive. Both are considered "anti-anxiety" meds, which help calm you when you are having an attack. I have been on Effexor for my anxiety for 8 yrs, and also take the clonazapam when needed. They both have helped me a great deal. BUT, therapy is also useful... and would suggest it to you as well. Behavioral therapy to help you cope with the anxiety, and negative thinking habits. Just because someone has anxiety, it doesnt mean their life is stressed.... my life is good as well, but still suffer from it. Its hereditary, and sometimes we just have to deal with what is thrown our way!!! It sucks, but it could be worse..... Okay so here is my story. Its quite long but it's been ***l for me for the past 3 weeks to a month. To start off I'd like to say that I'm a perfectly healthy 19 year old guy. Before i started having problems I'd go to the gym every day, and work out + do cardio, it's safe to say i was in shape. 1 Month ago - I was on my way home from the gym driving by myself and i suddenly got very dizzy, and my heart started beating extremely fast followed by ringing in my ears, an extreme burning throughout my entire body, with an irritated tingling in my entire body, so i quickly slammed on my breaks and pulled over. I was taken to the hospitol but by the time i got there i had calmed down, and they said it was due to a particular workout supplement (Jack3d). The best way i can describe the attack is to say it literally felt like i was going to die. 3 days later - I went back to the gym on all of my supplements except for jack3d, and the exact same thing happened on the way home. I went to the emergency room again and they told me it was my other supplements Supplements i took: Up your mass/Jack3d/Endurox v4/Crealkalyne (Never over the recommended dosage, under the rec if anything) -After this i was scared to death so i decided to throw out every supplement i owned, and since that day up to now i havn't touched one nor have i worked out. The following day I felt worse than i had ever felt in my life. I would randomly have these same attacks and my chest was incredibly sore. I continued to have these attacks for the next week, and ended up in the E.R 2 more times because of it, each time i was told i was fine and there was nothing they could do about it since they couldn't catch the attack on a monitor. I went to my regular care doctor and he suggested it was 1 of 4 things. -Anxiety-Work out Supplements-A tumor-Heart Palipatations/Arrythmia. I have since then gone to a cardiologist and recieved a heart monitor, and an Ecocardiogram. All the results from those tests came back to show that i had a perfectly fine heart, and the monitor only picked up on high beating rates, nothing out of the ordinary though. I have also gone to get a CT scan, which came up negative aswell, so no brain tumor, and it's been 1 month since i've touched a supplement, so they are clearly no longer causing an attack, but i still continue to have them. Other symptoms i have. - I cant go an entire day without taking a nap mid day, every time i take a i feel great when i get up, i feel dizzy from time to time, and my heart rate randomly starts beating very very fast with a slight chest pain, after each attack i need to lay down. Since this has started I've been unable to leave my house except for doctor appointments due to the fear that this will happen again, like i said, it literally feels like i'm going to die when i have an attack. During an attack - I do not freak out, i'm actually quite calm about it, i just close my eyes and breathe in every 3 seconds and out every 3 seconds with deep breaths until it goes away. The pain lasts for about 1-2 minutes, then the heart rate just continues to be fast for the next 20 or so. My main care doctor has diagnosed me with anxiety, but never worry about anything, my life is actually just exactly where i want it to be, I'm making great grades in college. have an amazing income. loving family and girlfriend, etc. I've also never heard about someone having a burning\tingling sensation from anxiety with all these other symptoms. The doctors say the tingling could possibly be from lack of breathing while in an attack, but that's always my main priority, I'm sure I'm getting enough, and not too much oxygen. My doctor gave me Lexapro, and it made me not want to eat, it also didn't make my attacks go away. i took it for 5 days, and haven't taken it for 3 days since then. It was a personal choice to quit the Lexapro. I also feel short of breath sometimes, just randomly without attacks. I'm very sorry for the extremely long story, but i just feel that every detail is important. The frequency of the attacks are probably close to 1-3 times a day. only 3 have been extremely bad, others just make me dizzy/short of breath/rapid heart beat. Any ideas? :\ Edit: I'm going bowling with my friends right now. first time I've thought about getting out for a month. We'll see how this goes.
