Discussions By Condition: Cardiovascular disease

Cardiomyopathy & other problems, NO HELP!

Posted In: Cardiovascular disease 2 Replies
  • Posted By: BigHopes
  • August 1, 2007
  • 09:05 AM

I have been diagnosed with Cardiomyopathy, Neurocardiogenic syncope, LFBBB,
1. LV ejection fraction is significantly reduced globally suggesting a cardiomyopathy.
2. Abnormal septal motion due to LBBB.
3. LV EF around 40%
4. Diastolic dysfunction also present.

I have seen three cardiologists in the same pratice at the hospital over the last 2 years and have had four TIA's over the last month (mini-strokes) with a mild heart attack and fourth TIA just last week.
They found that my LV EF is now around 35% and I was told to go and see a Neurologists, because the Dr said the stroke was a Grand Mal seizure "WHAT"? and he is taking me off the "Tropol" as I am also on blood pressure medicine (he said too many meds) What am I supposed to do, sit back and wait to die or am I over reacting? The cardiologist told me that I will grow out of this when I went to see him today!!! :confused:
I am 43 yr old female, Non smoker/drinker. Please someone, anyone, please help me understand all of this. My Mother died at the age of 32 with the same problems. Please help.

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2 Replies:

  • Grow out of it? Get another doctor in a different practice NOW! Use the internet to find cardiomyopathy and congestive heart failure specialists in your area and get an appointment. In the meantime, modify your diet. Reduce your sodium intake to under 2000 mg/day and if you have any symptoms of breathlessness or feeling "not right", get to the ER right away. Don't let this doctor dismiss you. You know your body and your family history you have symptoms of CHF which can result from cardiomyopathy. I will email you a website you should check out. I hope you get better. I am your age and experiencing symptoms of CHF as well. It's very scary but there is hope with proper treatment and lifestyle modification.
    KatieRose 29 Replies Flag this Response
  • I have been diagnosed with Cardiomyopathy, Neurocardiogenic syncope, LFBBB, 1. LV ejection fraction is significantly reduced globally suggesting a cardiomyopathy.2. Abnormal septal motion due to LBBB.3. LV EF around 40%4. Diastolic dysfunction also present. I have seen three cardiologists in the same pratice at the hospital over the last 2 years and have had four TIA's over the last month (mini-strokes) with a mild heart attack and fourth TIA just last week.They found that my LV EF is now around 35% and I was told to go and see a Neurologists, because the Dr said the stroke was a Grand Mal seizure "WHAT"? and he is taking me off the "Tropol" as I am also on blood pressure medicine (he said too many meds) What am I supposed to do, sit back and wait to die or am I over reacting? The cardiologist told me that I will grow out of this when I went to see him today!!! :confused: I am 43 yr old female, Non smoker/drinker. Please someone, anyone, please help me understand all of this. My Mother died at the age of 32 with the same problems. Please help.I hope you've found some resolves to your issues. My Mom just told me today that my Dad had some LBBB earlier in life but she wasn't sure what impact it had on his health since it was such a long time ago. But I think this could explain my issues. Because I've had one TIA and it appeared to be non neurological in source since it lasted six hours instead of a couple of minutes. Like my heart is having trouble getting oxygen to my brain. I go get my ECG done next week so hopefully we'll finally find a cause for my troubles. But I think the next question would be is my heart not firing correctly because the diabetes is just killing off the nerves or is it related to something else? Hopefully it's reversible.
    joezen777 4 Replies Flag this Response
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