Discussions By Condition: Cardiovascular disease

14, Blood pressure problems?

Posted In: Cardiovascular disease 5 Replies
  • Posted By: molly.bee
  • June 13, 2011
  • 01:10 PM

Throughout my life, I've always had some sort of health problems. I've been diagnosed with Iron Deficiancy Anemia in the past, about a year ago. I got a blood test about 4 months ago and my Hemoglobin was 7 and Hematocrit was 29% . My levels went up though after a recent blood test. I also recenctly went to the hospital because I keep having fainting spells. The CBC was okay, I was slightly Anemic and my EKG was normal.
On to my symptoms..
I get headaches, ALL the time. They are usually by my forehead.
Being Lightheaded is a daily thing for me, its usually only when I change position ( Laying, Sitting, Standing ) . I've passed out many times before, and I get headrushes. My chest burns and I usually see a tunnel, and everything goes black.
The fatigue is ridiculous. I am always so tired and weak. Its summer break and I cant do anything, I missed my friends birthday party and every time I get invited to do something, I dont feel like I have enough strength to do it. I just feel tired all the time, And want to lay down no matter what Im doing.
Im also getting chest pains, even when Im not lightheaded. Usually on the left side, or sometimes like right under my ribs.
I get abdominal pain too, it's random and it leaves me doubled over.
Onto my blood pressure..
Ive noticed that my blood pressure is kind of strange..
I have been keeping track of it, my orthostatics.
This morning I woke up, and took my blood pressure laying down. It was about 100/60 and my pulse was 48bpm. Then I stood up, and got VERY lightheaded. It went to about 140/80 and my pulse was 110bpm.
This is how it usually is, its normal when I am sitting or laying, but when I stand up It shoots up. I dont understand it.. I thought when you stand up its supposed to drop?
I've read about orthostatics and there is orthostatic HYPOtension, which I obviously dont have. But I cant seem to find anything about orthostatic HYPERtension. Also, Postural Orthostatic Tachycardia Syndrome?
The doctor said that although I have Anemia, the symptoms Im having are extreme and the Anemia itself has improved greatly..
Im going to see my Pediatrician this Thursday, so what questions should I ask her? Should I be reffered to a cardiologist, or a Neurologist? I just dont know.
Anyone experiencing this? Please someone help. These symptoms are debilitating and Im finding that its taking over my life. Im only 14, and I want to enjoy my Summer Break which at this point, I can not do.
Thankyou!

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5 Replies:

