Discussions By Condition: Cardiovascular disease

Anyone here with POTS or NCS? Any of you get crazy palpitations?

Posted In: Cardiovascular disease 3 Replies
  • Posted By: musicaholic440
  • July 15, 2010
  • 04:33 AM

I haven't been formally diagnosed with POTS, but it's one of the most likely suspects for a lot of my health problems. A couple of my doctors think I have it but don't have the expertise to diagnose it, and I can't do anything more about it until I have insurance again. Anyway, I'm just wondering if anyone else with POTS has strong palpitations. I've had some of them, usually not too severe, while on a heart monitor in the hospital, and it always just shows PVC's (I think pre-ventricular contractions or something like that, I just know it's harmless and common and most people can't feel them). Lately I've been getting a lot of them, and they're really strong. It feels like my heart is doing a huge flip flop, or ready to jump out of my chest--it's hard to explain. If I get enough of them they're accompanied by chest pain. What really makes me wonder is that sometimes I can actually see them, which isn't totally unusual for me--if I have enough asthma meds, my heart will be going so crazy that you can see it beating even through my shirt. I don't get worried about too much anymore, since I've had so much happen to me and most of my symptoms turn out to be nothing, but I'm curious to see if anyone else has had a similar experience.

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3 Replies:

  • Hi, i have POTS among other things. i myself have only have felt my heart really pounding, only about 3 times and those times i dont think were related to the POTS as i was laying down. http://www.dinet.org/symptoms.htm palpitations do very commonly occur in POTS thou. In you have POTS, you will notice the incidences occur FAR MORE commonly when standing (that is where the orthostatic part of POTS cames from). A couple of my doctors think I have it but don't have the expertise to diagnose it, Very easy to diagnose as diagnoses takes place via what the heartbeat does in response to standing. A heart rate which increases by 30 beats per minute in response to standing or goes over 120 beats per minute in response to standing is POTS. One needs to be laying for a while before this is tested eg 30 mins and heartrate is taken while laying, then one stands up and doesnt move but remains standing.. Heart rate is taken after 1 min, after 3 mins, at 5 mins, at 10 mins and at 12 mins (thou some take it longer but many will stop the test at 12 min mark). If you have POTS your heart will raise in one of the two ways i wrote of above. The other way this is diagnosed is via tilt table testing.
    taniaaust1 2267 Replies
    • August 14, 2010
    • 04:13 PM
    • 0
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  • My daughter also has POTS and she has the rapid heartbeat quite often. We have tried many things but the two things that work best for her is lots and lots of gatorade and salt tablets.I haven't been formally diagnosed with POTS, but it's one of the most likely suspects for a lot of my health problems. A couple of my doctors think I have it but don't have the expertise to diagnose it, and I can't do anything more about it until I have insurance again. Anyway, I'm just wondering if anyone else with POTS has strong palpitations. I've had some of them, usually not too severe, while on a heart monitor in the hospital, and it always just shows PVC's (I think pre-ventricular contractions or something like that, I just know it's harmless and common and most people can't feel them). Lately I've been getting a lot of them, and they're really strong. It feels like my heart is doing a huge flip flop, or ready to jump out of my chest--it's hard to explain. If I get enough of them they're accompanied by chest pain. What really makes me wonder is that sometimes I can actually see them, which isn't totally unusual for me--if I have enough asthma meds, my heart will be going so crazy that you can see it beating even through my shirt. I don't get worried about too much anymore, since I've had so much happen to me and most of my symptoms turn out to be nothing, but I'm curious to see if anyone else has had a similar experience.
    Redeyedwolf 12 Replies
    • November 15, 2010
    • 00:01 AM
    • 0
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  • I still don't know what I have, but I do get crazy pounding/racing palpitations sometimes. They've been so bad when I lie down that I thought we were having an earthquake!
    sayyadina 5 Replies
    • November 15, 2010
    • 03:41 AM
    • 0
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