Discussions By Condition: Cardiovascular disease

bicuspid aortic vave

Posted In: Cardiovascular disease 1 Replies
  • Posted By: dlemmon73
  • July 6, 2011
  • 10:11 PM

hello everbody! I am new to this forum and would be very interested if anyone is having similar issues.
All my life I have had issues with syncope, fatigue, and random neuro issues. None were ever seriously looked at because I was "crazy" according to any doctor I tried to discuss my symptoms with.
They called it depression. Fatigue, chest pain, numbness in extremities and face, dizziness, syncope, oscillating vision, hallucinations(alll kinds),heart palpitations, and various other symptoms. I do have a history of major concussions(last one 4 years ago).
Anyway, after passing out under my jeep 2 years ago in 98 deg heat with tools in hand, I went to a nurse practioner(who just happened to be a cardiac nurse).
Diagnosed with neurally mediated syncope. Positive tilt table(severely), and cardiac ultrasound reveals bicuspid aortic valve. They say the vave is coincidence. They say I was dehydrated(although my bloodwork states the opposite). No amount of water helps. Now when I feel the syncope onset(vision starts to go and I feel lightheaded) i eat a tbsp of salt and i feel better. They are ignoring the valve.
What can I do? Can anyone relate to this frustration?

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  • Let me be specific on my question. Heart rate is nnever over 60bpm normally, pressure is consistently in the range of 90/60. BP is different in upper extremities than lower extremities. Carotid ultrasound normal-no issues. Tilt table was confusing. Slight change in bp when tilted from 45deg to 80deg. I had a severe reaction when given nitroglycerin sublingually. Wthin 20 seconds of taking, I flatlined for 45 seconds until they opened the iv flush. The tech said that she had NEVER seen someone react like that. They were freaked! I had the echo right after being given 800ml of fluids. I've read an echo is not the best diagnostic for stenosis (MRI is more conclusive). What effects does iv fluids have on calcification of the valve?Why was I diagnosed with vasovagal when a valve defect is present?I find it hard to believe that I am unique. What are the stats on having vasovagal with a bicuspid valve present? anyone going through this?Please, any info might help!
    dlemmon73 1 Replies Flag this Response
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