    amber1477 2 Replies Flag this Response
  • Your response made me feel much much better, but i'm still having problems that i feel are ouside the realm of anxiety :\It's been about 2 months since i started having all these experiences, my doctor put me on lexapro, which went terribly, then put me on floxitine, and now everything is back to normal other than a few symptoms which scare the crud out of me :\I have a poping or bubbling feeling in my chest and around my heart quite often. i'd say maybe 20-100 times a day?And from time to time i can just feel my heart pounding in my chest. mainly before i go to bed which keeps me up for hours. (like now, its 3 AM and i cant sleep because of heart pounding)I told my doctor about the popping or bubbling feeling and he said not to worry about it because we all have joins and poping in our bodies..note: mine only occour in my chest cavity, no where else.Last night i also had an extreme pain in my left armpit, well more on the inside of my very left chest. it lasted for about 8 hours. OVERALL QUESTION: Should i be worried? or just stick to the idea that it's still anxiety? I just feel that i have something thats going to go un noticed before its too late and im going to die from it :\
    RawlsB 2 Replies Flag this Response
  • Okay so here is my story. Its quite long but it's been ***l for me for the past 3 weeks to a month. To start off I'd like to say that I'm a perfectly healthy 19 year old guy. Before i started having problems I'd go to the gym every day, and work out + do cardio, it's safe to say i was in shape. 1 Month ago - I was on my way home from the gym driving by myself and i suddenly got very dizzy, and my heart started beating extremely fast followed by ringing in my ears, an extreme burning throughout my entire body, with an irritated tingling in my entire body, so i quickly slammed on my breaks and pulled over. I was taken to the hospitol but by the time i got there i had calmed down, and they said it was due to a particular workout supplement (Jack3d). The best way i can describe the attack is to say it literally felt like i was going to die. 3 days later - I went back to the gym on all of my supplements except for jack3d, and the exact same thing happened on the way home. I went to the emergency room again and they told me it was my other supplements Supplements i took: Up your mass/Jack3d/Endurox v4/Crealkalyne (Never over the recommended dosage, under the rec if anything) -After this i was scared to death so i decided to throw out every supplement i owned, and since that day up to now i havn't touched one nor have i worked out. The following day I felt worse than i had ever felt in my life. I would randomly have these same attacks and my chest was incredibly sore. I continued to have these attacks for the next week, and ended up in the E.R 2 more times because of it, each time i was told i was fine and there was nothing they could do about it since they couldn't catch the attack on a monitor. I went to my regular care doctor and he suggested it was 1 of 4 things. -Anxiety-Work out Supplements-A tumor-Heart Palipatations/Arrythmia. I have since then gone to a cardiologist and recieved a heart monitor, and an Ecocardiogram. All the results from those tests came back to show that i had a perfectly fine heart, and the monitor only picked up on high beating rates, nothing out of the ordinary though. I have also gone to get a CT scan, which came up negative aswell, so no brain tumor, and it's been 1 month since i've touched a supplement, so they are clearly no longer causing an attack, but i still continue to have them. Other symptoms i have. - I cant go an entire day without taking a nap mid day, every time i take a i feel great when i get up, i feel dizzy from time to time, and my heart rate randomly starts beating very very fast with a slight chest pain, after each attack i need to lay down. Since this has started I've been unable to leave my house except for doctor appointments due to the fear that this will happen again, like i said, it literally feels like i'm going to die when i have an attack. During an attack - I do not freak out, i'm actually quite calm about it, i just close my eyes and breathe in every 3 seconds and out every 3 seconds with deep breaths until it goes away. The pain lasts for about 1-2 minutes, then the heart rate just continues to be fast for the next 20 or so. My main care doctor has diagnosed me with anxiety, but never worry about anything, my life is actually just exactly where i want it to be, I'm making great grades in college. have an amazing income. loving family and girlfriend, etc. I've also never heard about someone having a burning\tingling sensation from anxiety with all these other symptoms. The doctors say the tingling could possibly be from lack of breathing while in an attack, but that's always my main priority, I'm sure I'm getting enough, and not too much oxygen. My doctor gave me Lexapro, and it made me not want to eat, it also didn't make my attacks go away. i took it for 5 days, and haven't taken it for 3 days since then. It was a personal choice to quit the Lexapro. I also feel short of breath sometimes, just randomly without attacks. I'm very sorry for the extremely long story, but i just feel that every detail is important. The frequency of the attacks are probably close to 1-3 times a day. only 3 have been extremely bad, others just make me dizzy/short of breath/rapid heart beat. Any ideas? :\ Edit: I'm going bowling with my friends right now. first time I've thought about getting out for a month. We'll see how this goes. ---------------------------------------------------- 2 Months Later Update Your response made me feel much much better, but i'm still having problems that i feel are ouside the realm of anxiety :\It's been about 2 months since i started having all these experiences, my doctor put me on lexapro, which went terribly, then put me on floxitine, and now everything is back to normal other than a few symptoms which scare the crud out of me :\I have a poping or bubbling feeling in my chest and around my heart quite often. i'd say maybe 20-100 times a day?And from time to time i can just feel my heart pounding in my chest. mainly before i go to bed which keeps me up for hours. (like now, its 3 AM and i cant sleep because of heart pounding)I told my doctor about the popping or bubbling feeling and he said not to worry about it because we all have joins and poping in our bodies..note: mine only occour in my chest cavity, no where else.Last night i also had an extreme pain in my left armpit, well more on the inside of my very left chest. it lasted for about 8 hours. OVERALL QUESTION: Should i be worried? or just stick to the idea that it's still anxiety? I just feel that i have something thats going to go un noticed before its too late and im going to die from it :\
