hello everbody! I am new to this forum and would be very interested if anyone is having similar issues.
All my life I have had issues with syncope, fatigue, and random neuro issues. None were ever seriously looked at because I was "crazy" according to any doctor I tried to discuss my symptoms with.
They called it depression. Fatigue, chest pain, numbness in extremities and face, dizziness, syncope, oscillating vision, hallucinations(alll kinds),heart palpitations, and various other symptoms. I do have a history of major concussions(last one 4 years ago).
Anyway, after passing out under my jeep 2 years ago in 98 deg heat with tools in hand, I went to a nurse practioner(who just happened to be a cardiac nurse).
Diagnosed with neurally mediated syncope. Positive tilt table(severely), and cardiac ultrasound reveals bicuspid aortic valve. They say the vave is coincidence. They say I was dehydrated(although my bloodwork states the opposite). No amount of water helps. Now when I feel the syncope onset(vision starts to go and I feel lightheaded) i eat a tbsp of salt and i feel better. They are ignoring the valve.
What can I do? Can anyone relate to this frustration?
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