  • Molly... you dont have any form of hypertension, so dont worry about that one. Clearly you do have a form of orthostatic intollerance and you do have POTS (postural orthostatic tachycardia syndrome) thou if you took that heart rate shift while not active and just standing there after laying down and taking the laydown one. That degree of increase you had over 30 beats per minute due to orthostatic change is POTS. Knowing its POTS is good and bad news. The good news is that you know your your issue and also kids often grow out of POTS (i think i read 50+% recover before they reach adulthood, some teens only have it for a very short time eg weeks). So its good that you have a good chance of recovering from this. Its also good this isnt a life threatening thing (thou you can injure yourself when you faint). Often POTS can also be helped by things. The bad news is that while you have it, it can be severely disabling. The other bad news is that not many doctors are familiar with the issue so there is a chance you may not be able to find anyone to help. You may have to research online to find a doctor or specialist who treats this condition in whatever country you are in. The good news is that info about POTS is just starting to reach doctors so with time, I think this illness will become more known about. I get headaches from POTS in my forehead too (Ive actually got one there right now). Cardiologists deal with heart issues.. POTS thou it causes tachycardia, one has a healthy heart so it isnt something cardiologists deal with, most dont even know of the condition. POTS is an autonomic system dysfunction. Ive seen 2 cardiologists and neither knew about POTS .. Ive seen also 2 neurologists, they didnt know about POTS either. Finding a specialist who knows about this medical condition can be a nightmare. Im concerned too that if I tell you to take in info on this to your Pedriatritrian that he could think you are a hypercondriac and may think you have made up all your symptoms from what you've read as many doctors do this to females and the younger they are.. the more they sometimes get this poor attitude sometimes from doctors. So I'll leave it to you what you think is best to do depending on what your doctor is like.. to present him with POTS info or not to bring it up at this point of time to him this is what you have. (doctors sometimes hate others doing their jobs). It would be far better for your mother to give your doctor info on POTS and to point out it sounds like what you have. I do thou suggest that you share what is said to you here and any links given by me on POTS to your mother. She needs to know you have this problem and needs to be helping you to try to seek help for it. The test you need done so doctors will believe you have POTS is called "tilt table testing" thou some doctors do test by just monitoring heart rate as you have done. If you havent read all the info yet.. I suggest you go to http://www.dinet.org/ and read up all the stuff on POTS. (show your mother it too and show your mother our contact and what ive said in this post to you). I dont know what country you are in but if you are in America there was/is a Professor of Pediatrics at John Hopkins Hospital who was specialising in POTS called Peter Rowe.I dont know where it is now.. but there is a great article online by Johns Hopkins Hospital on POTS in teens. You may need to go to such a specialised place for diagnoses. You tube www.youtube.com has a good eposide of "Mystery Diagnoses" (in 3 parts) on POTS if you do a search (I think i searched for "mystery diagnoses orthostatic" to find it last time). Department of Pediatrics, The Center for Pediatric Hypotension, New York Medical College, Valhalla, New York 10595, U.S.A. a doctor there by the name of Julian M. Stewart was doing a study on POTS in Adolesents. Vanderbilt University Medical CenterNashville, Tennessee, United States, 37232 Contact: Ginnie Farley, RA adcresearch@vanderbilt.edu They are doing POTS research.. you could contact them and tell them about your situation, your symptoms and your age and ask them if they can recommend a doctor who you could get diagnosed by. Vanderbilt Autonomic Dysfunction centre. http://www.mc.vanderbilt.edu/root/vumc.php?site=adc There are also a lot of good links for info at http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots Best luckps if you need others with POTS to chat to about how they treat it and what they do to help. I suggest you to ask on some ME or CFS forums as up to 95% of people with ME/CFS have POTS too (Cort Johnsons CFS forums are good ones but they are currently down). You may be able to get a recommendation of a doctor in your area who treats POTS throu a ME/CFS patient. (Hopefully you only have POTS causing your current symptoms, I dont suggest mentioning ME or CFS to your doctors.. if you mention anything.. just provide them with info on POTS, you possibly may only have POTS.. if you start to commonly get sore throats, fevers.. it would indicate you've developed ME/CFS and have the POTS with that).. POTS can make one feel very tired, weak, headaches, dizziness etc. Take care.. a doctor who dont know about POTS and its symptoms could currently falsely diagnose you with ME/CFS. With ME/CFS all other illnesses are meant to be ruled out before a ME/CFS diagnoses can be given and right now your symptoms fits POTS. Severe POTS can leave a person bedridden.
    taniaaust1 2267 Replies Flag this Response
  • Throughout my life, I've always had some sort of health problems. I've been diagnosed with Iron Deficiancy Anemia in the past, about a year ago. I got a blood test about 4 months ago and my Hemoglobin was 7 and Hematocrit was 29% . My levels went up though after a recent blood test. I also recenctly went to the hospital because I keep having fainting spells. The CBC was okay, I was slightly Anemic and my EKG was normal.On to my symptoms..I get headaches, ALL the time. They are usually by my forehead.Being Lightheaded is a daily thing for me, its usually only when I change position ( Laying, Sitting, Standing ) . I've passed out many times before, and I get headrushes. My chest burns and I usually see a tunnel, and everything goes black.The fatigue is ridiculous. I am always so tired and weak. Its summer break and I cant do anything, I missed my friends birthday party and every time I get invited to do something, I dont feel like I have enough strength to do it. I just feel tired all the time, And want to lay down no matter what Im doing.Im also getting chest pains, even when Im not lightheaded. Usually on the left side, or sometimes like right under my ribs.I get abdominal pain too, it's random and it leaves me doubled over.Onto my blood pressure..Ive noticed that my blood pressure is kind of strange.. I have been keeping track of it, my orthostatics.This morning I woke up, and took my blood pressure laying down. It was about 100/60 and my pulse was 48bpm. Then I stood up, and got VERY lightheaded. It went to about 140/80 and my pulse was 110bpm.This is how it usually is, its normal when I am sitting or laying, but when I stand up It shoots up. I dont understand it.. I thought when you stand up its supposed to drop?I've read about orthostatics and there is orthostatic HYPOtension, which I obviously dont have. But I cant seem to find anything about orthostatic HYPERtension. Also, Postural Orthostatic Tachycardia Syndrome? The doctor said that although I have Anemia, the symptoms Im having are extreme and the Anemia itself has improved greatly..Im going to see my Pediatrician this Thursday, so what questions should I ask her? Should I be reffered to a cardiologist, or a Neurologist? I just dont know. Anyone experiencing this? Please someone help. These symptoms are debilitating and Im finding that its taking over my life. Im only 14, and I want to enjoy my Summer Break which at this point, I can not do.Thankyou!Practicing yoga can help you a lot in getting through your problems.Moreover a balanced diet can also add wonders to it.
    jacky0403 30 Replies Flag this Response
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    beloBlenula 60 Replies Flag this Response
  • This is complete of the most outstanding sites in this area. Look in here often and propose to all, because it is quite recommended. It is rare that the admin pages so cared in compensation believable dope on the chapter and its layout.
    beloBlenula 60 Replies Flag this Response
  • This is complete of the most outstanding sites in this area. Look in here in many cases and propose to all, because it is immensely recommended. It is rare that the admin pages so cared against honest dope on the stage and its layout.
    beloBlenula 60 Replies Flag this Response
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