    RawlsB 2 Replies Flag this Response
  • Hi there... I would of said anxiety as much of what you said is common anxiety symptoms including the tingling/burning, dizzy, heart palpitations... BUT for the following you said which makes me think its more then just anxiety - I cant go an entire day without taking a nap mid day, every time i take a i feel great when i get up, i feel dizzy from time to time, and my heart rate randomly starts beating very very fast with a slight chest pain, after each attack i need to lay down. You say you feel great when you first get up (most people I know who have anxiety.. they start their day often anxious..often thinking about their day, what they have to do etc etc.. hence usually anxious in morning too). If it was anxiety... I also wouldnt have expected it to feel better when you lay down (unless you were doing like mentally relaxing). Anxiety isnt a postural thing. To also need a mid day nap each day at your age.. isnt an normal anxiety symptom unless you werent able to sleep at night and hence waking up tired to start with... but you said you wake up great.. so anxiety dont really seem to quite fit. Anxiety too.. one wouldnt expect if that was your issue... to be hitting after gym. Exercise usually helps anxiety, not bring it on. I do have an idea of what it "may" be and what would fit what you are describing better. (next post)
    taniaaust1 2267 Replies Flag this Response
  • A little known condition (but not all that uncommon.. I think this condition will be far more known about in the future) known as Postural Orthostatic Tachycardia syndrome (POTS) .. would fit your case better then anxiety and would make sense with what you are experiencing. Postural orthostatic Tachycardia syndrome, most medical people have never heard of this condition.. there are a lot of people out there with it but arent being diagnosed. Out of 10 doctors and 4-5 specialists (two of those cardiologists) I asked about it.. only one of the doctors went and researched it and then said yes I have it based on my postural heart rate results, NONE of the others had ever heard of it. (So you may have a hard time getting properly diagnosed if Im correct and this is your issue). It causes attacks of Tachycardia (fast heartbeat) but isnt actually a heart problem, the heart is healthy (hence its not a condition cardiologists tend to deal with), the issue is with the autonomic nervous system. Its a type of dysautonomia. POTS can be brought on by several things... being upright (with POTS many will feel better when laying down), heat and exercise can bring on POTS attacks too. So you having trouble after gym fits. POTS also with the tachycardia it gives (hence its name).. also has other common symptoms too eg dizziness, chest pain, anxiety (esp due to the tachycardia).. and can cause things like tingling, ears ringing. People with POTS can get a lot more tired then normal people and may need to lay down (and possibly nap) during the day. POTS is diagnosed by tilt table testing or by monitoring your heart rate when laying and then standing over 10-12 mins to see if it gives a normal reaction to the posture change or if it shows POTS happening. Your POTS if it is this and worsens.. can cause actual complete passouts (but dont tend to be dangerous unless it happened when you were driving or something.. so isnt something to be concerned about if it is POTS). POTS is a condition which can be sometimes treated eg betablockers are sometimes used and can be managed by avoiding triggers. For myself that is avoiding exercise and heat and avoiding being on my feet for too long along with drinking a lot of water and having salt. POTS is an illness which may appear alone or coexist with some other illnesses. POTS is more common in adolesents esp girls (who may grow out of the condition or may not. I did note you are a guy thou) Suggested info and sites for you to read on this are (you will have to educate yourself on it and then take the info to a doctor and try to convince them to give you the proper tests) http://www.dinet.org/ http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome * Be aware that some sites say ones BP goes low with POTS but that is not correct... thou most with it do, not all do. POTS patients may just have the fast heartbeat happening when upright. In cases in which the BP is going low at times with it, that is called orthostatic hypotension. http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots has a collection of links on POTS which you could find helpful best luck at finding a good doctor who is up with this condition. ps on youtube if you do a search for "Mystery diagnoses" eposides and "POTS" or "postural othostatic tachycardia syndrome". There is an interesting eposide of that tv show on POTS on a woman who had severe POTS (its on youtube in three parts). Her presentation is different to yours due to having very bad POTS but shows just how hard it is to get diagnosed and what POTS is like in a severe case.
    taniaaust1 2267 Replies Flag this Response
  • Hey there. I have had a similar experience and was told the same things at first. After over a year of the same symptoms, many hospital visits, and several doctors, I finally found a doc with a different approach. He tested my blood pressure both when I was seated and when I was lying down. Then he tested my cortisol levels, which is no fun but I am so thankful he did. I ended up having very low cortisol which caused a lot of my symptoms and with a cortisol pill my symptoms disappeared. I used to be so out of it all day then when I would lie down at night blood would rush to my head and I would feel wide awake and terrible. Thr thing is, your adrenal glands can be worn out by so much in life, stress, toxins, lack of sleep, infections. So make sure you find a doc that helps you figure out why and helps you change your lifestyle to heal and be healthy. After over 15 years of having an undiagnosed chronic infection that nearly killed me, I am healthy and off meds thanks to three amazing docs. And sheer luck. Stay strong and good luck.-N
    Anonymous 42789 Replies Flag this Response
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