Discussions By Condition: Cardiovascular disease

High Diastoic

Posted In: Cardiovascular disease 1 Replies
  • Posted By: Kat_VonHypertensive
  • January 4, 2011
  • 05:43 PM

I am so frustrated. Ever since I gave after my first baby my blood pressure has been crazy. I have given birth 3 times and after each birth my blood pressure got worse and worse. My bp after my last birth topped 190/110! :eek:

I was on mostly on 40mg benicar or 40/5 azor with a HCTZ pill. It took weeks to come down and then I started getting sick, out of breath and dizzy. I went on and off this med over the past couple years because sometimes my BP would be ok without it.

In the past year I started getting random spikes of 180/110 out of the blue and feeling out of breath. My doctors have run stress test, thallium stress, stress echo, 3D echo, and a calcium score. All fine. Blood tests all fine. I also have random erratic high pulse between 98-120.

I am not on 10mg lisinopril with 12.5 hctz. I still get out of breath sometimes, my blod pressure in the morning is usually 103/78 but by noon or with any acitivity it jumps to 135/117 or 160/105. I am afraid to move up 20mg lisinopril because I think my BP will bottom out and become too low in the mornings. More often it's 135/98. It's very hard to get that diastolic down. I can't believe it's just primary hypertension. there has got to be a cause of the high diastolic and extreme BP swings.

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  • am not on 10mg lisinopril with 12.5 hctz. I still get out of breath sometimes, my blod pressure in the morning is usually 103/78 but by noon or with any acitivity it jumps to 135/117 or 160/105. It's very hard to get that diastolic down. I can't believe it's just primary hypertension. there has got to be a cause of the high diastolic and extreme BP swings. I think you may have the same kind of BP issue as I do, unfortunately it is an uncommon one (only first discovered in the 1970s/1980s) and a condtion most doctors have never heard of. I have yet to find a doctor to help me with this condition thou Ive been looking now for several years.. What points to it is extreme BP swings and the BP being low in mornings esp when in bed and going up high with activity. I think you have "orthostatic hypertension", this is caused by a different process then normal BP hypertension and hence needs to be treated differently... normal BP drugs can cause your BP to crash and may become so low that it could be life threatening. Being an "orthostatic" condition the BP can majorly increase when upright (eg when you are up and about doing things) and can be quite low during the night. This condition can be caused by a sympathetic nervous system dysfunction which has affected the bodies ability to regulate the BP. The pulse can be erratic and speed up as that is the bodies attempt to get the blood around the body better... blood volume may actually be low or pooling in the abdomenal region or legs (some get red flushed legs while others dont). Ive noticed on speaking to quite a few with orthostatic hypertension that the condition POTS (postural orthostatic tachycardia syndrome) which is a kind of dysautonomia, commonly exists with it (half of those Ive come across with this form of hypertension also have POTS. POTS too is caused by sympathetic nervous system/autonomic dysfunction). So you may want to check into if you have POTS too or not (that is what may be causing your erratic pulse/heart rate.. POTS is a disorder with orthostatic heart rate regulation).. you can test this yourself from home or have a tilt table test at one of the hospitals to diagnose it. http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome" Adults who develop POTS, especially women during or after pregnancy, usually see milder improvement and can be plagued with their condition for life" These disorders can be brought on by pregnancy or appear just after birth. Ive communicated in the past with 2 different people with orthostatic hypertension who developed heart failure due to it (one was only in his 30s). It is a condition our doctors need to be learning about.. hopefully more will know about it sometime in the near future. Till then.. ones like me and you will have to keep looking until we find someone who can treat this quite uncommon and little known disorder. (in cases where the orthostatic hypertension is caused by low blood volume, Ive heard life threatening high BP treated with saline IVs). best luck. I saw another on this site in the past week searching for answers too who also had huge BP spikes and dysregulation and probably has it too. (its probably more common then doctors realise but cause they dont take our BPs while we are standing the spikes often go unnoticed).......................................................... To the person with the very high BP spikes who also has diabetes.... I dont know if I will find your thread but Im about to look for it but thought I'd say something here in case you see this one and I dont find your thread again. The info I gave which I said I thought I remembered reading years ago about orthostatic hypertension being more common in diabetes. Ive just found vertification on how this BP issue can go with diabetes again so here it is . "Orthostatic hypertension is observed in association with a variety of other clinical conditions, including essential hypertension, dysautonomias, and type 2 diabetes mellitus. Orthostatic hypertension has been associated with increased occurrence of silent cerebrovascular ischemia and possibly with neuropathy in type 2 diabetes." http://www.nature.com/nrneph/journal/v2/n8/full/ncpneph0228.html
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