Discussions By Condition: Cardiovascular disease

Could this be POTS??

Posted In: Cardiovascular disease 6 Replies
  • Posted By: Anonymous
  • March 14, 2009
  • 07:23 AM

I've had this for about 5 years now, back when I had a car accident or possibly from a horse riding accident. Here are my symptoms.

I can't walk for more than 10 to 20 minutes without feeling like I'm going to pass out. I get very lightheaded and have to stop and lean against a shelf when I'm in a store. Can't go to movies because it sets off light headedness real bad. Sometimes the spells will be real bad and I'll have tremors afterwards, usually in my arms and a few times all over. After the dizzy spells my stomach will cramp up real bad and I'll get real sleepy afterwards and have to lay down and take a nap. Usually when I have the dizzy spells my heart will start racing and sometimes it's sets off panic attacks. The dizzy spells will also cause pressure behind my eyes and cause major headaches and pain around my ears. When I wake up in the morning I'll feel fine, but once I stand up and move around my heart starts racing and I start to get dizzy. Usually I take some sort of pain medicine and it helps settle them but it usually comes back by the middle of the day. Walking it makes my legs feel weak, my hands and feet will start sweating.
The other day I was at school and I had fallen asleep during class, it wasn't even really asleep, it was more of a shutting my eyes and I as I did so it felt like someone punched me. I jerked forward and as I did that my heart started racing and the dizzy spells got bad and my hands and feet went numb. Then I got real hot afterwards.

I've been through every test, they ruled out ears (vertigo), they ruled out any sort of brain cancer (I do have a cyst in my brain), they said there was nothing wrong with my spine. Could this possibly be POTS?? I looked it up and it has a lot of the same symptoms I have. My heart will race when I stand up and then when I lay down it'll start skipping beats rapidly till it falls into a normal rythm.

Can someone please help me out???

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6 Replies:

  • I've had this for about 5 years now, back when I had a car accident or possibly from a horse riding accident. Here are my symptoms. I can't walk for more than 10 to 20 minutes without feeling like I'm going to pass out. I get very lightheaded and have to stop and lean against a shelf when I'm in a store. Can't go to movies because it sets off light headedness real bad. Sometimes the spells will be real bad and I'll have tremors afterwards, usually in my arms and a few times all over. After the dizzy spells my stomach will cramp up real bad and I'll get real sleepy afterwards and have to lay down and take a nap. Usually when I have the dizzy spells my heart will start racing and sometimes it's sets off panic attacks. The dizzy spells will also cause pressure behind my eyes and cause major headaches and pain around my ears. When I wake up in the morning I'll feel fine, but once I stand up and move around my heart starts racing and I start to get dizzy. Usually I take some sort of pain medicine and it helps settle them but it usually comes back by the middle of the day. Walking it makes my legs feel weak, my hands and feet will start sweating. The other day I was at school and I had fallen asleep during class, it wasn't even really asleep, it was more of a shutting my eyes and I as I did so it felt like someone punched me. I jerked forward and as I did that my heart started racing and the dizzy spells got bad and my hands and feet went numb. Then I got real hot afterwards. I've been through every test, they ruled out ears (vertigo), they ruled out any sort of brain cancer (I do have a cyst in my brain), they said there was nothing wrong with my spine. Could this possibly be POTS?? I looked it up and it has a lot of the same symptoms I have. My heart will race when I stand up and then when I lay down it'll start skipping beats rapidly till it falls into a normal rythm. Can someone please help me out???Its pot for sure, by now u already found many sites with same people and questions, stop using and get ready for a rollercoaster of feelings(bad and good).Get your body to detox and in weeks u should feel 75% normal, im on day 8 and counting, i feel much better but im not there yet.Check marijuana whitdrawal symptoms and u ll see what i mean...Stay strong its just your brain playing tricks on you...
    Anonymous 42789 Replies
    • January 17, 2010
    • 09:27 AM
    • 0
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  • Its pot for sure, by now u already found many sites with same people and questions, stop using and get ready for a rollercoaster of feelings(bad and good).Get your body to detox and in weeks u should feel 75% normal, im on day 8 and counting, i feel much better but im not there yet.Check marijuana whitdrawal symptoms and u ll see what i mean...Stay strong its just your brain playing tricks on you...Um..POTS is not drugs!! I'm not a druggy! POTS has to do with the heart and the blood flow!
    Anonymous 42789 Replies
    • January 28, 2010
    • 09:33 PM
    • 0
    Flag this Response
  • car accident?? i'm thinking trauma...and with the symptoms, HPA axis (hypothalamus-pituitary-adrenal). do you have low blood pressure and do you crave salt by any chance?i'd get checked for adrenal function--ACTH baseline, ACTH stim test, cortisol, aldosterone, anti-adrenal antibodies, norepinephrine & epinephrine metabolite levels.here's my theory: you may have incurred damage to your adrenal glands, pituitary, or hypothalamus during the accident that eventually led to low adrenal function. low adrenal function could lead to any combo of low aldosterone (leading to low blood volume/pressure) and low cortisol (causing low blood sugar, fatigue, and poor recovery from stress). if the injury didn't reach the inner part (medulla) of the adrenals, you can still secrete high levels of adrenaline and noradrenaline to counteract the fall in blood pressure and the hypoglycemia...leading to sweating, more fatigue, a "wired/anxious" feeling, heart palpatations, and all sorts of fun stuff.bottom line--find a good endocrinologist who knows their HPA axis and get it thoroughly checked out!!good luck!
    Anonymous 42789 Replies Flag this Response
  • Hon, It sounds exactly like POTS to me. Adrenal deficiency isn't a proven theory. I have POTS, and I go through the exact things you do. I would recommend getting a tilt-table test. The hallmark of POTS is an increase of 30 bpm upon standing. In the meantime, drink LOTS of water, and try to stay out of the heat. I hope things go well for you. If you have a Facebook account, there are lots of POTS pages, and everyone is willing to help. I hope you've found answers.
    Anonymous 42789 Replies Flag this Response
  • I have POTS, Postural Orthostatic Tachycardia Syndrome. I feel fine when I lay down, but as soon as I start to stand up or walk or run my blood pressure shoots up to as high as 200/150 and my pulse rate is through the roof. I get very fatigued for days after each episode. I am now on a beta blocker and it is helping. I stay away from alcohol, caffiene and chocolate as this will bring on these episodes too. My doctor is also doing further testing to see if there is also an underlying disease. My doctor is a Electrophyisologist. If you go to the website, Potsplace.com, there you find valuable information and a list of doctors who specialize in this sydrome. The Mayo clinic also has important information about POTS. Usually a Tilt Test will help in diagnosing a patient. I was seeing a Electrophyisologist who specialized in Arrythmia's but didn't know anything about POTS. He attempted to do a Heart Catheter Ablation in Mar. 2010, but was unsuccessful. This is because I was given the wrong diagnoses. Best Wishes to you!
    dixzeland 1 Replies Flag this Response
  • OMG to the other post, but unfortunately a lot of people don't know what POTS is. My daughter has it. Some of your symptoms sound like POTS and others don't. You need to check your blood pressures when you are sitting, then check it again upon standing. My daughter has been put on medication and nothing works for her. So her cardiologist told her to try lots of gatorade and salt tablets. She still has issues, but nothing like before. Good luck :)I've had this for about 5 years now, back when I had a car accident or possibly from a horse riding accident. Here are my symptoms. I can't walk for more than 10 to 20 minutes without feeling like I'm going to pass out. I get very lightheaded and have to stop and lean against a shelf when I'm in a store. Can't go to movies because it sets off light headedness real bad. Sometimes the spells will be real bad and I'll have tremors afterwards, usually in my arms and a few times all over. After the dizzy spells my stomach will cramp up real bad and I'll get real sleepy afterwards and have to lay down and take a nap. Usually when I have the dizzy spells my heart will start racing and sometimes it's sets off panic attacks. The dizzy spells will also cause pressure behind my eyes and cause major headaches and pain around my ears. When I wake up in the morning I'll feel fine, but once I stand up and move around my heart starts racing and I start to get dizzy. Usually I take some sort of pain medicine and it helps settle them but it usually comes back by the middle of the day. Walking it makes my legs feel weak, my hands and feet will start sweating. The other day I was at school and I had fallen asleep during class, it wasn't even really asleep, it was more of a shutting my eyes and I as I did so it felt like someone punched me. I jerked forward and as I did that my heart started racing and the dizzy spells got bad and my hands and feet went numb. Then I got real hot afterwards. I've been through every test, they ruled out ears (vertigo), they ruled out any sort of brain cancer (I do have a cyst in my brain), they said there was nothing wrong with my spine. Could this possibly be POTS?? I looked it up and it has a lot of the same symptoms I have. My heart will race when I stand up and then when I lay down it'll start skipping beats rapidly till it falls into a normal rythm. Can someone please help me out???
    Redeyedwolf 12 Replies
    • November 15, 2010
    • 00:11 AM
    • 0
    Flag this Response
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